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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Drywall Repairs
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They will be doing drywall repairs at my place of work on Monday. I'm scared. I've read that drywall contains gluten. I have been gluten free for one year and six months. It took me 14 months to clear my DH rash. I don't know what to do. My boss told me about the repairs being done on Monday so I could decide what to do. Wear a mask? I've read that doesn't really help unless it is the respirator type. I don't have one and they are expensive. Do I take off work and miss two days of pay that I really need to put food on the table? How long will drywall dust stay in the air? I'm thinking two days off to be safe and then maybe wear a mask for a few days...but I really don't know. I get really sick from gluten. Anyone with experience with this problem? Any advice will be appreciated. I don't want to spend the next 2 to 3 weeks with depression and anxiety and probably many more months with the rash and sores that won't heal.. Please advise.

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Well, I got into something when they were repairing my house. We weren't living there, but I'd go and work on the house.

Sometimes there's gluten in the joint compound, or the wallboard. You'll never know.

The time it really got me was when I ATE at the house. Yes, I'd washed my hands but it wasn't good enough.

So, for me if I wore pants, wore sleeves if i could,didn't eat there, didn't refill my water bottle...and showered the second I got home and took an antihistimine I got through it.

But in the end, it was THE EATING.

Now the house is semi clean and I'm less sensitive and I'm ok. I still get it itchy but I take an antihistimine and im ok.

Of the dust will be in the air (demolition) I'd stay home. That stuff gets everywhere. If they are installing new, the dust will be minimal. But it will be on surfaces.

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Just wondering, has this type of Topic been covered before??? I work Commercial & Industrial Construction and I'm often exposed to drywall & joint compound dust.. I have DH and had many unexplained itches and feeling bad... Sounds like I need to check the MSDS Sheets for Gluten...

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Just wondering, has this type of Topic been covered before??? I work Commercial & Industrial Construction and I'm often exposed to drywall & joint compound dust.. I have DH and had many unexplained itches and feeling bad... Sounds like I need to check the MSDS Sheets for Gluten...

You may find this site by the NIH helpful:

http://householdproducts.nlm.nih.gov/cgi-bin/household/brands?tbl=brands&id=18001046

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OMG With my DH I'd be out of there, literally. I'm a low income single mum. After 12 months of head to toe DH this is a situation that would need me to be on severe avoidance.. so that I could have minimal impact on my ability to pay future bills.

I hope it works out for you whatever you decide to do. Let us know. All of these experiences and decisions are important for us (and newcomers) to make informed decisions.

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There's an old thread on here, about this. Search for it.

But yes, some building materials have it, others don't. Sometimes it's hard to figure out or get the MSDS, and then if it's an old construction (like my house) you'll never know.

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Thanks everyone. Yes, this has been covered before. I googled gluten in drywall and came up with many posts about people getting sick from sheetrock/drywall.

I am very low income and can't afford to be off work. BUT the drywall work is really minor repairs of nail holes and such. I think I will wear a mask and go all day without eating. I am really worried. I am the housekeeper so I'm supposed to clean up the sheetrock mess. Ugh! If I don't do it Monday, it will be there on Tuesday so I guess I will just have to face it.

Hey Captain...look at this...http://hartkeisonline.com/natural-health/drywall-guy-solves-his-own-health-issues/

I really don't want to get sores again. I guess I am still thinking it over. As soon as I think about the depression and the sores I could be in for...I decide that taking one day off isn't that big a deal. And Tuesday might be safer. But it took 7 years to find out what caused the sores and 14 months to heal them so I sure as heck don't want a reaction.

Yeah, people should be aware of gluten in drywall/sheetrock. The dust is fine and I'm sure it will last for days.

Has anyone survived this situation without getting sick? Pricklypear, thanks for the advice, I will take those precautions if I go in.

Oh my gosh! I do not know what to do.

I know we have to live in the real world, but really, I can't take it. I feel like I will be walking into a radioactive waste site and not knowing when the radiation sickness will hit...but knowing that it will.

I'm taking Monday off. I can't even stand thinking about it anymore. I haven't been glutened in several months and I am so relieved to finally be well. Muscles are working great...no migraines...no sores...it's just not worth it.

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Well, quite frankly if they're just patching nail holes that's manageable - or it would be for me. I even patched mail holes in that house without issue.

When I reacted, it was from them literally ripping walls and floors out and there was a sheet of dust EVERYWHERE.

