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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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I have severe Dh, tried dapsone and it made me break out in pinpoint red dots all over my body. I have been gluten free for 3 months now and it seems like my skin is getting worse. I am on a low iodine diet and it has helped but I'm still breaking out! I'm starting to think is caused by candida. I seemed to get a yeast infection at the same time I my Dh started getting worse. I cut out my kefir(probiotics) because I wanted to go low iodine. I am also getting of a course of prednisone which help get the Dh under control. I have no clue what else to do now and this is really getting me down. I am barley eating anything because it seems everything makes it worse. I have no more money to spend buying ANYTHING because of all the money I've spent trying to treat this. UGH PLEASE HELP ME!!!!!!! This sis driving me nuts I dnt even wanna wake up anymore!

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I'm sorry you're going through this. DH is awful.

I remember you were headed to a doctor a while ago-was the pred the result of that visit? Did you discuss dapsone? What did the doctor say?

You say the low iodine diet us helping but you're still flaring. That is unfortunately, normal, for quite a few people. Have you thought about salicylates? There are quite a few people on the board right now struggling with sals and they could give you pointers. From my observation, most people have major triggers other than gluten - iodine, sals, SPECIFIC foods (corn, quinoa, soy, etc.) and figuring them out is key to recovery. http://salicylatesensitivity.com/

I was on pred, as well as two shots of steroids and a steroid cream. I can only describe the experience as life altering - I had adrenal issues, blood sugar issues, I was mentally losing it as well as physically. While I understand your desperation (because I was there) please be aware prednisone can be as equally devastating as it is helpful. Also, most people have a rebound effect coming off, and the rash can come back with a vengeance. Please wean yourself off very slowly.

I'm sure you know, but I will repeat it. Dh sufferers seem to be more sensitive to topical gluten, so if you haven't screened your skin care I suggest doing so. Also, DH likes to be moisturized - I like Vanicream or a pure oil like jojoba, and even Vaseline from time to time. Ice packs help me sleep - pack them on to bring down itching.

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I have severe Dh, tried dapsone and it made me break out in pinpoint red dots all over my body. I have been gluten free for 3 months now and it seems like my skin is getting worse. I am on a low iodine diet and it has helped but I'm still breaking out! I'm starting to think is caused by candida. I seemed to get a yeast infection at the same time I my Dh started getting worse. I cut out my kefir(probiotics) because I wanted to go low iodine. I am also getting of a course of prednisone which help get the Dh under control. I have no clue what else to do now and this is really getting me down. I am barley eating anything because it seems everything makes it worse. I have no more money to spend buying ANYTHING because of all the money I've spent trying to treat this. UGH PLEASE HELP ME!!!!!!! This sis driving me nuts I dnt even wanna wake up anymore!

Can you make a list of everything you've been eating?

I have a feeling that most of the foods in your diet as well as most of your hygiene products might be high on salicylates. It turns out that going all "natural" doesn't suit some of us :-(

I also thought I had a candida problem, until Prickly advised me to read about sals, and my DH was better within days of eliminating sals.

Also have you made sure none of the medications you've been using contain anything you might be reacting to?

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You might also want to read through this thread

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Hi Fashionista, Prickly is right & Dani backs her up & I'm going to third that.

A) I first had steroids when I was misdiagnosed as a rash caused by nerves. When you go off the steroids it comes roaring back & I wan't able to stay off them until I discovered I have dh & Prickly told me about the steroids. I then weaned myself off them very, very slowly.

B) I discovered I had a problem with soy. Got off that.

C) I was low iodine too & the rash just wouldn't stay down. The good people on this forum dissected everything I was doing & it came down to too many sals. I went low sal & almost overnight the dh began rapid improvement.

D) Then I was doing great. And then I had some Quinoa. Uh Oh. Rash came back as well as feeling like I was glutened. No more Quinoa for me! I'm getting better already.

You don't have to spend any more money on this. Wean off the steroids, eat low sals & don't eat corn or Quinoa or Amaranth until down the line a few months when you can trial those foods.

Prickly is right, Vanicream, Vaseline, ice packs. I also find using the coolest water you can stand to bathe with b/c hot water irritates it. I douse my body with Witch hazel after bathing --- it cools it & seems to mellow the itch. Make sure all your topical stuff is gluten-free.

Read the thread Dani posted for you ---- that's my "going crazy" thread where we went through everything I was doing & it came down to high sals.

