• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Two Months Gluten Free, Still Have Issues
0

38 posts in this topic

Recommended Posts

sce2012    0

I am gluten and dairy free and still passing mucus in stools and still have stomach pain...doc thinks I have ibs in addition to celiac. Does anyone else still have these problems at two months?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


IrishHeart    1,634

Two months is very early in your recovery.

Healing takes anywhere from 6 months to several years, depending on the severity of the damage.

IBS is just a collection of symptoms. Unless you have some other inflammatory bowel disease or intestinal infection, (has your doctor ruled those out?) I would say you are still healing. IMHO

In answer to your question, yes, I had continuing issues and symptoms for many months. Everyone heals at different rates.

Allergists diagnose food allergies, not food intolerances. They are two different things.

Give it time, hon.

Share this post


Link to post
Share on other sites
sce2012    0

Thank you, that is what I needed to hear. I have been so anxious about all of this. It seems as though everyone has this amazing quick fix after going gluten free and while I have had some improvement, I am still very stressed. My first gi doctor scared the life out of me about celiac potentially being lymphoma and I've never really recovered from that.

Share this post


Link to post
Share on other sites
Ads by Google:


I am two months gluten-free too. I noticed I had the same problems as you a few weeks ago and realized it was from greasy food. Also if you don't have a gallbladder that could make that happen too. One of my doctors also told me to eat naturally gluten-free foods too and eat every few hours to keep everything alright. It will get better. Mine is starting to subside but since I no longer have a GB it will probably still happen sometimes.

Share this post


Link to post
Share on other sites


Ads by Google:


IrishHeart    1,634

Thank you, that is what I needed to hear. I have been so anxious about all of this. It seems as though everyone has this amazing quick fix after going gluten free and while I have had some improvement, I am still very stressed. My first gi doctor scared the life out of me about celiac potentially being lymphoma and I've never really recovered from that.

Being anxious is understandable, but you can't let it take over. (believe me, I know) You are healing and it takes time.

I do not know a single celiac (and I know lots of them) who had a "quick fix". None.

Well, you do not have lymphoma, do you? Okay, then...time to let it go! Focus on today.

Hon, part of this recovery is mindset. You KNOW what this is and you know how to manage it.

The body can recover, but it needs time to repair itself. The damage didn't happen overnight and you do not heal overnight.

Sorry, but that is the way it works.

Just stick to the diet, eat healthy foods, do things you love, drink water, take probiotics and digestive enzymes before meals. Be good to yourself. Get a massage.

Stress serves no purpose, hon. Hang in there!

IH

Share this post


Link to post
Share on other sites


Ads by Google:


TeknoLen    4

I am four months into it and there are still challenging days, but fewer of them with each passing week. If you remain strict and steadfast, the improvements will show up. Good luck.

Share this post


Link to post
Share on other sites
IrishHeart    1,634

Don't know if you have tried this, but digestive enzymes before a meal aid digestion and taking probiotics helps to heal the imbalance in our guts.

Just a thought! :)

Share this post


Link to post
Share on other sites


Ads by Google:


sce2012    0

I am taking a probiotic, Culturelle, although it only has one strain of bacteria so I am not sure if it is the best. I looked for digestive enzymes at the grocery store yesterday and didn't see any. Maybe I was looking in the wrong place. I see people talk about L-glutamine, too...does it work?

Share this post


Link to post
Share on other sites
IrishHeart    1,634

L-glutamine is thought to aid in mucosal repair in the gut. Some people report it helps. It won't hurt!

Digestive enzymes can be purchased over the internet, if you are having trouble finding them in the drug store. (I use Enzymedica Digest Gold, but others may have suggestions for you)

Culturelle is a good OTC probiotic. Drs. Sherwood L. Gorbach and Barry R. Goldin are two researchers who have clinically proven that the Lacobacillus GG strain was strong enough to survive the stomach acids and colonize the intestines successfully. (gosh, I sound like a spokesperson--I'm not, honest! :) ) But there are many others to choose from as well.

Share this post


Link to post
Share on other sites

Meggielynn, you don't get the mucous anymore?

Sometimes I do. Maybe once a week especially if I eat a meal out or I eat a really heavy meal. I've noticed smaller meals with rice/potatoes and fish/chicken are easier on my stomach.