If you wear rubber gloves/particle mask (just a dust mask) and dispose of the cleanup I'd bet you'd be fine - or at least I would.

I would eat OUTSIDE, though, for a few days and wash yourself down well before you eat- face, arms.

It might actually be better if you're there so you can direct the construction workers about what NOT to do. Force them to clean up properly and get ahead of it. You'll know where they go, etc.

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And it might look sort of silly but can you pin your hair up on your head & cover all with a kerchief or some such type of thing? That way none will get it your hair & then cause you grief.

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I had a question related to this topic, the house we live in has a wheat field right in front of it! Will the harvesting of the wheat bother me and if so is allergy medication enough to keep it at bay???

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I found this one article written by Jane Anderson, who frequently writes about celiac disease.

Question: Can I Get Symptoms from Inhaling Airborne Gluten?

Answer:

There is indeed evidence that it's possible. One medical study backs the idea that it's possible to experience celiac disease symptoms by inhaling gluten, rather than eating it. In addition, there's anecdotal evidence that airborne gluten can cause symptoms.

So while airborne gluten has not been proven to cause problems, if you have celiac disease and continue to have symptoms despite following a gluten-free diet, it would make sense to look for possible airborne sources of gluten in your environment.

The medical report, published in the New England Journal of Medicine in 1997, involved two farmers diagnosed with nonresponsive celiac disease (also known as refractory celiac disease).

Each day, the two spent time in an enclosed space, feeding their cattle a mixture of barley, wheat and other grains that contained at least 6% dust particles by weight. The report estimates that the two farmers "were potentially exposed to over 150 g of gluten-containing dust particles per day, which they were inhaling and ingesting."

For reference, that's about 15,000 times the amount of gluten considered "too much" on a daily basis for a person with celiac disease.

Both farmers suffered from ongoing symptoms, including cramps, bloating, fatigue and diarrhea. One of the farmers — the one with the worst symptoms — had total villous atrophy, despite following the gluten-free diet. The other, who also followed a gluten-free diet, showed less severe intestinal damage.

Once both farmers began wearing face masks, their symptoms cleared up. The farmer with the more severe intestinal damage saw improvement in his intestinal lining, and the other farmer had total resolution of the damage.

What Does This Mean for Other Celiacs?

Most of us aren't farmers, nor are we exposed to that much gluten each day, either from gluten in "gluten-free" foods or airborne gluten. However, it shows that airborne gluten can have an effect and cause symptoms.

For non-farmers, there aren't any medical studies that show airborne gluten can be a problem. However, anecdotal evidence suggests you can get glutened from airborne flour, either in a private kitchen or even near an active grocery store bakery. This has happened to me more times than I can count, and it's happened frequently to celiac and gluten-intolerant friends. You don't have to be super-sensitive, either.

Pet food may pose a potential problem, according to the clinicians who wrote the airborne gluten medical report. Most dry pet food contains gluten, and when you pour it out, it's possible to inhale some of it. In addition, some powdered household products, such as drywall compound, contain gluten, and working with these may cause a reaction. I've had bad reactions from drywall dust.

How to Avoid Airborne Gluten

To avoid airborne gluten, you need to know where it occurs. Here are some suggestions, both from my own experience and from other celiac educators:

Never use flour in the kitchen. Don't work with flour; don't let anyone else work with flour in your kitchen; and don't visit with friends and family members in their kitchens while they're working with flour.

Switch to gluten-free pet food. It's theoretically possible for you to avoid the dust if (1) someone else feeds your pet, and (2) you keep the food and the bowl outside. But if you have a close relationship with your pet, you'll be better off switching anyway, since you'll inevitably be exposed.

Avoid places where drywall is being installed. If you need to have work done on your house, have someone else do it and stay away until the work site's been thoroughly cleaned up. Don't use ready-made spackling putty or compound, either, since most are wheat-based.

Exercise caution around store-based bakeries. Some of these seem fine for me, while others get me every time. I think the difference may be in the ventilation systems. If you can smell the bread and cookies baking, you may be risking an airborne reaction.

Consider using a face mask in certain situations. I haven't had great luck with a face mask when I've tried to use it to avoid drywall dust. I still got a reaction — it just took longer. But for short exposures, it might do the trick. I recommend a full respirator, rather than a painter's mask — they're about $40 in home improvement centers. If you have asthma or another respiratory condition that affects your breathing, you should use a respirator with caution and remove it if you have trouble breathing with it on.