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What foods are high in sals? I'm eating almost nothing now. I have only had bananas, almonds, cranberries and I tried eating chicken last nite. THATS IT! I cut out soy a weeks ago...the reason I think its candida is because 1. I seemed to get a yeast infection at the same time my dh started getting worse. 2. When drink kefir w/ raw milk I only got new sores when glutened. I was eating tons of iodine with no reaction but get a reaction to the slightest amount of iodine now. 3. All the foods that exaggerate candida also exaggerate dh. I'm gonna try to get rid of this candida and see if anything changes. If not I will try the low sals diet.

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I also have a white coated tounge and my hair is starting to thin. I use johnsons baby wash and apricot scrub n my face. I use shea butter as a lotion. Also products with zinc oxide seem to help with healing.

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OMG :blink: ....You poor people!

Like celiacs wasn't bad enough!... :o

I was wondering what all this talk about sals was....OMG...I'm sorry I asked!

I don't EVEN want to KNOW if I have these sensitivities!And I scratch myself BLOODY RAW....especially in my sleep! I'm still trying to deal with the celiacs..caisen...semi-soy(I'm still in denial on that one) and don't forget NIGHTSHADES! Ladies...you HAVE my sypmathies! :blink::D

By the way...anyone ELSE break out in little redpinpricks....My Dr.can't figure it out...and noone HERE has heard of that one...so far! I've had THAT problem for years...even had a thread on it...no luck! It runs on my Dads side of the family...(he is a undiagnosed Celiac in denial!) :rolleyes:

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What foods are high in sals? I'm eating almost nothing now. I have only had bananas, almonds, cranberries and I tried eating chicken last nite. THATS IT! I cut out soy a weeks ago...the reason I think its candida is because 1. I seemed to get a yeast infection at the same time my dh started getting worse. 2. When drink kefir w/ raw milk I only got new sores when glutened. I was eating tons of iodine with no reaction but get a reaction to the slightest amount of iodine now. 3. All the foods that exaggerate candida also exaggerate dh. I'm gonna try to get rid of this candida and see if anything changes. If not I will try the low sals diet.

You are eating Almonds --- high sals, cranberries --- high sals. You could go on the failsafe diet (minus the gluten foods) & eat more things than you are eating now. And it eliminates things that are irritants. Scroll down a little way & you will see a food chart. it also tells you about personal hygiene items & such.

You say you are using shea butter & apricot scrub --- apricot is high sals. I don't know about the shea butter. You didn't say which shea butter & apricot scrub you use --- BRAND? Check them for gluten & sals.

http://www.celiac.com/gluten-free/topic/78246-johnson-and-johnson/

http://celiacdisease.about.com/od/GlutenFreePersonalCareProducts/a/Gluten-In-Shampoo.htm

http://vickie-ewell.suite101.com/how-to-choose-true-gluten-free-shampoo-products-a253425

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OMG :blink: ....You poor people!

Like celiacs wasn't bad enough!... :o

I was wondering what all this talk about sals was....OMG...I'm sorry I asked!

I don't EVEN want to KNOW if I have these sensitivities!And I scratch myself BLOODY RAW....especially in my sleep! I'm still trying to deal with the celiacs..caisen...semi-soy(I'm still in denial on that one) and don't forget NIGHTSHADES! Ladies...you HAVE my sypmathies! :blink::D

By the way...anyone ELSE break out in little redpinpricks....My Dr.can't figure it out...and noone HERE has heard of that one...so far! I've had THAT problem for years...even had a thread on it...no luck! It runs on my Dads side of the family...(he is a undiagnosed Celiac in denial!) :rolleyes:

Cougie, do you really want one of us to tell you about your little red pinpricks? Because we'll tell you to start reading the DH forum...and point out things like iodine and sals....:)

And let's not get started on Dads. Yours, mine, and a few others are on a slow boat down DeNile (rashes and all).

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OMG :blink: ....You poor people!

Like celiacs wasn't bad enough!... :o

I was wondering what all this talk about sals was....OMG...I'm sorry I asked!