Share this post


Link to post
Share on other sites
sce2012    0

Yes, I have been doing a lot of rice. I took the suggestion about eliminating something, and I eliminated corn. It seemed to help for a few days, but now the pain is back. This is going to make me totally batty!!!

Share this post


Link to post
Share on other sites
IrishHeart    1,634

Try the digestive enzymes before each meal.

Mucus in stool can be from any number of things. It can be from the Celiac, or it could be from greasy foods. If your doctor has ruled out Crohn's, diverticulitis and other inflammatory bowel disease or infections, I'd say you are still healing.

But if it persists, call your doctor.

Share this post


Link to post
Share on other sites
sce2012    0

I had held off on getting the enzymes b/c I was waiting the results of a fecal fat test...I figured he may write a prescription anyhow. The results still aren't in, so I guess I will go ahead and get them since the lab results are taking forever!

Share this post


Link to post
Share on other sites
sce2012    0

I tried the digestive enzymes last night for the first time with dinner...had terrible diarrhea this morning. Is that normal when starting on them?

Share this post


Link to post
Share on other sites
IrishHeart    1,634

I tried the digestive enzymes last night for the first time with dinner...had terrible diarrhea this morning. Is that normal when starting on them?

They have no side effects and I never had D from them.

What brand are they?

More importantly, what did you eat last night?

Share this post


Link to post
Share on other sites
sce2012    0

The brand you mentioned - digest gold. I just ate a plain chicken breast, peas, and homemade gluten free brownies. I had been taking pamelor but stopped because I was getting dry mouth. I don't know if withdrawal from that can cause D. I am also on my period (sorry if this is tmi) which usually upsets my stomach, but today has been pretty excessive. Feeling pretty blue. I am really not sure I am getting better at all. :-(

Share this post


Link to post
Share on other sites
IrishHeart    1,634

Not TMI--it explains a lot!

W/d from Pamelor (nortryptiline) can cause side effects like D

and your period can bring that on, too.

DO not stop it abruptly! You need to taper down from that drug.

Did you doctor tell you to stop this drug???

Chocolate may be too much for your system. Dairy may be too much for you right now.

I am sure you feel down hon, your body is going through a lot and you feel discouraged. Try to pamper yourself.

It will get better as you go along. Hang in there.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,905
    • Total Posts
      938,581
  • Member Statistics

    • Total Members
      65,816
    • Most Online
      3,093

    Newest Member
    Rossy
    Joined
  • Popular Now

  • Topics

  • Posts

    • Due to the nature of the kitchen on those kind of environments it is very hard to not have CC. They are obviously not confident that they are 100% gluten-free. Honestly I would not eat any any place like that due to CC issues. I had my share of so called gluten-free earlier on with my celiac in the beginning after dia. Yeah I only trust 3 places right now not to poison me. 2 have just 1-2 items I trust, I have talked to the managers and they even showed me how they are fixed (conveyor oven, that they place disposable foil sheets on the conveyor and I can have fish, veggies etc. placed on it and roasted then straight to the plate). I would not trust any kind of bin kept food, boiled, dipped, fried, or anything like that from a fast food or chain join if I was you. Many places the chef will on a whim add a bit of something to a sauce, roax, or dish to adjust consistency. (I am a chef and this is how your taught) in most cases a bit of a nuetorl flour (wheat) or starch (corn) is added......so in higher end restaurants you get this issue. Avoid eating out unless the entire establishment is gluten-free or you know how something is fixed. I might suggest a NIMA sensor for gluten testing if you insist on eating out at those kind of places, Most of us just bring our own meal prep, protein bar. or meal replacement shake for these problems. UPDATE Further research, https://www.buffalowildwings.com/Documents/BWW_Nutrition-Allergen_Info.pdf They do not use separate fryers, NOTE many of the gluten containing products potato wedges, wings, nuggets etc are all fried....so anything fried would be gluten contaminated. Considering the nature of this business....I would consider everything on the menu off limits, all their salads even seem to contain wheat?! I really would just stay away from BWW
    • I was browsing on QVC this morning and found they have a bread machine on sale.  It has a gluten free setting. Remember someone asking about them not too long ago so thought I would post a link to the item. Be sure to read the questions and answers at the bottom of the ad.  It is on sale for about $100 http://www.qvc.com/Breadman-2lb-Multi-Function-Stainless-Steel-Breadmaker.product.K44909.html  
    • Well, as a celiac the gluten causes your own body to flare with antibodies and mistakenly attack your body most people the intestines. (I also have it attack my entire nervous system and brain) Your antibodies can stay flared for weeks to a month or so with just a crumb, so cheating is not a option. The damage to your intestines will cause malabsorption for one, second the damage leads to food intolerance issues random allergies, the more damage and longer you go the narrower your list of foods you body can put up with will normally get, These can go away as you heal by the way in most cases, they will also come and go. I had the lettuce intolerance crop up for a month or two. I still have a whole list of NO foods you can check my profile to keep it simple. This disease if untreated can lead to other autoimmune disease, cancer, lymphoma, and we had a case were one member ignored the diet and had to get a emergency colostomy and a section of their intestines removed. Side thoughts, my body works best with fresh cooked veggies to the point of being mushy, I also find taking digestive enzymes makes it so I do not vomit. I take 2-3x times the dose on the enzymes and it works great. (Jarrow Vegetarian Enzymes Plus, and Papaya Super Enzymes, I take extra bromine when using vegan protein powder shakes.) As you heal there will be some wonderful options open up in the gluten free processed foods department, you will probably lose some of those veggie food intolerance issues after a year or so normally. I have lost a few myself and enjoy some I used to not be able to eat. I will give you the newbie 101 list and a list of potential food alternatives that might give you some hope to browse through.
      https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/

