• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Mnicole1981

Question About Dermatitis Herpetiformis

Rate this topic

Recommended Posts

Is this a variation of it? For some time last year, I had the clustered, blistery bumps that started out as red patches on my outer elbow and arm. I assumed then that I was just having an allergic reaction to body wash I was using. It was also all over my stomach. Sorry they are so big.

Bend of elbow:

dermatitis1.jpg

Bend of knee:

dermatitis2.jpg

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Mine is redder and drier looking I think, for the most part. You didn't mention if it's itchy or burning, I think that's one of the symptoms that it has in common, even if it doesn't look exactly like some of the others do.

Share this post


Link to post
Share on other sites

I have a patch like that...kind of barely off-colored and rough? Doesn't itch much (comparatively speaking)?

I call it my warning patch for iodine. Always pops up after sushi. It's in the same place I had much worse but doesn't ever get big like the others.

For me, I judge it on how it acts. Does it react to gluten?

Share this post


Link to post
Share on other sites

Well, DH does that. Have you noticed a reaction to gluten? What about high iodone foods or high salicylates?

If you aren't familiar with those, peruse the DH threads.

Share this post


Link to post
Share on other sites
Ads by Google:


Gluten graham crackers? Or gluten-free graham crackers?

Do you think you may have celiac disease? Do you have any GI issues? Do you have diabetes? Do you have any thyroid problems? Does any one in your family have any of these things? Does anyone in your family have any auto immune disorders?

Share this post


Link to post
Share on other sites

Gluten graham crackers? Or gluten-free graham crackers?

Do you think you may have celiac disease? Do you have any GI issues? Do you have diabetes? Do you have any thyroid problems? Does any one in your family have any of these things? Does anyone in your family have any auto immune disorders?

Gluten graham crackers. I think I might. Last week, I went to the ER because my upper abdomen felt like it was on fire. The ER doctor said I was constipated. Advised I take Miralax once per hour until I had a bowel movement. I continued to eat gluten foods and still felt the same. I have GERD, a hernia, asthma, iron-deficiency anemia. I am not sure about my thyroid. Never been tested. My mother has IBS and a first cousin has Crohn's, diabetes, and sickle-cell trait. I have had the above rashes for awhile.

Share this post


Link to post
Share on other sites

Well, with all that in your pocket I'd say it's a good chance you have celiac disease or are at the very least gluten intolerant.

So the question is, where do you want to go from here? Do you want to get an official dx? Because you will have to be actively consuming gluten for the tests & that includes the dh biopsy.

If you do a trial going gluten-free & then decide to get an official dx, it is more than possible that when you go back on gluten for the tests the gluten will hit you much harder than if you keep consuming it. And for the tests you're supposed to be eating something like the equivalent of 2 (or maybe 4) slices of bread per day for at least 2 months.

And for what I think of your rash --- the photos aren't great --- having said that; it could be dh or a "precursor" to dh IMHO --- the itching tells a tale.

Share this post


Link to post
Share on other sites


Ads by Google:


Well, with all that in your pocket I'd say it's a good chance you have celiac disease or are at the very least gluten intolerant.

So the question is, where do you want to go from here? Do you want to get an official dx? Because you will have to be actively consuming gluten for the tests & that includes the dh biopsy.

If you do a trial going gluten-free & then decide to get an official dx, it is more than possible that when you go back on gluten for the tests the gluten will hit you much harder than if you keep consuming it. And for the tests you're supposed to be eating something like the equivalent of 2 (or maybe 4) slices of bread per day for at least 2 months.

And for what I think of your rash --- the photos aren't great --- having said that; it could be dh or a "precursor" to dh IMHO --- the itching tells a tale.

I had the blood test on Friday and I am scheduled for an EGD and colonoscopy on Thursday. I do want the diagnosis. I haven't been eating much at all, so I am not sure it would be positive. I was eating whole wheat deli thins, whole wheat tortillas, whole wheat English muffins, Honey Nut Cheerios and Kashi Heart to Heart cereal, Sunchips, and multigrain chips a lot in the last two months, including when I got real sick at the beginning of this month.