I don't EVEN want to KNOW if I have these sensitivities!And I scratch myself BLOODY RAW....especially in my sleep! I'm still trying to deal with the celiacs..caisen...semi-soy(I'm still in denial on that one) and don't forget NIGHTSHADES! Ladies...you HAVE my sypmathies! :blink::D

By the way...anyone ELSE break out in little redpinpricks....My Dr.can't figure it out...and noone HERE has heard of that one...so far! I've had THAT problem for years...even had a thread on it...no luck! It runs on my Dads side of the family...(he is a undiagnosed Celiac in denial!) :rolleyes:

Yup Cougie, you in big trouble now! WE know what those little red pinpricks are. Itching you say? My deah, you came to the right place.biggrin.gif Welcome to the wonderful world of dh!laugh.giflaugh.giflaugh.gif

Ohhhh yeaaaahhhh, dad's & HUSBANDS!!!!! De ribber ob DeNile be a loooong ribber. I'm working on daming up that river in this household but it's going to be a long battle. Well, maybe not so long..... I'm getting help from DH & that's going to make my fight a whole lot easier!

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What foods are high in sals? I'm eating almost nothing now. I have only had bananas, almonds, cranberries and I tried eating chicken last nite. THATS IT! I cut out soy a weeks ago...the reason I think its candida is because 1. I seemed to get a yeast infection at the same time my dh started getting worse. 2. When drink kefir w/ raw milk I only got new sores when glutened. I was eating tons of iodine with no reaction but get a reaction to the slightest amount of iodine now. 3. All the foods that exaggerate candida also exaggerate dh. I'm gonna try to get rid of this candida and see if anything changes. If not I will try the low sals diet.

Drop the milk (and all dairy), because you've been gluten free for only three months and shouldn't be having dairy/ lactose. You can't digest them anyway.

Your problem might be candida, or it might be sals.. but it also might be both. My suggestion is to do a diet that takes care of both problems to avoid wasting your time. Start from basics. Eat only lettuce, carrots, celery, onion, garlic, sunflower or safflower oil, and all types of unprocessed meat for 7-10 days, and when you start feeling better, start adding back one food every three days.

Your diet seems high on salicylates. Read all the links posted to you by squirming.

Bananas, almonds cranberries and chicken were your food last night only.. I meant can you list everything you've been eating for the past two weeks, not just last night.

Also (silly question) but have you made sure you've decontaminated your house from all possible sourced of gluten to avoid cross-contamination?

Have you been reading around the forum? So much information on the boards for the grabs, but you need to do some reading of your own. When I first found out I had celiac I spent six weeks doing nothing but reading about it.

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OMG :blink: ....You poor people!

Like celiacs wasn't bad enough!... :o

I was wondering what all this talk about sals was....OMG...I'm sorry I asked!

I don't EVEN want to KNOW if I have these sensitivities!And I scratch myself BLOODY RAW....especially in my sleep! I'm still trying to deal with the celiacs..caisen...semi-soy(I'm still in denial on that one) and don't forget NIGHTSHADES! Ladies...you HAVE my sypmathies! :blink::D

By the way...anyone ELSE break out in little redpinpricks....My Dr.can't figure it out...and noone HERE has heard of that one...so far! I've had THAT problem for years...even had a thread on it...no luck! It runs on my Dads side of the family...(he is a undiagnosed Celiac in denial!) :rolleyes:

I'm sorry to say Cougie, but the "form" of your DH seems to be the same as mine. I don't get the big watery blisters, I only get little reddish ones.. and if I'm lucky and there's no itch with the blisters they can actually show up for a little over a day then disappear.. unless I itch them, which means they'll scab and scar.

It runs in my whole family, and they all have a NEED to blame it on stress alone, because if they did happen to listen to me it would mean having to giving up their precious food.

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Yup Cougie, you in big trouble now! WE know what those little red pinpricks are. Itching you say? My deah, you came to the right place.biggrin.gif Welcome to the wonderful world of dh!laugh.giflaugh.giflaugh.gif

:blink:

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What foods are high in sals? I'm eating almost nothing now. I have only had bananas, almonds, cranberries and I tried eating chicken last nite. THATS IT! I cut out soy a weeks ago...the reason I think its candida is because 1. I seemed to get a yeast infection at the same time my dh started getting worse. 2. When drink kefir w/ raw milk I only got new sores when glutened. I was eating tons of iodine with no reaction but get a reaction to the slightest amount of iodine now. 3. All the foods that exaggerate candida also exaggerate dh. I'm gonna try to get rid of this candida and see if anything changes. If not I will try the low sals diet.

I have not read throughthe whole thread yet but I just saw cramberries.. anything dried fruit has been bad for me!

