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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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When I was 16, I had been in and out of hospitals for a number of reasons for two years. My mother and a team of doctors felt that it was worth a shot on the gluten-free diet I tried it felt good the first few weeks then got to the point that no mater how many Vitamins I took I was always tired. I worked at Wendy's and didn't eat there because of CC. I would still come home and sleep 12-14 hours wake up an hour or so before I had to be at work, only to come straight home and go right back to bed. We went back to the doctor and my pediatrician recommended that I go back on gluten, to see if I got my energy back. Of course my mother was outraged and got my medical records right then I never seen him again. I ended up moving to my grandparents and went back on gluten. I felt like a normal person again. My grade shot through the roof normally a C student I was bringing home a 4.0, working 20-30 hours a weeks and I was involved in two clubs at my high school.

Now its complete opposite. I was sleeping anywhere from 9-13 hours and couldn't hardly concentrate. Now gluten-free and 26 I feel like I am 16 again. I have energy to burn, I am more productive at work than ever, and I am sleeping 6-8 hours a night waking up refreshed... Whats the difference. Why now, what has changed in my body that makes such a difference.

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When I was 16, I had been in and out of hospitals for a number of reasons for two years. My mother and a team of doctors felt that it was worth a shot on the gluten-free diet I tried it felt good the first few weeks then got to the point that no mater how many Vitamins I took I was always tired. I worked at Wendy's and didn't eat there because of CC. I would still come home and sleep 12-14 hours wake up an hour or so before I had to be at work, only to come straight home and go right back to bed. We went back to the doctor and my pediatrician recommended that I go back on gluten, to see if I got my energy back. Of course my mother was outraged and got my medical records right then I never seen him again. I ended up moving to my grandparents and went back on gluten. I felt like a normal person again. My grade shot through the roof normally a C student I was bringing home a 4.0, working 20-30 hours a weeks and I was involved in two clubs at my high school.

Now its complete opposite. I was sleeping anywhere from 9-13 hours and couldn't hardly concentrate. Now gluten-free and 26 I feel like I am 16 again. I have energy to burn, I am more productive at work than ever, and I am sleeping 6-8 hours a night waking up refreshed... Whats the difference. Why now, what has changed in my body that makes such a difference.

I don't know if this is the case for you..but I had spells where my Celiac symptoms went into remission for a time.

This was many years before I was DXed with Celiac. I'd have spells where I was sleepy/exhausted no matter how much I slept, and then out of the blue I'd feel just fine.

I'd have spells where I had a lot of digestive issues and then they'd just clear up for a while too.

I know others have had these periods of "remission" too.

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Before I was diagnosed, I would be sick for 3 months and then feel ok for maybe a week( those were the best weeks of my life, that was when I remembered what it felt like to feel normal) but then sure enough the next couple weeks passed and BOOM back to being sick. That went on for five years before I was diagnosed. I can't eI plain why that happens to a lot of us though :P

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I'm pretty sure I read somewhere that your symptoms can seemingly disappear for months or years, but the damage is still being done (internally) and you are still at a higher risk of developing associated autoimmune disorders. I was reading specifically about teenagers/young adults. People diagnosed as kids, then they cheat (must be hard to be gluten-free as a teen?) and feel fine so they conclude they must have been misdiagnosed. If you are still eating a regular diet now, perhaps you should consider blood tests and biopsy to confirm or rule out celiac disease?

Cara

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