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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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dkelley

Non-Celiac Gluten Free Withdrawals?

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My 12 Year-Old son was diagnosed with Celiac disease In February of this year. After having the rest of the family tested and receiving negative results we (wife, daughter and myself) decided to have the entire family go gluten free in support of our son. We felt that it would be easier for him if we had a gluten free house and chose gluten free friendly restaurants while dining out. For the 1st 2 months or so things went well for all of us.

The issue is that in the last 2-3 weeks I have not felt well at all. Whenever I eat no matter how much or how little I feel kind of sick within 15-30 minutes. The best way to describe it is that I feel hungry, but that type of hungry when you go too long with out eating. (Does that make any sense?) I can eat more, but I still feel the same way. Could this be a form of withdrawal from not eating gluten? I would have thought that I would feel bad right after the diet change not 2 months later. Does anyone else that has gone gluten free in support of a family member have similar experiences?

I apoligize if this is posted in the wrong section of the forum.

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Non-celiac people can still be gluten-sensitive and there are countless symptoms of gluten withdrawal. Everyone is unique so what you describe could be a withdrawal symptom. Your post however reminded me of something I went through when I changed my diet.

When I first went gluten-free, I still ate a ton of gluten-free carbs, such as quinoa pasta, rice bread, rice pasta, certified gluten-free oats (with honey), steamed rice. I would be hungry soon shortly thereafter. Eventually, I read up on refined carbs and how they can digest too rapidly and spike blood glucose levels. Insulin then spikes to bring down blood glucose levels but sometimes it overshoots and brings blood glucose down too much too fast. Low blood sugar can make you hungry quickly, sometimes sleepy, etc. I subsequently switched to a paleo diet (lean meat, fish, vegetables, some fruit, some nuts, no grains, no dairy) and found it to be much more satisfying, less in between meal hunger, no post-meal distress, although I do snack quite a bit on carrots, celery, cukes, etc.

Long story short, you might consider tracking your refined carb intake relative to the sensation you are experiencing. Good luck.

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Non-celiac people can still be gluten-sensitive and there are countless symptoms of gluten withdrawal. Everyone is unique so what you describe could be a withdrawal symptom. Your post however reminded me of something I went through when I changed my diet.

When I first went gluten-free, I still ate a ton of gluten-free carbs, such as quinoa pasta, rice bread, rice pasta, certified gluten-free oats (with honey), steamed rice. I would be hungry soon shortly thereafter. Eventually, I read up on refined carbs and how they can digest too rapidly and spike blood glucose levels. Insulin then spikes to bring down blood glucose levels but sometimes it overshoots and brings blood glucose down too much too fast. Low blood sugar can make you hungry quickly, sometimes sleepy, etc. I subsequently switched to a paleo diet (lean meat, fish, vegetables, some fruit, some nuts, no grains, no dairy) and found it to be much more satisfying, less in between meal hunger, no post-meal distress, although I do snack quite a bit on carrots, celery, cukes, etc.

Long story short, you might consider tracking your refined carb intake relative to the sensation you are experiencing. Good luck.

TeknoLen

I think you are probably right. Funny thing is I knew all that. I guess my focus has been on not eating gluten, not so much what I am replacing the gluten with. A lot of the processed gluten free alternatives appear to be a healthy alternative. I do find myself grabbing more carb filled snacks then I would have before. I will try increasing my protein, vegetable and fruit intake and see how it works out.

Thank you for the feedback.

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