Not everyone needs to take all these precautions; if you're not particularly sensitive to gluten cross-contamination, you may be fine in most or all of these situations. But if you find you're still having unexplained symptoms, even though you follow the gluten-free diet very strictly, you might want to check out your environment as well as your food.

Source:

Kasim S. et al. Nonresponsive Celiac Disease Due to Inhaled Gluten. New England Journal of Medicine 2007; 356:2548-2549.

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Good point Squirming! I have long hair...and wear a braid...but hadn't thought of the dust that will get in my hair. I will put it up and wear a mask and a shower cap! How about that! I guess I won't be flirting with any construction workers Monday! Won't I be cute? hey! Maybe Captaincrab?

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I found this one article written by Jane Anderson, who frequently writes about celiac disease.

Question: Can I Get Symptoms from Inhaling Airborne Gluten?

Answer:

There is indeed evidence that it's possible. One medical study backs the idea that it's possible to experience celiac disease symptoms by inhaling gluten, rather than eating it. In addition, there's anecdotal evidence that airborne gluten can cause symptoms.

So while airborne gluten has not been proven to cause problems, if you have celiac disease and continue to have symptoms despite following a gluten-free diet, it would make sense to look for possible airborne sources of gluten in your environment.

The medical report, published in the New England Journal of Medicine in 1997, involved two farmers diagnosed with nonresponsive celiac disease (also known as refractory celiac disease).

Each day, the two spent time in an enclosed space, feeding their cattle a mixture of barley, wheat and other grains that contained at least 6% dust particles by weight. The report estimates that the two farmers "were potentially exposed to over 150 g of gluten-containing dust particles per day, which they were inhaling and ingesting."

For reference, that's about 15,000 times the amount of gluten considered "too much" on a daily basis for a person with celiac disease.

Both farmers suffered from ongoing symptoms, including cramps, bloating, fatigue and diarrhea. One of the farmers

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Good point Squirming! I have long hair...and wear a braid...but hadn't thought of the dust that will get in my hair. I will put it up and wear a mask and a shower cap! How about that! I guess I won't be flirting with any construction workers Monday! Won't I be cute? hey! Maybe Captaincrab?

The shower cap is a great idea. The hair is why I suggested a shower ASAP.

If they are just spackling it's the lesser evil.

What sucks is you'll be the one cleaning, regardless. But your best defense may be an offense - getting them to responsibly clean up after themselves will go a long way. When the crew cleaned up our house it was basic - dust, damp mop, wipe down and made a HUGE difference.

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And it might look sort of silly but can you pin your hair up on your head & cover all with a kerchief or some such type of thing? That way none will get it your hair & then cause you grief.

:lol: Great minds again, dearie! Are you reading my mind somehow? :unsure: you are, aren't you?.... Scary woman!

I had emailed her earlier with this same thought. I know EatMeat has pretty hair down right down to her butt!! I suggested a mask from the drug store, but I also know if she gets even a whiff of gluten, she gets DH sores :( ....

We shall all keep our fingers crossed!!

Meatie, my friend....be VERY careful!! Maybe tell her majesty :) you cannot clean up after that kind of work?

Keep us posted, sweetie.

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Good point Squirming! I have long hair...and wear a braid...but hadn't thought of the dust that will get in my hair. I will put it up and wear a mask and a shower cap! How about that! I guess I won't be flirting with any construction workers Monday! Won't I be cute? hey! Maybe Captaincrab?

Captaincrab ...... soooo funny girl!laugh.giflaugh.giflaugh.giflaugh.giflaugh.gif

You know why I thought of covering the hair? Yup, me too, down past my derriere. And I was going to say shower cap but if it's hot where you are you could end up with steambath head or a hot head one --- or BOTH!laugh.giflaugh.gif

And I was thinking about a bandanna over your mouth & nose UNDERNEATH the mask. Double protection? Those masks don't always fit tight but the cloth you can pull tight. Might be uncomfortable but better than itching uncomfortable.

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:lol: Great minds again, dearie! Are you reading my mind somehow? :unsure: you are, aren't you?.... Scary woman!

I had emailed her earlier with this same thought. I know EatMeat has pretty hair down right down to her butt!! I suggested a mask from the drug store, but I also know if she gets even a whiff of gluten, she gets DH sores :( ....

We shall all keep our fingers crossed!!

Meatie, my friend....be VERY careful!! Maybe tell her majesty :) you cannot clean up after that kind of work?

