• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Traveling Overseas ... Any Guidance?
0

20 posts in this topic

Hello! I am still awaiting blood test results, but am about 99% sure I have Celiac. I have finally adjusted to not eating wheat at home, and have mastered a few local restaurants... but recently my family traveled to DC and wow, finding food to eat in new towns, in new restaurants... it was much harder than I thought it would be. I wound up pretty ill, honestly.

Here's my concern... my husband and I are finally going on our European vacation and I am so excited! Except, now I am sort of dreading all the food. We are spending three days in Paris (bread anyone?), three days in London, and then three days in Ireland.

What on earth am I going to eat? I am so tired of grilled chicken salads when I go out to eat. Though I have mastered the bun-less hamburger... only, I have never really been a big fan of burgers.

What do you do when you travel places where you are unfamiliar with menus, etc? Any guidance? I'm sort of preparing myself to be a little glutened ... I'm not sure I could avoid it 100% while traveling, realistically.

Thanks!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hello! I am still awaiting blood test results, but am about 99% sure I have Celiac. I have finally adjusted to not eating wheat at home, and have mastered a few local restaurants... but recently my family traveled to DC and wow, finding food to eat in new towns, in new restaurants... it was much harder than I thought it would be. I wound up pretty ill, honestly.

Here's my concern... my husband and I are finally going on our European vacation and I am so excited! Except, now I am sort of dreading all the food. We are spending three days in Paris (bread anyone?), three days in London, and then three days in Ireland.

What on earth am I going to eat? I am so tired of grilled chicken salads when I go out to eat. Though I have mastered the bun-less hamburger... only, I have never really been a big fan of burgers.

What do you do when you travel places where you are unfamiliar with menus, etc? Any guidance? I'm sort of preparing myself to be a little glutened ... I'm not sure I could avoid it 100% while traveling, realistically.

Thanks!

Welcome here! You mention not eating wheat - I'm just checking to make sure you know that you also cannot consume anything containing barley or rye as well. Most advise us not to consume oats until our guts heal (even certified gluten free - there are differing opinions, of course).

Congratulations on your first European trip! My husband and I travel to Europe twice each year (leaving next week, actually) so I understand your concern. We travel to countries where English is not the first language so I take along restaurant cards (just google). That may help in France. The good news is that it seems many other countries are far more aware and better informed than in North America. And even better - in good restaurants, most menu items are naturally gluten free anyway (i.e. lamb, duck, etc.) so this is the time to splurge! :D Not only that but the chefs are far better trained than cooks in fast-food or casual places. Usually. Same is true here in Canada.

Be careful to explain cross contamination in the kitchen, too. It is not just the food itself that can cause trouble.

I would recommend frequenting the wonderful outdoor markets and also recommend renting an apartment if possible so you can prepare your own breakfasts and lunches. Go to the grocery stores and markets for picnic fixings.

Definitely take along plenty of snacks, especially for eating at airports. Many airports have little or nothing available for us that is safe other than the odd half-rotten banana. Same with gluten-free food on flights (make sure to request that). My experiences have been dreadful but I go prepared. Plan for flight delays and turbulence (i.e. you cannot get up to get a snack out of your bag - keep something with you).

Last of all, do not worry or panic. It truly is easier even in Central/Eastern Europe than here. Oh, yes. Some pharmacies carry gluten free products. Look for the Scharr brand. I HATE the sliced bread but I read on here that their rolls, I believe, are good.

When do you leave?

0

Share this post


Link to post
Share on other sites

My friend just returned from London and brought me a bag full of gluten free goodies. It certainly is not uncommon there (unlike here in Asia). I think with some googling you can find a lot of restaurants catering to gluten-free diets. One thing I often do is use Google of that country to get better hits. In this case use Google.co.uk.

0

Share this post


Link to post
Share on other sites

I would feel uncomfortable eating at any restaurant unless it has a good reputation for gluten free cooking, such as PF Changs does here. Buy some fresh fruit to carry around with you. GoPicnics have many gluten free options and those were my lifesaver when i traveled to Africa, as they don't have to be refrigerated or heated up. Buy some potatoes when you get there, something to fill you up. I also brought my pans with me which was a help so I could cook some chicken. Definitely get a hotel where you have a microwave and stove.

Also, don't expect to get glutened. With the right precautions you will be fine! I did not get glutened and I traveled to a country that has no understanding if allergies or gluten. If you try, you will have nothing to worry about! Good luck and have fun on your trip!

0

Share this post


Link to post
Share on other sites

Congrats on the trip! I live in Germany, have for 10 years...lived in Italy for 2 years, and we travel alot. Get your cards ready and be prepared to ask questions. I have found that most understand "allergy" and will work with you but you have to get your point across so they understand that you cannot have foods with breading or sauces (gravy) made with flour and that would be what I would ask....."does this come with a sauce on it?" I always ask for "natural" which is another word they undertand.

