• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
seattlejoy

Help Me With My Initial Blood Tests Please!

Rate this topic

Recommended Posts

I'm 99% sure I have Celiacs but I need some confirmation help because I know it is easy to misread tests. You see, my new naturopath is out of town for a week and I kind of pressured the receptionist to fax me my bloodwork from my initial appointment a week ago because I didn't want to wait 2 weeks to find out if my anemia is better and how my thyroid is doing. I worked for years in a naturopathic practice as a medical assistant so I am familiar with basic test results.

I was shocked to see these high and positive numbers on the Celiac tests! I don't know much about Celiacs other than my research today and the obvious gluten-free diets that are connected to the disease. But now that I read about symptoms it describes me SO well.

Here are my results if anyone can help confirm.

Celiac Serology-

TT IgA- 129.6 H U/mL (>10.0 is positive)

Gliadin (Deamidated Peptide) IgA- 113.8 H Index (>30 mod to strong positive)

Gliadin IgG- 57.5 (>30 mod to strong positive)

Reticulin IGA antibody screen with reflex to titer= POSITIVE 1:40

Endomysial antibody screen with reflex to titer= POSITIVE 1:160

I also have low platelets, low vitamin D (I take 10,000IU a day!), low thyroid, low iron

Thank you for any interpretation/advice you can provide!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Well... I am no expert but those results look very positive. My ttg numbers were lower and the doc had no doubt it was celiac disease.

Share this post


Link to post
Share on other sites

Wow, you are celiac without any question. You could ask for a biopsy, but there isn't much point. Endomysial IgA and deamidated gliadin IgG are both better than 98% specific, and you are high positive on both tests. EVERYTHING is positive so there's really no question of lab error either.

Welcome to the gluten-free club. All the cool kids are here. B)

  • Upvote 1

Share this post


Link to post
Share on other sites

I'm 99% sure I have Celiacs but I need some confirmation help because I know it is easy to misread tests. You see, my new naturopath is out of town for a week and I kind of pressured the receptionist to fax me my bloodwork from my initial appointment a week ago because I didn't want to wait 2 weeks to find out if my anemia is better and how my thyroid is doing. I worked for years in a naturopathic practice as a medical assistant so I am familiar with basic test results.

I was shocked to see these high and positive numbers on the Celiac tests! I don't know much about Celiacs other than my research today and the obvious gluten-free diets that are connected to the disease. But now that I read about symptoms it describes me SO well.

Here are my results if anyone can help confirm.

Celiac Serology-

TT IgA- 129.6 H U/mL (>10.0 is positive)

Gliadin (Deamidated Peptide) IgA- 113.8 H Index (>30 mod to strong positive)

Gliadin IgG- 57.5 (>30 mod to strong positive)

Reticulin IGA antibody screen with reflex to titer= POSITIVE 1:40

Endomysial antibody screen with reflex to titer= POSITIVE 1:160

I also have low platelets, low vitamin D (I take 10,000IU a day!), low thyroid, low iron

Thank you for any interpretation/advice you can provide!

Ummm...not much to interpret here. Your results leave no doubt, you are quite positive for celiac.

Nutritional deficiencies like Vitamin D, Iron, protein, are very common with celiac. Hopefully as you start your gluten-free journey, you will heal well and not need to supplement so heavily.

Share this post


Link to post
Share on other sites

I'm 99% sure I have Celiacs but I need some confirmation help because I know it is easy to misread tests. You see, my new naturopath is out of town for a week and I kind of pressured the receptionist to fax me my bloodwork from my initial appointment a week ago because I didn't want to wait 2 weeks to find out if my anemia is better and how my thyroid is doing. I worked for years in a naturopathic practice as a medical assistant so I am familiar with basic test results.

I was shocked to see these high and positive numbers on the Celiac tests! I don't know much about Celiacs other than my research today and the obvious gluten-free diets that are connected to the disease. But now that I read about symptoms it describes me SO well.

Here are my results if anyone can help confirm.

Celiac Serology-

TT IgA- 129.6 H U/mL (>10.0 is positive)

Gliadin (Deamidated Peptide) IgA- 113.8 H Index (>30 mod to strong positive)

Gliadin IgG- 57.5 (>30 mod to strong positive)

Reticulin IGA antibody screen with reflex to titer= POSITIVE 1:40

Endomysial antibody screen with reflex to titer= POSITIVE 1:160

I also have low platelets, low vitamin D (I take 10,000IU a day!), low thyroid, low iron

Thank you for any interpretation/advice you can provide!

