• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

My Doctor Has My Results
0

8 posts in this topic

But I have to wait for her call to tell me. Will update as soon as I get the info.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


She said that my lab work was normal.

Get copies of all your results. I've many times had things reported as "normal" that were low normal, or even abnormal in the books of other specialists. If they give you a hard time or delay because they "lose" your request, remind them that you are legally entitled to the information. Sometimes threatening legal action is necessary. :angry:

0

Share this post


Link to post
Share on other sites

Definitely get a copy of your labs. You want to verify which tests they did. Often you don't get exactly what you think you did!

And regardless of the lab tests, if gluten-free makes you feel better, then you have your answer. You don't need a dr to agree with that!

0

Share this post


Link to post
Share on other sites

I had scrambled Eggbeaters and a slice of regular toast and I felt awful after eating it. My arms feel like they are on fire.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I had scrambled Eggbeaters and a slice of regular toast and I felt awful after eating it. My arms feel like they are on fire.

Unless you are going in for more testing for celiac, you can eat gluten free. There is a physiologically separate condition called non celiac gluten sensitivity. People with this disorder have the same negative physical reaction to gluten, but often don't have positive antibodies or biopsies. This is because the molecular pathways that control NCGS activate different aspects of the immune system than celiac disease. Nonetheless, the only treatment is to be strictly gluten free, although the outlook is generally much more positive. Stop eating gluten, unless you are getting biopsies taken! I know whereof I speak, because I was just diagnosed by a celiac expert with NCGS.

0

Share this post


Link to post
Share on other sites

I have an endoscopy scheduled for Thursday morning. I had night sweats like crazy last night. If it is not Celiac, I really hope to find out soon.

0

Share this post


Link to post
Share on other sites




At least that is just a few more days! And you don't have to eat any gluten after Wednesday! :D sounds like you definitely are at least NCGI so regardless of the biopsy, ditch the gluten permanently!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,326
    • Total Posts
      935,508
  • Member Statistics

    • Total Members
      64,988
    • Most Online
      3,093

    Newest Member
    Sue Seguin
    Joined
  • Popular Now

  • Topics

  • Posts

    • Yeah I have 2 stationary pedal bikes. I use one on the desk sometimes while watching a show and work out my arms. I keep one under the desk and pedal on it for hours a day, really helps with my restless leg issues and stress (just gotta keep moving or I start feeling like a panic attack is coming on trapped by life like a rat in a cage. If you need to know were to find the ground cocoa nibs look up crio bru, they sell it as a coffee replacement for $23 for 1.5lbs they have different origin and different roast levels so you can get different flavored cocoa nibs I get several and mix them up.
    • Yeah the histamine thing hit home a bit for me, as it mentioned everyone has their upper limits on it...explains why green canned fresh tomatoes fine...overly ripe sweet ones....instant puking, and why I have to really limit anything the citric acid, lemon, lime, garlic, onion, etc to very small amounts. Sorta funny how that works. like everything has a invisible number and if they add up to above my limit I am puking Makes eating annoying sometimes lol.  OH bit of a thought, I RARELY make almond milk cause it leaves a almond paste behind that I only have one use for and if sales at the bakery are bad I am better off just buying the stuff at the store and drinking in moderation. ANYWAY I use the almond paste mixed with coconut flour, left over almond butter batches, xylitol, apple sauce, and a tsp of a extract of choice to make the almond butter mini muffins for my bakery. They are a bit of a product of recycled foods lol. Taste great, super moist, grain free, mostly sugar free, and I can eat them no problems...they also freeze for months.   Love making them with our pirate butter (butter rum), Cheese cake butter (dairy free cheese cake extract in the almond butter) or any of the others for that matter.  
    • Did you get any of your vitamin and mineral levels checked for deficiencies?  You don't have to be Celiac to develop deficiencies.   Peripheral neuropathy may be caused by deficiencies of B12, copper, vitamin E, B6, B1 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4208100/ Not dreaming can be caused by B6 deficiency. https://www.ncbi.nlm.nih.gov/pubmed/11883552 Tachycardia may be caused by deficiencies of B1, B12, vitamin C http://www.livestrong.com/article/503879-vitamin-deficiencies-racing-heart/ Ehlers Danlos can be helped by calcium, magnesium, vitamin C, and others https://www.ncbi.nlm.nih.gov/pubmed/15607555 And that funky color of your colon, melanomas coli, vitamin E deficiency https://www.researchgate.net/publication/22087649_Ceroid_enteropathy_and_vitamin_E_deficiency IMHO, doctors would rather treat the symptoms than cure the real problems. Hope this helps.
    • SSB <3.3 RLU <=20 (reference range) RNP <3.5 RLU <=20 Sm <3.3 RLU <=20 SSA Ro52 <2.3 RLU <=20 SSA Ro60 <4.9 RLU <=20 Scl 70 <1.2 RLU <=20 Jo 1 <2.2 RLU <=20 ds DNA Negative FANA Positive FANA Titer 1:640 FANA Pattern Homogeneous    
    • Absolutely nothing to apologise for Awol. I'm sorry for getting on my sugar hobby horse. In any case I'm a dreadful hypocrite, cutting out fruit juice but still indulging cravings for gluten-free cheesecakes and the like I wish I had some advice for you. Bone broth helped me, I think it can help leaky gut, maybe worth a try?  Dr Fasano's diet could be another option?
  • Upcoming Events