• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

All Gone Pear Shaped
0

4 posts in this topic

Hello there.

Have been gluten free since about Feb 2011. Not eaten bread, cereal, pasta or bread for some years as it makes me ill so gluten free wasn't a big deal. Felt MUCH better for about six months then slowly began to feel much worse. Back to stomach cramps, the big C alternating dodgey D, headache and truly terrible nausea with repeated close shaves for throwing up while out - not good.

I think soya is a big problem for me (nearly as bad as gluten) so cut that out, followed by potatoes, rice and all other grains and the dreaded dairy. Have not been able to give up milk in coffee!!! Can't eat any processed food (presumably from soya)and also have trouble with bacon, sunflower oil (migraine) all dried fruit and balsamic vinegar. I have a horrible feeling there are other things aswell.

The last six weeks I have really gone downhill and am so cheesed off with it all. Got glutened from some very good oil that I put on two ponies to help sweetitch - it's really good - but contains wheatgerm oil. Gives me all the gluten symptoms including a burning nose - guess I touched it!

Just need to hear some words of wisdom really - sat here bloated, pounding heart and miserable - sorry to moan.

On the up side have used celiac.com for the last year - brilliant, thank you :) .

Have had no official diagnosis but have had symptoms for 35 years, and Hashimotos (use natural thyroid hormone)since age 16 and DH since same age that is pretty much confined to scalp now and varies in severity. Also saliva test (adrenal hormones) showed the antibodies (can't remember the name) for gluten and recommended gluten free.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hello there.

Have been gluten free since about Feb 2011. Not eaten bread, cereal, pasta or bread for some years as it makes me ill so gluten free wasn't a big deal. Felt MUCH better for about six months then slowly began to feel much worse. Back to stomach cramps, the big C alternating dodgey D, headache and truly terrible nausea with repeated close shaves for throwing up while out - not good.

I think soya is a big problem for me (nearly as bad as gluten) so cut that out, followed by potatoes, rice and all other grains and the dreaded dairy. Have not been able to give up milk in coffee!!! Can't eat any processed food (presumably from soya)and also have trouble with bacon, sunflower oil (migraine) all dried fruit and balsamic vinegar. I have a horrible feeling there are other things aswell.

The last six weeks I have really gone downhill and am so cheesed off with it all. Got glutened from some very good oil that I put on two ponies to help sweetitch - it's really good - but contains wheatgerm oil. Gives me all the gluten symptoms including a burning nose - guess I touched it!

Just need to hear some words of wisdom really - sat here bloated, pounding heart and miserable - sorry to moan.

On the up side have used celiac.com for the last year - brilliant, thank you :) .

Have had no official diagnosis but have had symptoms for 35 years, and Hashimotos (use natural thyroid hormone)since age 16 and DH since same age that is pretty much confined to scalp now and varies in severity. Also saliva test (adrenal hormones) showed the antibodies (can't remember the name) for gluten and recommended gluten free.

I'm sorry but I'm not an expert.. but since I was feeling quite poorly as well, I would suggest that you go on an elimination diet like I did. Eliminate everything you're eating except for very basic things that you know don't make you sick.

I started with veggies and red and white meat, then in about a week, added one food every three days.

I found I was reacting to so many things, and specifically foods that are high on sals http://salicylatesensitivity.com/about/about-salicylate-sensitivity/

0

Share this post


Link to post
Share on other sites

Hello there.

Have been gluten free since about Feb 2011. Not eaten bread, cereal, pasta or bread for some years as it makes me ill so gluten free wasn't a big deal. Felt MUCH better for about six months then slowly began to feel much worse. Back to stomach cramps, the big C alternating dodgey D, headache and truly terrible nausea with repeated close shaves for throwing up while out - not good.

I think soya is a big problem for me (nearly as bad as gluten) so cut that out, followed by potatoes, rice and all other grains and the dreaded dairy. Have not been able to give up milk in coffee!!! Can't eat any processed food (presumably from soya)and also have trouble with bacon, sunflower oil (migraine) all dried fruit and balsamic vinegar. I have a horrible feeling there are other things aswell.

The last six weeks I have really gone downhill and am so cheesed off with it all. Got glutened from some very good oil that I put on two ponies to help sweetitch - it's really good - but contains wheatgerm oil. Gives me all the gluten symptoms including a burning nose - guess I touched it!

Just need to hear some words of wisdom really - sat here bloated, pounding heart and miserable - sorry to moan.

On the up side have used celiac.com for the last year - brilliant, thank you :) .

Have had no official diagnosis but have had symptoms for 35 years, and Hashimotos (use natural thyroid hormone)since age 16 and DH since same age that is pretty much confined to scalp now and varies in severity. Also saliva test (adrenal hormones) showed the antibodies (can't remember the name) for gluten and recommended gluten free.