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I've been spending HOURS reading everyday but there is so much to know. I can't spend more money on more groceries and throw away more food! I am a broke college student with a fixed income. This is killing me I seriously want to die everyday! I tried to do a water fast because I feel like that is a last resort but I lost so much weight in this first day and then my hair started to fall out! I can't lose anymore because I am underweight. These crazy elimination diets are STARVING me and breaking my pockets because I am constantly throwing out things I can't eat!!!!

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Are you still taking prednisone? Are you still taking dapsone?

Prednisone can cause alopecia and neurological and emotional changes. http://www.drugs.com/prednisone.html

My DH would not heal using steroids - steroids can impair wound healing.

Have you considered drug interactions may be causing you issues? http://www.drugs.com/drug-interactions/prednisone.html

I understand where you're at. But you need to stop and think about what you're currently doing and how you might be able to tweak it to help your DH heal.

I also suggest you find someone to talk to about your emotional situation. If you are on pred that could explain your mental state. A responsible doctor would want you to wean off.

You need a complete work up to check for vitamin/mineral deficiencies also.

Are you sure you aren't getting into gluten? College life can be tough to navigate gluten-free, especially of you're eating at a cafateria, etc.

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I know that newly diagnosed celiacs are not supposed to drink milk but raw milk kefir is the only thing that has helped me feel any better. As soon as I stopped taking it is when thing started to get worse. I tried other probiotics and they don't help. I NEED a good probiotics something at least as good as raw milk kefir and I have found nothing. Raw milk has the enzyme in it to help digest the lactose. I dnt have any problems after drinking it. Everything seems to get worse when I take out things for this DH diet. But my dh only gets slightly better.

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I know that newly diagnosed celiacs are not supposed to drink milk but raw milk kefir is the only thing that has helped me feel any better. As soon as I stopped taking it is when thing started to get worse. I tried other probiotics and they don't help. I NEED a good probiotics something at least as good as raw milk kefir and I have found nothing. Raw milk has the enzyme in it to help digest the lactose. I dnt have any problems after drinking it. Everything seems to get worse when I take out things for this DH diet. But my dh only gets slightly better.

Are you making or buying your kefir?

Have you considered water kefir? You can use the pearls in water.

The only problem with milk is the iodine, if you are iodine sensitive. Or if you can't digest the milk....you can handle the milk but the iodine may be an issue.

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I am off Prednisone for 2 weeks now but I am seriously thinking about getting back on it because my skin is so bad right now. My dh is most serve on my FACE so I cannot risk it getting worse and scarring. I need something to work! I am going to just try what I was doing before because trying all these diets is driving me crazy and it has not completely gotten rid off the problem yet. I know pred is not safe but neither is the way this dh is making me feel. I honestly dnt even care if this pred. kills me I just want to be able to have a normal looking face again! Yes I make my own kefir it isn't store bought. I dnt know where to find water kefir and I do not have any more time to wait on a delivery. I do not eat at a cafeteria I cook all my own food. I have class tonite and I do not even want to go because the dh has gotten so bad. I need something that will clear this up by mon. I cannot keep trying to take foods out and then break out AGAIN! I need to be normal so that i can live my life again and get things done.

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I am off Prednisone for 2 weeks now but I am seriously thinking about getting back on it because my skin is so bad right now. My dh is most serve on my FACE so I cannot risk it getting worse and scarring. I need something to work! I am going to just try what I was doing before because trying all these diets is driving me crazy and it has not completely gotten rid off the problem yet. I know pred is not safe but neither is the way this dh is making me feel. I honestly dnt even care if this pred. kills me I just want to be able to have a normal looking face again! Yes I make my own kefir it isn't store bought. I dnt know where to find water kefir and I do not have any more time to wait on a delivery. I do not eat at a cafeteria I cook all my own food. I have class tonite and I do not even want to go because the dh has gotten so bad. I need something that will clear this up by mon. I cannot keep trying to take foods out and then break out AGAIN! I need to be normal so that i can live my life again and get things done.

You really sound stressed, and stress will make things worse for you. Many people with DH have expressed that stress can provoke their DH when it's active, making it a lot worse, so try to relax. It's always better take it a step at a time.

I know you want this to stop, and you want it to stop now, but believe me it will get better, and we are all going to see this through with you until you start feeling better. These thoughts of wanting to die are probably caused by the reaction you're having as well, so keep in mind that these negative thoughts are not your own, but your illness speaking.

