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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Problems Tolerating Lactaid Tablet?
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12 posts in this topic

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mamaupupup    7

Hi all,

Quick question for the lactose-free crowd...has anyone had problems tolerating the Lactaid tablet itself? Our twin who is Celiac and has an incredibly low lactase score seems to be having more stomach pains taking the Lactaid tablet and eating dairy. In fact, she has twice thrown up after the combo of Lactaid tablet and ice cream.

Our plan is to go with lactose free milk/ice creams, etc for now. We are considering taking her off dairy for some time, although we aren't sure what the boundaries are in terms of how to define dairy...etc.

Any thoughts?

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AVR1962    88

You are talking a child so this might not apply. I could not eat dairy and I did try to lactose enzymes. I found the one that you take prior to eating dairy simply did not work for me. The one that you took daily did as long as I took 2 a day. Is it possible to

hat it is not the lactose supplement that is making her sick but that it is not enough and it is causing hr to be sick from dairy?

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ravenwoodglass    1,221

It is possible that she is reacting to casien and if that is the case lactaid tablets would not help. You may want to drop all dairy for a bit, watch out for casien on labels of 'dairy free' items, and see if that helps.

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GFinDC    609

Make sure the lactaid tablets are gluten-free. Not all of them are.

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tom    75

I don't think she's throwing up from the tablet.

If I were her I'd want to try true dairy-free for a couple weeks at a minimum. (Somehow casein can be in things called non-dairy :wacko: like powdered coffee non-dairy creamer)

Also, it could make sense if an "incredibly low lactase score" correlates to more villi damage indicating a more advanced case which could have a higher probability of celiac-related casein issues. Just spitballin' here.

I don't bet on much, but I'd bet she wouldn't've thrown up if she had the tablet w/out the ice cream.

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mamaupupup    7

Thanks Tom!

Yes, I could do the test "Here's a tablet, let's see how you do!"

And, yes, we are about to go dairy free. Newbie question: is there a difference between dairy free and casein free?

And, here are her disaccharidase scores as background:

Lactase 2.2 Abnormal <15

Sucrase 13.4 Abnormal <25

Maltase 56.8 Abnormal <100

Palatinase 2.2 Abnormal <5

Thanks for the help and input!

BTW, this is a kiddo who has vomited a total of 5x in her entire life (she's 5.5) so I'm especially eager to figure it out!

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Ninja    31

IgE testing does not test for intolerances. The IgE antibodies are involved in "true" allergies (histamine response(s)

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mamaupupup    7

Thanks Laura--that's a BIG help!

I "tested" my little Lactaid puker today...I took her to McDonald's for a vanilla milkshake and didn't give her a Lactaid tablet. No vomit. Hmmm. No belly ache, no bloating, crazy!

Not sure I'm going to test the Lactaid tablet only...I'd have to be out in the backyard with her for an afternoon to be prepped for that one!

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I know a few people who have become immune to the lactaid pill, but have found great constant relief from something called Digestive Advantage Lactose Defense Formula. I am lactose intolerant as well and found these work nicely and are much more convenient.My friend suffers from sever lactose intolerant and he swears by it!

Hope this helps! I attached a link to show you what it looks like:

http://www.digestiveadvantage.com/lactose_defense_formula.asp

Stay strong! Feel better :D

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tom    75

I know a few people who have become immune to the lactaid pill, but have found great constant relief from something called Digestive Advantage Lactose Defense Formula.

...

http://www.digestiveadvantage.com/lactose_defense_formula.asp

Curious about this & the phrase "become immune to the lactaid pill", I clicked the link. The pill is just lactase & a probiotic.

Most ppl w/ digestive issues should think about taking probiotics - or already be taking them, imho - whether lactose intolerant or not.

P.S. Thought it strange that the label http://www.digestiveadvantage.com/images/suppfacts-da-ldf.gif says "Contains Soy", though no ingredient looks suspect to this 5-yrs-soyfree celiac. Are they making maltodextrin from soy now?

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Ninja    31

Thanks Laura--that's a BIG help!

I "tested" my little Lactaid puker today...I took her to McDonald's for a vanilla milkshake and didn't give her a Lactaid tablet. No vomit. Hmmm. No belly ache, no bloating, crazy!

Not sure I'm going to test the Lactaid tablet only...I'd have to be out in the backyard with her for an afternoon to be prepped for that one!

No problem!

Well that's good that she didn't have a negative reaction

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