Share this post


Link to post
Share on other sites

I had the blood test on Friday and I am scheduled for an EGD and colonoscopy on Thursday. I do want the diagnosis. I haven't been eating much at all, so I am not sure it would be positive. I was eating whole wheat deli thins, whole wheat tortillas, whole wheat English muffins, Honey Nut Cheerios and Kashi Heart to Heart cereal, Sunchips, and multigrain chips a lot in the last two months, including when I got real sick at the beginning of this month.

Excellent! You may have posted this elsewhere & I missed it. Been busy getting my hubs to go gluten-free --- yep --- dh rash.

Here's hoping you get a firm diagnosis. And be sure & get a copy of the test results & post them. There are those on the forum who can read those things real well. And we're a nosy bunch.laugh.gif

Ask any questions any time. some extremely knowledgeable people here.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,910
    • Total Posts
      943,451
  • Member Statistics

    • Total Members
      67,044
    • Most Online
      3,093

    Newest Member
    kdp
    Joined
  • Popular Now

  • Topics

  • Posts

    • https://www.twinings.co.uk/hot-chocolate-coffee-other-drinks/hot-chocolate-and-malt-drinks/twinings-swiss-chocolate-drink Have discovered this drink - it's great, labelled gluten free and is also fortified.   I can't drink too much milk as I get bloated, but find it tastes really nice even made mostly with hot water and just a small amount of milk.  Thank you Twinings.
    • Ennis_TX, thank you for your response! I will take heed of all your nutritional pieces of advice, one by one. And yes, I am aware that a gluten marathon is on the horizon soon.   Before doing the test, however, I shall try to fortify my diet with the nutrients you mentioned, and report back in a week or two.   I think adding some iron supplement is wise too.    
    • Yeah I thought that rant might make me look like a queer after reading it a bit later.....I am straight btw I just have very long and fine hair...that yeah it blows everywhere and gets in my mouth sometimes, and always pushing it with my hands or having to tie it up.  I blew up because it sometimes feels like I am talking to a bunch jocks with buzz cuts when it comes to hair....like people that do not understand no matter what you do....it is going to end up in your mouth and you have to keep messing it and working with it when the stuff runs like 4-6" past your shoulders.
      >.< thing is some times with the way your hair is.....you do not rinse it all out...some conditioners I have used in the past used to b ones you would not rinse all the way out....it sort of does become a issue that is very easily avoided. There are many more options for gluten free shampoos now days and many companies have taken the allergy/gluten concern to heart and removed them/used alternatives to boost sales to a larger demographic. Point is while yes I did blow up about it...and honestly in many cases the "hydrolyzed wheat protein" thing is a hit and miss on if it really contained gluten, but better safe then sorry is my bet and with tons of options....why chance it?


       
    • B-vitamins...most gluten and processed foods are enriched...your basically eating a multivitamin every time you have a slice of bread etc. Look for a full spectrum B-vitamin supplement, others can be magnesium, iron, vitamin d, folate, etc. You mention plenty of greens and fruit so ruling out vitamin A,C,K, and a few others. Hmm did you drop off your carbs too much? If your carb dependent you need more complex carbs from like sweet potatoes, rice etc. And what about fat and protein? I am a keto dieter, my body burns fat instead of carbs for energy so I can say it is quite important to have plenty of fats and protein in your diet. Try snacking on nuts/seeds between meals or making up a protein shake with almond butter in it between meals (again going but what you said you eat vs what you might be missing)

      I use Liquid Health for my spectrum B vitamins and vitamin D. Might look into them, being in liquid form you can just add it to a beverage. Might see about magnesium also, huge issue with many with this disease.

      On other after thought, your probably already very aware of...but you mention your not "diagnosed yet" you will have to do a gluten challenge of eating gluten for a extended amount of time daily prior to getting tested. http://www.cureceliacdisease.org/screening/
    • Thanks guys! I have an endoscopy/colonoscopy  feb 5th, so we will see. I have had digestive issues for the past like 10 years. GERD, migraines, lactose intolerant, dizziness on and off starting last year. My test just always show chronic inflammation, I thought they tested for celiac last time but it was only H. pylori samples. As much as I don’t want to have celiac I’m hoping this could be the root of my problem! My doctor said I should probably go gluten free after the test regardless of the results. You guys have been so helpful!! 
  • Upcoming Events