I'm sadly the least experienced, but I know that are others who will have amazing advice for you.

Have you talked to tutors by the way? You have to explain to them (before you start missing too much on class assignments) that you might need some extra time.

Explain the problem, and try to find others who have celiac at your uni. They might have good suggestions on food and money issues.

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You can convert some of your milk kefir grains to water. http://marly67.wordpress.com/2010/03/05/converting-milk-kefir-grains/

They suggest buying water kefir grains, but you can use the milk and stay on budget. There are plenty of sites out there about making water kefir and recipes.

How long did you wean off the pred? Are you on dapsone?

I don't know of anyone who hasn't broken out after stopping pred.

If you felt better and your DH was better on another eating regimen then I'd say go back to it. But I seriously doubt anything will make DH go away in 3 days. It may start to heal but it won't be gone.

Perhaps when the semester is over you can look at a few things that may help the DH. You'd have more time. Perhaps you should start incorporating some low sal foods in to your shopping during your regular shopping trips? When it's time to buy new skin/hair care ensure they are low sal/gluten-free?

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But Dani.... they're not blisters....just literally pinpricks....and totally randon!for no reason at all....they just start popping like crazy starting on my arms and then all over my stomache...then EVERYWHERE! they don't itch....but It feels like a million microscopic blood vessels breaking...like a breeze...running over my body....and i'm covered in pinpricks! It's SO weird! they usreally fade away...or turn into freckles!!!

I have a lot of freckles because of this!!! Sometimes they're bigger...like blood blisters...but they NEVER pop or ACT like bloodblisters!Its most lickly to happen when its hot...or I'm in the SUN...or its windy...or I'm upset! But LOTS of times its JUST RANDOM! :blink: And nobody has EVER been able to give me a straght answer!

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But Dani.... they're not blisters....just literally pinpricks....and totally randon!for no reason at all....they just start popping like crazy starting on my arms and then all over my stomache...then EVERYWHERE! they don't itch....but It feels like a million microscopic blood vessels breaking...like a breeze...running over my body....and i'm covered in pinpricks! It's SO weird! they usreally fade away...or turn into freckles!!!

I have a lot of freckles because of this!!! Sometimes they're bigger...like blood blisters...but they NEVER pop or ACT like bloodblisters!Its most lickly to happen when its hot...or I'm in the SUN...or its windy...or I'm upset! But LOTS of times its JUST RANDOM! :blink: And nobody has EVER been able to give me a straght answer!

That sounds like hives. Except the freckling part. Hives can be caused by anything/nothing. There are heat hives, cold hives, pressure hives, stress hives....do antihistimines help?

Maybe you should put this on another thread, Cougie...dovit can get more attention.

Oh wait! Lookie! http://www.bad.org.uk/Portals/_Bad/Patient%20Information%20Leaflets%20(PILs)/Urticaria%20Pigmentosa%20Update%20Jan%202012%20-%20lay%20reviewed%20Oct%202011.pdf

