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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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RB21    0

About a month ago I went in for an endoscopy. My throat was all swollen and red and my doctor told me my duodenum looks exactly like someone's with celiac. They did multiple biopsies of my throat and duodenum. Went in for the results and the doctor told me I'm allergic to some kind of food and to take prilosec twice a day and come back in June for another endoscopy. I've had symptoms for 6 years and I was told I had IBS. So I made an appointment to see an allgerisit in May even though the doctor told me to wait until the second endoscopy. I had a bad reaction to some food on Monday and I decided to go gluten free. Is this going to mess up my second endoscopy? Should I stay on a normal diet and wait or stick with the gluten free? Any suggestions would be helpful.

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Adalaide    361

Did the doctor actually diagnose you with celiac? Was his opinion about your intestine based on the biopsy results or just what he could see during the procedure? I'm mostly confused. Why would he prescribe prilosec for an allergy when he doesn't even know what that allergy is? To answer one question, yes, going gluten free before a biopsy will skew the results and could lead to a false negative. I'm in no position to give advice on what you should do, but if possible can you get in to see the doctor again sooner to talk things over? I also don't understand why he would want to prevent you from seeing an allergist. What difference does it make to him whether or not you determine what is causing this allergic reaction? If your throat was red and swollen that sort of sounds like it's approaching dangerous and waiting another month and a half just sounds hair-brained to me. I would certainly recommend keeping a journal listing what you eat and what symptoms you suffer from. You may be able to use that to pinpoint what is causing your problems. Other than that you may be recommended an elimination diet. Anyway, not really any advice I can offer on what to do, but hopefully you'll get some answers and start feeling better soon.

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Get the lab report and see ifctgey biopsied you or just looked.

Did they run a Celiac blood panel?

If you go gluten-free now you can't undergo Celisc testing. Let's figure out if the testing has been done yet (if you can stand staying on gluten).

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RB21    0

Thanks for the advice. The doctor went off what it looked liked. They did biopsy it but I don't know if they ran a celiac test or not. He didn't say anything about it in the visit to go over what they found in the biopsy. Just that what I have is an allergic reaction to something I'm eating. No blood work was done. The endoscopy was ordered for my gallbladder problems. I'm starting to think the two are connected. The food journal sounds like a great idea, I'll do that and get a Celiac blood panel done. Thanks again so much for your help and advice.

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Keep eating gluten for your Celiac panel!!! And make sure they give you all the tests - page 1 and 2. Insist on it. http://www.cureceliacdisease.org/wp-content/uploads/2011/09/CDCFactSheets3_Antibody.pdf

And I'd still get the lab report.

Yes, there's a connection between gallbladder disease and Celiac.

Your doctor is an idiot, btw.

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    • What does this result mean exactly?   Endomysial Abs, IgA Negative   Negative Transglutaminase IgA <2 U/mL 0 - 3 U/mL Negative 0 - 3
      Weak Positive 4 - 10
      Positive >10
      Tissue Transglutaminase (tTG) has been identified
      as the endomysial antigen. Studies have demonstr-
      ated that endomysial IgA antibodies have over 99%
      specificity for gluten sensitive enteropathy. Immunoglobulin A (IgA) 518 mg/dL 87 - 352 mg/dL
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