As far as the medical side I think there is more awareness among docs but I have never seen the awareness in food establishments like you see in the US. Grocery stores or health food stores carry gluten-free products but still quite limited. In Germany you will find them in the grocery stores on the health food aisle so be very careful not to mix up gluten-free and bio, not the same.

Ireland will not be an issue, wonderful wonderful people there, enjoy! France, especially Paris, the language will not be an issue and they have wonderful salads and grilled meats. England again will not be a problem, just make sure you specify no sauce. I have had issues where it did not say on the menu that the item I wanted had a sauce and then it woudl come out covered.

Enjoy!

0

Share this post


Link to post
Share on other sites
Ads by Google:


You will be just fine eating gluten-free in Europe.

Especially Ireland, where celiac is rampant, and everybody knows about celiac, the same with Italy. And England should be just fine too.

I was in Italy four days last week, and took no gluten-free eating card with me, and had no problems. I do not speak any italian either.

0

Share this post


Link to post
Share on other sites

Wow, thank you so much everyone! Talk about relief! I was so worried - wonderful, thank you!

We leave on Tuesday.

0

Share this post


Link to post
Share on other sites




Wow, thank you so much everyone! Talk about relief! I was so worried - wonderful, thank you!

We leave on Tuesday.

Excellent! We leave Wednesday for the month of May with no celiac-related worries! :D

Have the time of your lives.

0

Share this post


Link to post
Share on other sites

Excellent! We leave Wednesday for the month of May with no celiac-related worries! :D

Have the time of your lives.

Thank you so much - you too!! PS - just got a neg result from blood work at the drs. She said it may be because of gluten-free diet. Doing an endo/colon when we return from our trip. I tested out a hamburger bun this morning and am writhing. Eek. I need to stop 'testing' and just trust that that is the problem... Thanks!

0

Share this post


Link to post
Share on other sites

I live in the UK but I am from Ireland, Take my advise and ask to speak to the chef if there is not a gluten free menu. If you have doubts don't eat it. So many times I have heard its gluten free when I would find my soup swimming in barley, we personally find if you say gluten-free you have to list what that is dont take for granted that they know what gluten-free is :) in all supermarkets there is a gluten-free section so you will find breads etc. On a lighter note Smirnoff ice in the bottles is gluten-free in the UK unlike the USA .

0

Share this post


Link to post
Share on other sites




You will be just fine eating gluten-free in Europe.

Especially Ireland, where celiac is rampant, and everybody knows about celiac, the same with Italy. And England should be just fine too.

I was in Italy four days last week, and took no gluten-free eating card with me, and had no problems. I do not speak any italian either.

I really don't think that is true about Ireland not a lot of people know about coeliac disease or gluten free. To find someone that has even heard of it is very far and few between .

0

Share this post


Link to post
Share on other sites

I really don't think that is true about Ireland not a lot of people know about coeliac disease or gluten free. To find someone that has even heard of it is very far and few between .

I really hate to disagree with you but the UK is excellent at gluten free dining. Having been there 9 times, 4 of which when I was diagnosed and eating gluten free, I was glutened twice. It was small CC issues and I recovered well enough that it did not ruin my vacation but eating out is a risk anywhere in the world and it can happen. However, seeing that I eat out once a day for 2 weeks on every vacation, those are not bad odds. Twice in 4 trips.....

Ireland was especially impressive as everyone knew exactly what I was talking about and the meals were excellent. All places I ate at had good gluten free bread also.

To the original poster.....take a look at this thread: London Dining. I especially love Cafe Rouge. Very good food and a great gluten-free menu. I have never been glutened by this chain. Also, the coffee house Cafe Nero had fabulous gluten-free brownies last time I was there, a year and half ago. They are individually wrapped to prevent CC....they do such a good job and the coffee is great!

A couple of things......check the ingredients for the breads served in Ireland as they sometimes use wheat starch in their baked goods. The bread that was offered at almost all places look like rolls and it's great because they are heated every time so you get nice hot rolls. Wheat starch is supposed to be safe as it's processed so highly but it is not accepted by American standards for gluten-free so I don't eat it. The rolls did not contain wheat starch and they were good and I felt fine after eating them.

They referred to them as "Celiac bread".

Watch for malted tea in Ireland...check the labels. I got bagged by malted tea. Never again..... :ph34r: Who knew?

Eat here in Dublin: Millstone. This place is fantastic, with a very good gluten-free menu, which can be viewed on their website. The waitstaff were just great.