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If you are having NCGS symptom’s (Marsh Lesion) aka Rome III lesions then why is the diagnosis not NCGS instead of IBS?  The problem is most NCGS (apparently 84%) is misdiagnosed as IBS in a large number of cases or possibly SIBO in your case Feeneyja. Even when 84 % of those with IBS show sensitivity to gluten the diagnosis of Non-Celiac Gluten Sensitivity is not confirmed by a simple gluten antibody test and people  consider Non-Celiac Gluten Sensitive (NCGS at least in the medical community apparently) a myth rather they diagnosis someone’s digestive problems with IBS of an unknown cause instead of admitting gluten is the trigger thus allowing them to avoid what is considered a mythical diagnosis to some in the medical community. 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JMG aka Captain NCGS I referenced the Columbia University Medical Center (CUMC)  research on NCGS that I think proves your point and mine. here is the care2 article that I think summarizes it well. http://www.care2.com/causes/new-study-confirms-existence-of-non-celiac-gluten-sensitivity.html NCGS is on the "Celiac Spectrum". quoting dr. hyman from the huffpost 5+ years ago and still people seem them as different diseases (or at least deny the existence of the one over the other) http://www.huffingtonpost.com/dr-mark-hyman/gluten-what-you-dont-know_b_379089.html "When you get these tests, there are a few things to keep in mind. In light of the new research on the dangers of gluten sensitivity without full blown celiac disease, I consider any elevation of antibodies significant and worthy of a trial of gluten elimination. Many doctors consider elevated anti-gliadin antibodies in the absence of a positive intestinal biopsy showing damage to be “false positives.” That means the test looks positive but really isn’t significant. We can no longer say that. Positive is positive and, as with all illness, there is a continuum of disease, from mild gluten sensitivity to full-blown celiac disease. If your antibodies are elevated, you should go off gluten and test to see if it is leading to your health problems." and the columbia research bears this out. ironictruth you want to catch it at the NCGS stage before it becomes full blown (villi burned to the ground) Celiac disease. You are right to run from the burning house (antibodies) causing you a weak but "positive" diagnosis. This concept of the biopsy "proven" diagnosis is archaic at best and barbaric at worse in this age of serology proven diagnosis of NCGS before the villi burns to the ground so to speak. see this online article by dr. rodney ford that discusses why this is today. http://drrodneyford.com/extra/documents/236-no-gold-standard.html and he too (though in minority) is forward enough thinking to diagnose his patients with serology alone. Why would we use a standard 60+ years old when modern medicine can diagnose the disease much better and much, much sooner than what till there is stage 3 marsh lesions. The dgp test you had can diagnose it the intraepithelial lymphocytes (IEL)  stage. That is good news.  The villi are already smoking (using my analogy) of a burning house from antibodies attacking the body. Problem is and I mean this as a complement to SIBO girl and Captain NCGS (I was this in an article about the ZIKA outbreak patients talking how much more they (those affected by the disease) knew than their doctor's who where treating them at the time) we (us) have become doctor's without diplomas'. One of us each has become an expert at recognizing SIBO, NCGS and Pellagra. The question is which one is right??? Maybe we are all right by degrees. I believe NCGS can be confused for SIBO. But I also believe and the research confirms it in my mind that low stomach acid mimics many of the symptom's of both SIBO and NCGS. So that tells me there is still a disease not yet correctly identified. To me the disease that answer's the most questions in my mind is Pellagra. Ironictruth, Freneyja, JMG taking a b-complex can disprove or prove this theory. here is the full paper by Prousky. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml decide for yourself but people routinely get better in 3 months time of taking  niacinamide 2 to 3 times daily or a b-complex and niacinamide 3/day for 3 months. The dosage does not matter.  It is the frequency. And a month will be enough to see improvement (100 count bottle).  I used to recommend to my friends a 100 count bottle because it was the most common way to find either Niacin/Niacinamide or a b-complex but when I found out your body could store 3 months worth in the liver and my experience with b-2 (riboflavin) and angular cheilitis (look it up on google images if you don't know what it is) for years probably 5+ I could not get rid of it for nothing. And I took b-2 (for a 100 count round) once before but learned b-vitamins needed to be taken frequently for best effect. So I bought a 300 count bottle (3 months worth) and took them (b-2/riboflavin) 2 to 3 day and the angular cheiliitis (leaking lips, cracked fissures at the side of the mouth) and it was nice and crusty went away and they have never come back since. but this was after I took the B-3 Niacinamide for a couple months firsts then I was able to absorb the b-2 (riboflavin) now and I put this condition in remission (i did not say cure) because if I get low again it might come back but remission. The same thing happened to my GI problems associated with NCGS (serology positive celiac diagnosis) without a biopsy proven (thank God) diagnosis. And that is my story. I would suggest jmg, feeneyja and you too too ironictruth buy a b-complex and see if a couple three months regimen might help put your GI symptom's in remission. we already know from research 5+ years ago that b-vitamins help celiac's with their well being. https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html quoting "For 6 months, patients received daily doses of either a placebo, or of B vitamins in the amount of 0.8 mg folic acid, 0.5 mg cyanocobalamin and 3 mg pyridoxine." They summarize quoting "These improvements, the normalization of tHcy levels, together with the substantial increase in well-being, led the research team to conclude that people living gluten-free with long-term celiac disease do indeed benefit from daily supplemental doses of vitamin B, and that doctors should consider advising the use of B vitamins supplements for these patients." So I am just saying what the doctor's recommend when recommending Niacinamide for your GI problems that Pellagra could be mimicking (masking the true cause) hence the 58% of celiac also have pellagra (that a majority) of Celiac's also are known to have. I am not a doctor.  