Keep us posted, sweetie.

ohmy.gifohmy.gifohmy.gif It is getting a bit scary isn't it? laugh.giflaugh.gif Nahhhhhhhh.

I've got everything I can think of to cross crossed for her.blink.gifIncluding my eyes.

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You know why I thought of covering the hair? Yup, me too, down past my derriere.

well, Meatie is about your size too. :unsure:

you two tiny but mighty girls!

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I've got everything I can think of to cross crossed for her.blink.gifIncluding my eyes.

My Ma used to screech, "don't do that! They get stuck that way."

No, they didn't.

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My Ma is used to screech, "don't do that! They get stuck that way."

No, they didn't.

laugh.giflaugh.giflaugh.gif I needed a laugh today. I'm so far behind it ain't even funny!

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I needed a laugh today. I'm so far behind it ain't even funny!

I live to serve. :lol:

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Oh you guys are the best! I appreciate your comments, information, and sense of humor...all of you. And Squirming...thank you so much for getting my joke about Captaincrab! I cringed after I posted it...but once it is sent...it is there forever. :rolleyes:

Ok, so I was awake and sleepless until 3 AM thinking about this issue. DH is so miserable that I just didn't know if I could do it. So then I overslept and was late to work!! OMG!! I was supposed to cover everything with dropcloths before they got started! I got there and luckily they hadn't started cutting. I braided my hair and put it up. I wore a dust mask all day. I ate outside. I only drank from a water bottle outside. The lady I work for is very understanding so she said I should stay out of the actual room they were working in. When they changed rooms so did I. The workmen were great! And one of them even flirted with me in spite of my face mask! haha! They cleaned up after themselves and were very careful to keep it contained. But the dust is in the air so we will see. They even cut the sheetrock outside and then brought it in for their patches.

I don't think I got any gluten...at least I don't think so yet. But the reaction can set in a few days later as Y'all know. Apparently they will be doing this all week. But I only have to work tomorrow and then I have 2 full days off. I don't wanna be sick those days off.

Yes, I weigh 100 pounds right now so I cannot afford to lose any more weight in a glutening. When I started this whole thing by finding you guys here on Celiac.com I was a very fat depressed and anxious woman. In the last year an a half I am entirely transformed. From almost 200 lbs to 100 pounds. I don't really believe it myself. Sometimes I think I'm starting to look like a "Celiac" but I'm not really worried about the weight because I have good muscle tone and my energy is fantastic. I think Paleo made all the difference in the world for my recovery.

Thanks all of you for your support. I will wear a bandana over my mouth tomorrow because the dust mask is kinda loose ya know. Thanks for that tip.

If I survive tomorrow without getting glutened then I am going to go out to eat for my Birthday. I have only eaten out once in the last year because I was determined to heal my DH. I'm eating a big fat steak at the Outback and I can hear the calling of a Chocolate Thunder from Down Under to celebrate being 49 and just starting to live my life and feel really good for the first time in 10 years.

Thanks for everything...You guys are my family.

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I cringed after I posted it...but once it is sent...it is there forever. :rolleyes:

Thanks for everything...You guys are my family.

Not really, some of us know how to push magic buttons. :lol: and you can always edit (up to 48 hours I think)

We are a special family here, sweetie. :wub:

Happy BIRTHDAY!! You're a phoenix. Remember what I told you, you saved your own life and your son's too. You're a Warrior princess, too-- and don't you ever forget it. ;)

xxoo IH

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Oh you guys are the best! I appreciate your comments, information, and sense of humor...all of you. And Squirming...thank you so much for getting my joke about Captaincrab! I cringed after I posted it...but once it is sent...it is there forever. :rolleyes:

Ok, so I was awake and sleepless until 3 AM thinking about this issue. DH is so miserable that I just didn't know if I could do it. So then I overslept and was late to work!! OMG!! I was supposed to cover everything with dropcloths before they got started! I got there and luckily they hadn't started cutting. I braided my hair and put it up. I wore a dust mask all day. I ate outside. I only drank from a water bottle outside. The lady I work for is very understanding so she said I should stay out of the actual room they were working in. When they changed rooms so did I. The workmen were great! And one of them even flirted with me in spite of my face mask! haha! They cleaned up after themselves and were very careful to keep it contained. But the dust is in the air so we will see. They even cut the sheetrock outside and then brought it in for their patches.

I don't think I got any gluten...at least I don't think so yet. But the reaction can set in a few days later as Y'all know. Apparently they will be doing this all week. But I only have to work tomorrow and then I have 2 full days off. I don't wanna be sick those days off.