Relax and have a wonderful trip...you'll be fine. When in doubt, eat simply. The Irish food was plain compared to other places BUT wonderfully prepared and very good. They didn't have 500 choices on the menu like you see here in the States but that makes choices easier and I had no complaints about quality of food...and I'm a food snob! :P

We want a report when you return...... :D

0

Share this post


Link to post
Share on other sites

Sorry but as I said I live in the UK and I am FROM Ireland, So I have spent a lot more time eating out here and living on a day to day basis.

0

Share this post


Link to post
Share on other sites

Sorry but as I said I live in the UK and I am FROM Ireland. So I have spent a lot more time eating out here and living on a day to day basis. To put this into perspective the last time I had a gluten-free sandwich in Starbucks was a year ago as they never have them in stock ( not in the city I am in anyway )

0

Share this post


Link to post
Share on other sites

Sorry but as I said I live in the UK and I am FROM Ireland. So I have spent a lot more time eating out here and living on a day to day basis. To put this into perspective the last time I had a gluten-free sandwich in Starbucks was a year ago as they never have them in stock ( not in the city I am in anyway )

The only thing I can say is that how could it be that this America, who has spent approx. 3 months in the UK and Ireland, had little trouble finding food I could eat, had little trouble with the locals in understanding what I needed, and have eaten out at least once a day on all my trips post gluten free diagnosis and only been hit twice, on a small level? One from tea and one from CC at a restaurant? The experience may be different for a local as opposed to a tourist as tourists have more money to burn on where they eat. I must admit I go to higher end restaurants where their education and knowledge of gluten may be higher. However, I found all the pubs I ate in did just great with my meals. Maybe they are more receptive to tourists? If we have a bad experience then we aren't coming back.

If you look at the travel thread, the vast majority of people who go to Ireland do not have any trouble and find it really gluten-free friendly. I am not trying to argue the point but my experience was phenomenal. I am sorry you think your country is tough for a Celiac but I am scratching my head over this.

0

Share this post


Link to post
Share on other sites

My advice is to not worry too much. I lived in Europe for an extended time and have spend a lot of time in London. I always found eating there to be extraordinarily easy. I felt the same way about Ireland and even Paris.

0

Share this post


Link to post
Share on other sites

Thank you so much - you too!! PS - just got a neg result from blood work at the drs. She said it may be because of gluten-free diet. Doing an endo/colon when we return from our trip. I tested out a hamburger bun this morning and am writhing. Eek. I need to stop 'testing' and just trust that that is the problem... Thanks!

Great news! Glad you are having great follow up. Stop that cheating - it is NOT worth a few minutes of pleasure, is it?? ;)

0

Share this post


Link to post
Share on other sites

Well, you will need to be on gluten for your endoscopy to be profitable. If you're eating gluten free, no reason to have an endo cuz it will be negative for celiac :) just a side note haha!

0

Share this post


Link to post
Share on other sites

Well, you will need to be on gluten for your endoscopy to be profitable. If you're eating gluten free, no reason to have an endo cuz it will be negative for celiac :) just a side note haha!

Good call! Duh. Can't believe I let that one slip past me.

It's true - you must be consuming the equivalent of 3-4 pieces of bread a day for 3 months before your scopes are done.

0

Share this post


Link to post
Share on other sites

I am a vegetarian and I travel overseas a lot (not since dx celiac though..). Anyway, the cards are AWESOME! At first you kind of feel like a weirdo, but people really try to make it work for you. Japan and Thailand are the best. They wait staff would just smile, shake their heads, and bring out plates and plates of delicious food. Anyway...

The restuarants in London and Ireland have more options than US restaurants (I feel). I really don't think you will have too many problems (as you eat meat and fish). I have to second Cafe Rouge in London. I was suspecting celiac when I was there recently and they had many gluten-free vegetarian options! Plus, so so yummy!

I always travel with way too many "snacks" in case I don't have meal options. My husband is always like, "do you really need that many Kind bars?" Ha! And I find a grocery or farm stand the first day and stock up on fruit, veg, etc. I haven't found an international hotel yet that didn't have a knife to lend to cut up fruit and veg (though on US hotel gave me a plastic knife).