You are likely routinely getting cross contaminated with gluten, and are going to have to be merciless in rooting it out, if you want to be healthy. I noticed you are still consuming or coming in contact with a lot of things I avoid, irregardless of whether or not some expert tries to assure me that it's "perfectly safe," they don't live in my body, and they don't have my reactions, and I can prove the item in question is not in any way actually certified gluten free, and was likely processed with wheat or a wheat derived product. You may want to do the SCD (Specific Carbohydrate Diet) for a while until you get it sorted out, or a version of it which is modified for your needs.

This includes avoiding like the plague any sort of pet and livestock feeds or topical dressings/ointments/lotions that contain wheat, rye, and/or barley. Oats, unless grown to be gluten free, are also likely cross contaminated, and straw is another thing. This means you just have to be careful as to what you do with your clothes afterwards, like throwing them immediately into a laundry basket in the mud room instead of wearing them in the house, or wearing an overshirt or jacket to feed with, that you keep in the barn just for this activity. Anything that you are putting on the horse should be wheat/barley free. (try olive oil). WEAR GLOVES, a box of disposable gloves is a one of the best things to have around.

Make sure all vitamins, supplements, and medications are really gluten free.

I have read the labels on "balsamic" vinegars lately and the contents are less and less like wine vinegar, and more and more bizarro- land, ingredients like "boiled grape must" which is the dreque out of the bottom of the barrels..... and artificial coloring, no thanks. <_<:ph34r: So I'm sticking with pure apple cider vinegar or a slice of lemon or lime wedge for now. Maybe the next time my grape growing neighbor tries to give me a bottle of wine I will take him up on it, just to make vinegar out of the thing !

Try coconut milk in your coffee and tea instead of dairy milk.

I have had to cut out most processed lunchmeats and bacon, but it was totally worth it to get rid of the symptoms they were giving me, which was severe joint swelling. I suspect it is a reaction to the preservatives or the antibiotics they are fed, as I react the same way to non organic dairy.

0

Share this post


Link to post
Share on other sites

Thanks for that.

Just have got to a stage of being cheesed off and needing to moan.

I am not being careful enough and must be getting cc'd. In fact this really bad spell with wanting to eat gluten again (I believe gluten makes me eat compulsively) all seemed to start when I baked some cakes for some guests! Prior to that there was no gluten in my kitchen for some time. Hubby very supportive and almost gluten free.

My system doesn't seem able to handle any processed food with additives etc and that includes processed gluten free - the whole system seems to go into spasms - don't need to mention the end result of that!!

Will be making more effort from now on :rolleyes:

Back to basics with the food.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,342
    • Total Posts
      935,603
  • Member Statistics

    • Total Members
      65,012
    • Most Online
      3,093

    Newest Member
    sweetiepie
    Joined
  • Popular Now

  • Topics

  • Posts

    • Most of the articles you presented were blogs.  They focused in one article pushed by the American Chemical Society.  The research looked at ground coffee in Brazil ONLY.   https://www.acs.org/content/acs/en/pressroom/newsreleases/2014/august/keeping-filler-ingredients-out-of-your-cup-of-coffee.html We know that Brazil is a very poor country.  Just look at what happened during the last Olympics.   For piece of mind, do not drink ground coffee brands from Brazil.  Instead, grind your own beans or purchase grounds from a reputable company.    
    • Okay, a positive on thyroid antibodies,  but what about the rest of the thyroid panel?  That tells more of the story.   Is  rest of the thyroid panel all in the normal ranges?  Is that why you were recommended to take a supplement instead of actual thyroid hormone replacement?  Many doctors try a tiny dose of thyroid hormone replacement.  Was this considered?   Symptoms besides gray hair?   You can either embrace the gray hair or color it.  My research and personal experience has never come across a method of reversing grey hair.  My SIL grayed  at 18.  She has been coloring her hair black for decades and her thyroid is normal. 
    • Be sure to read "cyclinglady" post and link to an article from the University of Chicago Celiac Center....vitamin deficiency's prior to diagnoses....so helpful. 
    • Hi All - I was recently diagnosed with Hashimotos. My doctor said TPO AB 76 is above range. I initially went to the doctor because since graduating college 3 years ago I have gotten a significant number of gray hairs (25% of my hair I would say) and I just turned 25 and am an African American woman. She put me on OMP Thyrotain. Has anyone used this? She has also advised me to go gluten free. Has anyone seen any reversal in the grey hair? I don't consider myself a shallow person but at such a young age, without any family history of this, it's really impacting me negatively. Any advice or experiences would be so helpful.
    • You shave stumbled onto the biggest secret out there..........the gluten-free diet isn't as horrible as many would have you believe, including the medical profession. There is plenty of good food to eat and the biggest drawback is we have to prepare it ourselves the vast majority of times.  That's the worst part.    And like yourself, I have friends who have much more serious health issues and they do not have the control over theirs as we do over ours. There may be times when you will be faced with temptations you will have to turn away from but you will move on and survive.  Congratulations on having such a positive attitude!
  • Upcoming Events