• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Question About Dermatitis Herpetiformis
0

12 posts in this topic

Is this a variation of it? For some time last year, I had the clustered, blistery bumps that started out as red patches on my outer elbow and arm. I assumed then that I was just having an allergic reaction to body wash I was using. It was also all over my stomach. Sorry they are so big.

Bend of elbow:

dermatitis1.jpg

Bend of knee:

dermatitis2.jpg

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Mine is redder and drier looking I think, for the most part. You didn't mention if it's itchy or burning, I think that's one of the symptoms that it has in common, even if it doesn't look exactly like some of the others do.

0

Share this post


Link to post
Share on other sites

I have a patch like that...kind of barely off-colored and rough? Doesn't itch much (comparatively speaking)?

I call it my warning patch for iodine. Always pops up after sushi. It's in the same place I had much worse but doesn't ever get big like the others.

For me, I judge it on how it acts. Does it react to gluten?

0

Share this post


Link to post
Share on other sites

It burned when it started, now it just itches. Constantly, actually.

0

Share this post


Link to post
Share on other sites

Well, DH does that. Have you noticed a reaction to gluten? What about high iodone foods or high salicylates?

If you aren't familiar with those, peruse the DH threads.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I had graham crackers about two hours ago and they are itching.

0

Share this post


Link to post
Share on other sites

Gluten graham crackers? Or gluten-free graham crackers?

Do you think you may have celiac disease? Do you have any GI issues? Do you have diabetes? Do you have any thyroid problems? Does any one in your family have any of these things? Does anyone in your family have any auto immune disorders?

0

Share this post


Link to post
Share on other sites




Gluten graham crackers? Or gluten-free graham crackers?

Do you think you may have celiac disease? Do you have any GI issues? Do you have diabetes? Do you have any thyroid problems? Does any one in your family have any of these things? Does anyone in your family have any auto immune disorders?

Gluten graham crackers. I think I might. Last week, I went to the ER because my upper abdomen felt like it was on fire. The ER doctor said I was constipated. Advised I take Miralax once per hour until I had a bowel movement. I continued to eat gluten foods and still felt the same. I have GERD, a hernia, asthma, iron-deficiency anemia. I am not sure about my thyroid. Never been tested. My mother has IBS and a first cousin has Crohn's, diabetes, and sickle-cell trait. I have had the above rashes for awhile.

0

Share this post


Link to post
Share on other sites

Well, with all that in your pocket I'd say it's a good chance you have celiac disease or are at the very least gluten intolerant.

So the question is, where do you want to go from here? Do you want to get an official dx? Because you will have to be actively consuming gluten for the tests & that includes the dh biopsy.

If you do a trial going gluten-free & then decide to get an official dx, it is more than possible that when you go back on gluten for the tests the gluten will hit you much harder than if you keep consuming it. And for the tests you're supposed to be eating something like the equivalent of 2 (or maybe 4) slices of bread per day for at least 2 months.

And for what I think of your rash --- the photos aren't great --- having said that; it could be dh or a "precursor" to dh IMHO --- the itching tells a tale.

0

Share this post


Link to post
Share on other sites




Well, with all that in your pocket I'd say it's a good chance you have celiac disease or are at the very least gluten intolerant.

So the question is, where do you want to go from here? Do you want to get an official dx? Because you will have to be actively consuming gluten for the tests & that includes the dh biopsy.

If you do a trial going gluten-free & then decide to get an official dx, it is more than possible that when you go back on gluten for the tests the gluten will hit you much harder than if you keep consuming it. And for the tests you're supposed to be eating something like the equivalent of 2 (or maybe 4) slices of bread per day for at least 2 months.

And for what I think of your rash --- the photos aren't great --- having said that; it could be dh or a "precursor" to dh IMHO --- the itching tells a tale.

I had the blood test on Friday and I am scheduled for an EGD and colonoscopy on Thursday. I do want the diagnosis. I haven't been eating much at all, so I am not sure it would be positive. I was eating whole wheat deli thins, whole wheat tortillas, whole wheat English muffins, Honey Nut Cheerios and Kashi Heart to Heart cereal, Sunchips, and multigrain chips a lot in the last two months, including when I got real sick at the beginning of this month.

0

Share this post


Link to post
Share on other sites

I had the blood test on Friday and I am scheduled for an EGD and colonoscopy on Thursday. I do want the diagnosis. I haven't been eating much at all, so I am not sure it would be positive. I was eating whole wheat deli thins, whole wheat tortillas, whole wheat English muffins, Honey Nut Cheerios and Kashi Heart to Heart cereal, Sunchips, and multigrain chips a lot in the last two months, including when I got real sick at the beginning of this month.

Excellent! You may have posted this elsewhere & I missed it. Been busy getting my hubs to go gluten-free --- yep --- dh rash.

Here's hoping you get a firm diagnosis. And be sure & get a copy of the test results & post them. There are those on the forum who can read those things real well. And we're a nosy bunch.laugh.gif

Ask any questions any time. some extremely knowledgeable people here.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,339
    • Total Posts
      935,565
  • Member Statistics

    • Total Members
      64,999
    • Most Online
      3,093

    Newest Member
    Con Smith
    Joined
  • Popular Now

  • Topics

  • Posts

    • It seems like you really need a concrete or near concrete answer so I would say maybe you ought to get the gene testing. Then you can decide on the gluten challenge.   Thanks! I am convinced our dogs are there waiting for us. Meanwhile they are playing, running, laughing, barking & chasing. I have another favorite quote dealing with dogs: "If a dog will not come to you after having looked you in the face, you should go home & examine your conscience."  ~~~ Woodrow Wilson ~~~
    • I can't help thinking that all of this would be so much easier if the doctor I went to 10 years ago would have done testing for celiac, rather than tell me I probably should avoid gluten. He was looking to sell allergy shots and hormone treatment, he had nothing to gain from me being diagnosed celiac. I've been messing around ever since, sort-of-most-of the time being gluten free but never being strict about it. I really feel like three months of eating gluten would do my body a lot of permanent damage. I've got elevated liver enzymes for the third time since 2008 and no cause can be found which might be good, I guess. I wonder if it would be reasonable to do the HLA testing first, to decide if I really need to do the gluten challenge. If the biopsy is negative, that is. Squirmingitch, love your tag line about dogs in heaven. We lost the best dog ever last December. I sure hope all my dogs are there waiting for me!
    • Most (90%-95%) patients with celiac disease have 1 or 2 copies of HLA-DQ2 haplotype (see below), while the remainder have HLA-DQ8 haplotype. Rare exceptions to these associations have been occasionally seen. In 1 study of celiac disease, only 0.7% of patients with celiac disease lacked the HLA alleles mentioned above. Results are reported as permissive, nonpermissive, or equivocal gene pairs. From: http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/88906  
    • This is not quite as cut & dried as it sounds. Although rare, there are diagnosed celiacs who do not have either of those genes. Ravenwoodglass, who posted above, is one of those people. I think she has double DQ9 genes? Am I right Raven?  My point is, that getting the gene testing is not an absolute determination either way.
    • Why yes it is! jmg and myself are NCIS, I mean NCGS specialist/experts or is it NCGI people ourselves. posterboy,
  • Upcoming Events