Whoa!! I have never seen such positive test results for Celiac! No doubt about it, you have Celiac. Are you going to have the biopsy? I would think the only reason to do one would be to see how much damage there is, definitely not for confirmation of Celiac. You got it! Welcome to the club! :)

Share this post


Link to post
Share on other sites
Ads by Google:


Thank you all! I feel so lucky to have found this out. If I'm going to have a disease, this is the one to have. 100% treated by food? Are you kidding me? No drugs, therapy, procedures, surgeries... Instead of always treating all these other ailments I have which are ALL Celiac symptoms, I can actually heal myself at home. Potentially heal all the ailments with one treatment. Incredible.

Since I haven't been able to talk to my doctor I have another question...

I have been gluten free since reading my results and I want to do a healing type of cleanse (I had gotten it last week before I even knew about having Celiacs). The cleanse is made up of bentonite clay, ph balancer and whole foods- fruits and veggies.

Should I be waiting to see if my doc wants additional tests before I start modifying my diet and healing my gut?

I'm not sure about the biopsy. I would like to know how advanced the disease is and how much damage I have. It does freak me out that I am that much closer to cancer and other diseases. Does the biopsy give you a number or something?

How long until I start to feel better?

I breastfeed and wonder how that goes along with this. I imagine I have been giving most of the nutrients I absorb to my baby.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,402
    • Total Posts
      941,093
  • Member Statistics

    • Total Members
      66,427
    • Most Online
      3,093

    Newest Member
    prat
    Joined
  • Popular Now

  • Topics

  • Posts

    • FOUND my sugar cookie recipe from way back when....THANK you for reminding me I also found a recipe for choclate sugar cookies, fudge balls, and even a sugar cookie cake recipe in my old binder I am wanting to make again. Here is my old recipe tell me if it works out Sugar Cookies
      75g Almond flour
      1/8 tsp salt
      1/8 tsp baking soda
      30g (2tbsp) maple or lakanto
      2tsp almond milk
      15g (1 1/2tbsp) coconut oil melted (nutiva Butter flavored)
      1 tsp vanilla
      few drops of almond extract helps bring it out
      And sugar topping/icing 1. Mix your liquid ingredient aside from the milk and oil, and heat slightly (this is so the oil will mix in later)
      2. In a separate bowl mix up your dry. Now combine yoru dry and you wet it is going to be a bit dry, now add in your oil and milk this will form d dough ball.
      3. Place your dough ball in a large gallon plastic bag an roll it out in the bag into a sheet (this makes it less messy)
      4. Cut open the bag and using a cookie cutter cut out the cookies, and place on a greased parchment paper, put this in the freezer for 20mins while you preheat your oven.
      5. Preheat your oven to 325F, when your dough is done chilling place it on a cookie sheet in the oven for 10-15mins til desired crispiness. LET cool at least 10 mins before attempting to remove from the sheet. then you can transfer to a cookie rack to cool and crisp up more. You can top these with a bit of sugar or sugar sub while they are cooling right out of the oven or wait to chill completely and decorate with icing.
    • Awol cast iron stomach - Thank you very much!
    • What a great community. She reaches out for help and you all help her get in touch with Hertzya. That is really touching great group the benefits to celiac after all are in the people😉 Good luck to both Hertzya and Sara's daughter sending thoughts it will all work out.
    • Hi, i am suffering from pain in lover left quadrant from 5 week i take appointment with Dr.and undergo USG an they found swelling in sigmoid colon and suggest antibiotics for 5 days after that i start feeling some good but once i restart my exercises than again i start feeling pain at same place pain disappear in morning when i wake up but it start remembering me that some thing is there in left side.  same time i observe my stool is  always soft and smelly
    • The first study linked above by knitty kitty is indeed legit!  Mexican Conacyt is like our National Science Foundation - a prestigious and heavily peer-reviewed federal funding source.  I react to corn and corn flour but not to tortillas and chips.  I wonder if the processing (which I think includes lyming) de-activates the protein?  I have used corn occasionally in cooking, and tend to treat it like a condiment, not a side, but this has me re-evaluating.     Edited comments:  Second study is in a questionable journal, one that has been widely noted recently to be a "pay to publish" Journal.  However there are still legitimate scientists who publish there. Regarding corn in the US: last summer we drove through Kansas and Iowa on a trip.  Wheat was everywhere!  Towns that were too small to have a gas station had a grain elevator.  Guess what was growing right next to wheat fields, grain processing plants, etc?  That's right - young corn plants.  I'm thinking all those grain storage places, farm equipment, even the soil, is completely saturated with wheat!  I don't know if it's a problem, I just know that my son said "oh my gosh mom you could never live here, there is what everywhere"
  • Upcoming Events