This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
I had hardly any appetite when I went gluten-free, for about 6 months to a year. I lost about 40 pounds. I saw food as a danger and in turn, it was nauseating to me. The less I ate the more nauseous the food made me. One day I remember food just tasted good again and then I was able to put back on some weight. These days I don't eat half of what I used to pre- gluten-free, but my body is at a healthy weight. At least the doc thinks so. But food just isn't as attractive as it used to be. I learned to eat to live. Every bite counts towards nutrition.
I was never fully glutenfree. Tried it and then got such bad hypglycemia. My blood sugar started to drop dangerously low every hour. After that I decided to take it step by step. I had only 2 slices of bread left. But still have 1,5 slices of bread left. Right now I fall asleep after meals with only tiny amounts of carbs, even if that is non gluten. This is because my cortisol has gotten too low. And my female hormones as well. This all got this bad upon tryng to cut out gluten. As there is no doctor yet to support me in this, it is too dangerous to continue on my own.
The stool and saliva test are not considered to be valid by mainstream medical. Helpful tools, but again, not recognized by the GI Association. You need to be on a gluten diet for 8 to 12 weeks prior and then ask your endo or PCP for a celiac blood panel. KarenG gave you a link that explains the testing.
I certainly sounds like you should do the gluten challenge and get retested.
I am officially diagnosed, but my hubby is not. He went Gluten Free per the poor advice of two medical doctors. It worked though. He saw enough improvement to make him adhere to the diet for 16 years. He never cheats on the diet. I need my diagnosis since I did not have GI issues at the time of my diagnosis. I could not believe that both of us would have gluten issues.
I hope you figure it out and your health improves!