This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
I had horrific leg pains when celiac first reared its ugly head in my childhood. My Mom used to try warm compresses but I don''t remember them helping. Don't know if they were from vitamin deficiencies or not but I had them off and on throughout childhood. I would get cramps in adulthood almost anywhere. My back was the worst. The cramping did resolve gluten free. Don't know if that will be the case for you daughter though. One last thought I know many places are having a very warm summer. Dehydration can also cause muscle cramps so if your dealing with a lot of heat make sure she is weel hydrated.
I hope she is feeling much better soon. Do get a full panel done on yourself and all first degree relatives. Testing is advised even if folks don't seem to have symptoms.
I like Bakery on Mains granolas, the ones that are oat free. They have a fair amount of protein as they have nuts in them. I also have Cream of Buckwheat if I want a hot cereal or if my tummy is off. It's has a good amount of protein and is really easy to digest. I definately don't eat the cereals like Cheerios etc that have regular oats that are mechanically sorted. They may be fine but my reactions to even small amounts of CC is too severe to risk it.
Leg pain can be a symptoms of celiac or NCGS. Cause can also be from a deficiency brought on from different causes including celiac. How are her magnesium levels? And B-Vitamin Levels?
Bit of a joke, doctors call their occupation a "Practice" seems they need more practice.
I keep my eggy flat bread in the freezer for quick fixes of eggs normally. But I do sometimes make a porridge out of almond and coconut meal, Konjac flour can be used to thicken stuff into a nice porridge wand works great with almond butter. and I sometimes make a oatmeal knock off using Miracle rice, almond milk, and a bit of coconut flour. I can not eat carbs/grains so my cereals are nut based lol. When out of the house I find MRM meal replacement powder turns into a goopy chocolatey slop of indulgence with a very acquired texture by pouring in hot coffee and topping with a sugar substitute (Flax Meal in it thickens up alot) >.>
It's so frustrating how they don't order all or the right tests and then if something comes back not right--just ignore it. With my daughter I knew something was off for some time but her blood tests -of course it was only a ttg iga and immunoglobulin a that were run-came back negative. But in looking at previous blood tests-she had a cbc run about a year ago that showed that her MCV was high and there was no mention of it. Makes me wonder if that along with a deficiency in her vitamin D levels can be attributed to celiac.
On a side note--she has been experiencing lots of leg pain-to the point where she is sometimes in tears because they hurt so much! She had her endocrinologist appointment yesterday and mentioned that and he didn't think that this could be attributed to the celiac. Is that true? As I stated before she is having the biopsy this Tuesday but I think she is hoping that this is a symptom of the celiac so that it will resolve going gluten-free. Any thoughts?