But You can be a professor though with a masters so while I do preach Pellagra as a co-morbid condition of NCGS/Celiac disease it is only because the doctor's with diploma's research bears this out. So I try and make more people aware of this fact. (no I do not have  a master's either though a friend once said who has a masters said my research would qualify me if I had taken the courses) (And yes I know B-3 was not studied in this paper) but maybe now is the time to point out it should bee! Or SIBO girl, and Captain NCGS you can try it (B-3) for yourselves and see if it helps you the way it did the Pellagra kid/posterboy. If you want to study this topic more I summarized many of thoughts in this posterboy post https://www.celiac.com/gluten-free/blogs/entry/2103-why-and-how-pellagra-is-often-confused-with-celiac-disease-andor-other-gidigestive-problems-the-science-of-pellagra-a-hidden-epidemic-in-the-21st-century-presentingrevealing-as-ncgs-andor-possbily-celiac-disease/ I wrote a blog post that also said "I had Celiac disease but developed Pellagra" but I really think it is the other way around. (it is linked in the above post) if you want to read it there so I won't post it again. I was a pellagrain who was diagnosed first as a celiac.  The same way a SIBO might first be diagnoses as a IBS or NCGS patient.  Or the way a NCGS is first diagnosed as a IBS patient 84% of the time. Remission is possible I believe if and when you find the right/correct disease. And any of these GI conditions can be confused for the other and SIBO girl and Captain NCGS makes good points. But it seems to me Pellagra can be confused for not only the SIBO, NCGS, but if the research is right 58% (the majority) of Celiac's and it is easily reversible in 3 months time. You will not know if you are not willing to try it. **** this is not medical advice just deep research and my own experience with taking Niacinamide. But I will say  I am not the only one who has been helped on this board taking Vitamin B-3. I want you Iroinctruth, Feeneyja, Jmg to be the next ones. I know this post is way too long as usual but I had a lot of ground to cover. quoting a friend 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • After my crash and burn gluten challenge of 2016, I wander off yet again Into the land of eastern and alternative medicine to heal. While I am grateful to many (not all) western medicine  Dr s of the past , for the past 2 decades the ones who give me relief for my lifetime ails are the alternative/eastern practitioners. I'm not starting a debate as both branches have their strengths, often the shame is they are seperated in healthcare, for likely humanity and public health imo would be best served by their encouraged collaboration/mutual recognition,but alas not my problem to solve. Much bigger then me and quite frankly, I'm too busy healing to tackle that mountain. Regardless, I now have "shoes that fit my carpet bag " of decades of multiple misdiagnosis /undiagnosis collection. They can be combined and labeled celiac and fibromyalgia. I was shocked at first at the news, I consider those really serious. Is AWOL really that ill? I've read up more  on both disciplines descriptons etc for these conditions, I'm in shock for the "shoes" fit perfectly . I know based on western test results I'm far from textbook/ gold standard celiac (but I failed to get past day 6 of my gluten challenge -likely speaks for itself) and fibromyalgia is quite demeaned/dismissed from my past knowledge amongst the western medicine world and greater society. (Friends /family in western medical fields) Is this still the case? My lifetime gi issues, the 30 plus years multiple chemical sensitivities ( go back to childhood-I keep very close to the vest), 20 plus years symptoms of muscle issues / myalgia, now have the names of celiac & fibromyalgia. Mixture of feelings of relief to be recognized, but also knowing my named illnesses are likely not recognized or are minimised by my western medicine trained family and friends and greater society. Can anyone offer some encouragement to help me cope at this time of healing? My accupuncture visits have been truly helpful, but my last visit is giving me a lot to process chemically, biologically, and spiritually. It's like someone unleashed the flood gates of all the symptoms of both illnesses at once in a combined package for me to experience in a one transparent package.  Very enlightening and to be blunt I feel like crap. So it's time to accept the package names and all, the curtain was lifted and the waxing and waning symptoms of fibromyalgia we're released. Please share any positive support or stories you have on coping with celiac recovery, celiac/fibromyalgia, and  healing by accupuncture. It will be much appreciated. As it is abundantly clear AWOL is here to stay on the celiac.com forums. Thanks  
    • https://www.celiac.com/gluten-free/topic/116482-supplement-and-foods-you-take/ ^ I did this a while back where some of us have posted what we take and eat to get our nutrients. Mines changed a bit since then since I can not eat any grains, sugars or fruits.
    • I take 2 Slice of Life gummy multivitamins and drink 2 Ensure high protein per day. Both are gluten free.
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