This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
I added some onion powder to my dinner today.After eating it i became curious and send an email to manufacturer.They told me its not gluten free they add starch to it.And on package it was saying we dont add anything else:( i dont have symptoms yet but they were selling a range of gluten free products so i remembered like it was gluten free and ugh im so tired of getting glutened by random and useless stuff like this i was doing great for more than a month then this happened
im just exteremely sad right now
Motivate me for tomorrow guys :((())
Thank you both for the replies. The article is very insightful. Right now I am trying to reason with the thought of being miserable for 4-8 weeks to get a diagnosis. I feel so good right now it seems almost not worth it, but I also need to know if something is wrong and if there are potentially any other digestive system issues. I will likely go on a gluten challenge and deal with the side effects... after all, Thanksgiving is coming up
We all have to make our own health decisions based on our individual circumstances. There is not any “one size fits all” approach. ☹️In your daughter’s case, she was asymptomatic. I also would find it hard to believe that she had celiac disease despite confirmed biopsies and antibodies tests. I get the denial. I just had anemia that was disguised by a genetic anemia. I was shocked at the suggestion of celiac disease. My hubby had been gluten free for 12 and I knew exactly what the treatment meant — gluten free for life. A total game changer.
Because we have bought our health insurance for over 20 years, we have lived through the times that I was uninsurable due to my Hashimoto’s, Rosacea and toe nail fungus (yes, that is right). I never went without, but I could not freely jump from plan to plan. My premiums were higher than my hubby’s. So, we worry that health insurance could change and I would be uninsurable again. (Did I mention that our annual premium is $24,000?)
However, the genetic test can be invaluable but is mostly used to help rule out celiac disease. There are other genes associated, but they have not been studied well.
“So far, scientists have identified over a dozen possible non-H.L.A. genes that may be associated with celiac disease, but whether these genes actually play a role remains to be seen.” (Sheila Crowe, now head of the American GI Association).
The antibodies test, in conjunction with the biopsies is the best means of diagnosing celiac disease to date. The blood test is the least reliable as there are false positives (rare). It is hard to dispute villi damage. Too bad your Aunt did not get a biopsy, but understandably, an endoscopy can be costly if you lack insurance and there are many other reasons, so many are forced to forgo this procedure.
It is unfortunate that we must weight the risks and benefits of everything.