Have an amazing trip.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,330
    • Total Posts
      935,519
  • Member Statistics

    • Total Members
      64,991
    • Most Online
      3,093

    Newest Member
    Cz28
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hey guys!  I have been suffering from NCGS for almost a year, and have recently been diagnosed with IBS.  Although I was finally getting used to the gluten free routine, this has been really hard to get used to.  I'm currently having a major flare, so I'm off pretty much all fodmaps (although mainly beans, dairy, nuts, and gluten). Additionally, my stomach can't handle more than a 1/2 cup portion per meal, and even then, I'll occasionally have pain after eating.  Does anybody have simple, fast meals that they could share? As if this isn't restrictive enough, I'm also allergic to eggs, so I'm pretty much living off smoothies, rice, and allergy free chicken sandwiches.  I know this is pretty restrictive, but I thought that if anybody could help, it would be you guys.  Thanks!  Claire 
    • Great advice everyone! So the envirokids gorillla munch by natures path is safe?. As for cinnamon Chex is that ok too? 
    • Alright, so I'm 3 months into being gluten free, And in terms of how I feel, the "best fit" line on the graph would be a very slow incline, which is good, but day to day, I would mark as all over the place. I don't understand. I pretty much do the same things every day, and eat the same things every day at around the same times, even in the same order. I cook all my own food and am super careful about CC. I even have my own pans, cutting boards, even my own sponge for washing my own aforementioned kitchen supplies. What I eat is very limited. I don't even do dairy, grains, or added sugar. (for now) Yesterday I actually felt okay. The brain fog was fairly thin, I felt more based in reality, rather than like I was in the matrix, on drugs, or in a dream. Today I'm back in the matrix again. I can't think, I have anxiety, I'm overly emotional, short fused, angry, and scared of my own shadow. This up and down for no apparent reason stuff seems to be the norm for me. Is this unheard of or somewhat common? It seems like how I feel is completely out of my control, and the disease just does whatever it wants. I know 3 months isn't that long in the usual recovery time frame, but I want to get off this ride. I just need to know if it's normal to be so up and down day to day during the recovery, or if I should give in to my assumed unfounded panic attacks and be worried. As a side note, I'd much rather have the typical gastro issues usually associated with celiac. Blowing chunks and crapping my pants constantly would be way easier for me to deal with than all the neurological problems mine manifested as. Ugh.
    • Ha, Ha!!!!!!  If I wouldn't get in trouble for practicing without a license, I would!     I get it because that is what they did to me for years.  I never had acid reflux but had enough other symptoms that all screamed Celiac but no.........they told me that my severe stomach pain might be acid reflux so take this script and go away. They never even tried to figure it out past the 10 minutes allowed for the appointment. I'll never forget one doctor that I pushed back on and told her I was not there for meds but to find out what was actually wrong and she got so mad she left the room and never came back. All they kept doing was trying to shove pills down my throat.   I am guessing that the procedure is the one where they tighten the sphincter muscle at the entrance to your stomach? I know so many people who had that done because it's become so common to push that if the meds aren't working well. Follow the money........ If acid reflux becomes that bad, then you have to start looking at food, period.
    • Here's a link that discusses Mast Cell Activation Syndrome (histamine intolerance) and recommended tests.  http://www.thepatientceliac.com/tag/mast-cell-activation-syndrome/ This article explains how POTS is related to MCAS. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3545645/#!po=35.0000 "In another clinical situation, Shibao et al. and colleagues studied a small cohort of patients who had evidence of mast cell activation as evidenced by elevated urine levels of N-methylhistamine after flushing episodes and who had orthostatic intolerance (69). Detailed studies revealed a profound hyperadrenergic response to standing characterized by tachycardia and hypertension consistent with postural orthostatic tachycardia syndrome, or POTS. This phenomenon is felt to be due the release of vasoactive mediators such as histamine that act locally on sympathetic nerves; autonomic function was assessed to be normal in these patients. The authors have used methyldopa, an alpha-adrenergic agonist, with some success in these patients along with standard medications to block mast cell mediators. They caution against the use of beta-blockers, which may exacerbate mast cell activation."   Vitamin and mineral deficiencies often occur with Celiac Disease.  Celiac Disease causes malabsorption which results in malnutrition.  It's important to correct nutritional deficiencies after a Celiac Crisis like you endured with your gluten challenge.   Vitamin D is so important!  Vitamin D tells the mast cells to turn off histamine production.   https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4154631/ Vitamins C and E and B6 help, too. https://www.ncbi.nlm.nih.gov/pubmed/21244748 The eight B vitamins are water soluble and need to be replenished every day.  Not enough B vitamins can make one grouchy (or seemingly an alien).  Just watch "Naked and Afraid" on Discovery channel.  The contestants who don't get protein (chock full of B vitamins) get grouchy, depressed, and irritable.  Some contestants have to be removed because their personality changes to the point they become dangerous.  This is a drastic example of vitamin deficiencies that develop over a short period of time, three weeks.  Now imagine having a subclinical deficiency over a long period and a slower health disintegration.   I lost my faith in doctors when my deficiency diseases were not recognized and addressed.  So, I used my food journal and the low histamine diet guidelines to get my inflammation down and my vitamins and minerals up.  Hope this helps.      
  • Upcoming Events