This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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I hope you feel better too! Sorry it's been such a long road with still no results. It's so frustrating. People are sick, tests show nothing, but that doesn't mean nothing is going on.
Trying the strict gluten-free diet can't hurt (other than being a pain). I know someone locally whose 2 children have celiac. Only slightly elevated blood test. The damage was found lower in the small intestine when they scoped from the back end. Don't know if that's been looked at.
Really, wishing you the best and hoping for some positive results.
Oh good luck with your challenge and I hope you're able to feel better soon!
Yes, I am well aware of Michael Marsh and his thoughts and they are certainly in the back of my mind.
I was on gluten for 5 months when I had the most recent antibody testing. Admittedly my TTG was the highest I've ever seen it but it's still a 7 and the reference range goes up to 20.
That is true most people on the board do refer for Endoscopy and are responsible in their replies to people who are initially reaching out. But I did have experiences where some folks will tell people that certain tests are only positive with celiac disease. Which is not the case, so I'm just reminding those folks.