Yes, I weigh 100 pounds right now so I cannot afford to lose any more weight in a glutening. When I started this whole thing by finding you guys here on Celiac.com I was a very fat depressed and anxious woman. In the last year an a half I am entirely transformed. From almost 200 lbs to 100 pounds. I don't really believe it myself. Sometimes I think I'm starting to look like a "Celiac" but I'm not really worried about the weight because I have good muscle tone and my energy is fantastic. I think Paleo made all the difference in the world for my recovery.

Thanks all of you for your support. I will wear a bandana over my mouth tomorrow because the dust mask is kinda loose ya know. Thanks for that tip.

If I survive tomorrow without getting glutened then I am going to go out to eat for my Birthday. I have only eaten out once in the last year because I was determined to heal my DH. I'm eating a big fat steak at the Outback and I can hear the calling of a Chocolate Thunder from Down Under to celebrate being 49 and just starting to live my life and feel really good for the first time in 10 years.

Thanks for everything...You guys are my family.

As to your second line about your joke.... No, you can always quickly go back & edit it! And if you don't think of that there's always IH to make the magic happen. (Pssstttt.... I think she likes to think she's a leprechaun laugh.giflaugh.gifwink.gif)

The drywall guys sound wonderful! I've been thinking about that for when we get our house built. Now with hubs having dh we are both hornswaggled for overseeing the drywall guys. But we shall figure it out & hopefully get as good a crew as you are dealing with. And if the protections you used work then we will employ the same.smile.gif

You are responsible for your transformation --- YOU! Don't ever forget that --- never ever!

Have a very happy birthday dinner & I hope you get so full you're about to pop but this time not from gluten but b/c you just plain ate too much.

We are all very fortunate to have found this site! I'm thanking my lucky stars for that.

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Please refresh me.....there is lot of information that passes by this road. ;)

Has there been supportive evidence that drywall contains gluten? I'm not sure? Who has gone down that road?

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    • They are awesome! But they are not available at Starbucks at some places--like hospitals. Pity!
    • Howdy, No stranger to forums as I've found them to be a great tool for my interests in motorcycles and old trucks but now find myself needing to educate myself in dealing with Celiac Disease. I'm a male in my fifties now and have had to deal with eczema since I was about six years old that was mostly contained to my feet and legs and outgrew it for the most part in my teens. I would have occasional flare ups but about three months ago my elbows and upper torso broke out in blisters and itched like no tomorrow. I hoped it would go away and used Cortisone for relief but finally made an appointment with the Dermatologist. As I'm sure most do, I began researching the internet since this outbreak seemed different than my eczema as a child, and wondered if DH was the culprit. When I showed the Doc and expressed my concern he said, "I have dozens come in that think they are Celiac and are not...but you, most likely are". He did two biopsy's, one for a local lab and the other he sent to the Mayo Clinic and a week later it was confirmed. At the time of the biopsy results I had been gluten-free for two weeks but to my surprise they told me to start eating gluten again as they wanted to do a upper GI scope and needed some lesions to biopsy. I took full advantage and formed a bucket list that ended with pancakes the night before the scope. Still waiting for those results that should come any day and started Dapsone the day after. They have me doing blood work weekly to start and I hope to be off that stuff within a year. My wife has been gluten-free for the better part of ten years as gluten and dairy just don't agree with her. This has been helpful to me since she knows what the good stuff is and we both do the weekly shopping together and so I've learned a lot already, I am somewhat concerned about hidden gluten though, so I still have much to learn. Looking forward to meeting other members of the forum.
    • My daughter was treated with antibiotics when first diagnosed with SIBO, but it came back and got worse over the year. Instead of xifaxin again (and because insurance wouldn't refer her back to the same doctor), I treated her with Atrantil, herbal antibiotics (oregano oil and garlic), plus diet low in fermentable carbs (SIBO specific diet) and she was WAY better than after xifaxin. FYI, it took two months of this treatment. When we finally got back to her GI (had to switch insurance providers), the doctor said we did a great job. She suggested staying lower in fermentable carbs, slowly increasing as tolerated, and when symptoms return or once a month do an herbal antibiotic. Apparently it has the tendency to be chronic in some people. So diet adjustments are important.  And for most folks, one course of antibiotics doesn't work   Just our experiences. But I was shocked at how bad the SIBO could be.  Here's good resource: http://www.siboinfo.com/
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