This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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so sorry about the kidney stones, they are horrible! But glad that somehow resolved your symptoms! Wow!
I totally forgot that the whole celiac thing for me started with kidney stones. They took me out in an ambulance one day while I was teaching, the pain never really resolved until I went gluten-free, practically by accident. Had kidney stones myself and my husband has had them 2 or was it 3 times? Anyway, they are horrible, worse than childbirth, unmedicated. Childbirth at least gives you a nice result and the pain is completely resolved immediately!
so glad you are doing so much better. I love looking up these older stories, but I go crazy when there's no final post resolving the issue, or at least a nice neat follow up! I have to assume most people move on because things worked out.
Thanks so much for replying!
Wow...so interesting to read through this almost 3 years later. It has helped me to see how far I've come. 😁
I never got a good answer on this issue. I did have more than 1 pelvic ultrasound and the only thing that ever came up was ovarian cysts in the process of resolving. At one point I got a referral to a urologist, but the symptoms went away before my appointment so I cancelled.
Fast forward to March of 2016 when I ended up in the ER with kidney stones. Lots of them. I have wondered if I was perhaps passing small pieces of stone during the episodes of pelvic pressure and peeing.
I just don't know. I haven't had an episode like this since I passed the stones. And I am really thankful for that. It was so uncomfortable all the time.
I wish I had a clear answer for you. I don't know for sure what was going on with me though.
I am so grateful to have read through this...3 years has made a big difference in how I feel!
My friend's son sees a pediatric GI. She recommended a dr that others liked, but she doesn't have personal experience with him. When I called, the scheduler asked my reasons for the visit and I told her that I suspected celiacs. She recommended seeing another dr in the office that specialized in celiac. After a 2 week headache with getting the referral, I was very pleased to be listened to and felt she was very helpful. My friend says that U of M is great for celiac (and anothere thread here seems to agree.) I've yet to see her, though- appointment's the end of June. I'm hopeful.