        I also post some great recipes in the recipe section.
    • Solid advice. Wish that more people would consider that this might be necessary for some and not entirely paranoid. Could very well be airborne, but most likely culprit is something you're eating. That said, baking, construction/open drywall, farms/animal food and bulk/flour aisles in grocery stores are legitimate worries. I was recently having frustrating problems with random but minor flare-ups, and have eliminated almost all packaged food (even gluten-free) for a bit. It has helped tremendously. I hope that perhaps my sensitivity levels will calm down in a few years, but not being itchy and scabby is worth almost any cumbersome restriction. I think for me the problem has largely been to do with the use of oats in many dedicated factories (even gluten-free oats make me very, very sick). I came to this when lodging a complaint/notifying a company that I'd had an issue with one of their GFCO certified products. I figured that mistakes could happen, and could not imagine anything else I'd eaten that day could be a culprit (had only eaten veggies/rice/meat) so I contacted them to report it. Their response made me quite sure that the lot my food came from was fine from a legal/GFCO gluten-free perspective, but revealed that they make all their gluten-free products on the same line - which include granolas, oat flour etc. When I investigated it a bit more, I realized that many of the gluten-free products that I suspected were causing me problems (but had no real basis for why) were all made by companies that also make lots of gluten-free oat products. Previously, I had only avoided gluten-free products that contained oats as an explicit ingredient, and had never considered that the residues from gluten-free oats could be problematic. Unfortunately, now that gluten-free oats have been legalized in Canada, it is very difficult to find companies that do not use them in some capacity, which is why I axed most of the processed gluten-free stuff. Presumably, because the oats are considered gluten-free, there is no reason to clean the line or employ any allergen food safety practices from the company's perspective. While this may not be a concern outside of those who are super sensitive, it might worth considering if you are still having problems or have a known issue with oats. At the very least, avoiding most processed gluten-free foods (breads/flours/pastas/baked goods) seems to have helped me a lot, even if minor contamination with oats is not the true culprit. I would vouch for mostly sticking with rice, dry beans, root veggies and fresh corn (from the cob) as complex carbohydrate sources for a bit, even though it's a bit inconvenient.   
    • So I previously went to Buffalo Wild Wings and they gave me the gluten-free menu. I asked the waitress if anything is mixed into the fryers somehow with the ultimate nachos, since I read up that they don't switch out fryers for celiac customers, which is fine. She claimed there's no cross contamination happening there, as nothing goes in the fryers. I went back today to find out by the manager that they apparently deep-fry their corn tortilla chips from scratch, so I cancelled my order. But after rethinking, I asked if I could order everything except for the tortilla chips. She came back and told me there's yeast in one of the sauces for the nachos. Yeast is a toss-up, but it seemed to me like they were trying to get me to not order. Either BWW's is lying about their gluten-free menu, or the management was doing everything in their power to prevent me from eating there in order to not have a potential lawsuit. Has anyone felt this way when going to restaurants?
  • Upcoming Events