• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Testing For Hashimotos
0

5 posts in this topic

Recommended Posts

thleensd    25

In short, two questions: what tests should I ask my doctor to run to test for Hashi's? Is it possible to have "normal" TSH, T3, T4 and still have it?

Longer version if you have time to read: In 2005 I was diagnosed with chronic idiopathic urticaria (hives) and angioedema (swelling). I spent a hellish year on heavy antihistamines (don't remember much from that year!) I was able to taper off and the hives didn't come back except for a two or three strays. A couple times I'd get a hive on my eyelid, but only in the next couple of years.

Fast forward to Celiac Diagnosis 2009. Three years later I'm still very fatigued (a bit better, but not well enough to fuction independently). My body temp is often low, I'm underweight although I eat a lot. Most of the heavy anxiety I experienced just before dx has gone away with gluten-free, but I still have stray anxiety when I'm in need of food or during PMS. Tonight I had eaten and it's not that time hormonally when my eyelid started to itch pretty badly. It made me anxious (adrenaline) and I got up to look. I had a hive! Just one-like in years past (chronic urticaria tends to strike eyelids and lips most, and it's not an allergic reaction, but an autoimmune one). So, I'm a little freaked out because I don't want to go back to that issue.

I spent a lot of time researching chronic idiopathic urticaria in '05, but seven years is a long time in the current autoimmune world, so I thought I'd look it up again. Tonight when I looked, two of the first three hits said that many people with chronic urticaria have autoimmune thyroid issues. By many I mean 30-40%. That's pretty huge.

I'm currently on GAPS diet (grain free, etc), and have tested for food allergies (98-skin prick) and have none (although there seem to be a few foods I can't handle for other reasons. I'm fairly certain my eye hive wasn't a food or environmental allergy. If you've dealt with chronic hives you'll know what I mean. I've also started reading about histamine intolerance. Fascinating.

Thoughts? At least I hope to get my questions on Hashi's answered.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


nicolebeth    1

I don't know about Hashimoto's testing (just that my doc said I did NOT have autoimmune thyroiditis--however that was determined). But, I do know a bit about chronic hives. I had them (for the second time) from about October 2010 until October 2011. Ultimately, the only drugs that worked were a combination of zyrtec and a zantac each day. Going cold turkey off the zyrtec also caused hives (I had to make that change very gradual, stopping in December). I started seeing a homeopath in the winter of 2011. Finally, the correct remedy was found in fall 2011. I did this because allopathic medicine did NOTHING. It was a year of misery, I hear what you're saying. One theory I have is that I had a lot of ibuprofen after my third child was born (may 2010) and triggered something. I knew a few other women who also got random hives after having IV ibuprofen at the hospital (or just ibuprofen in general). My lip swelled when having advil in may 2011, and I haven't had any since. (Btw, the first bout with hives was in 2003, starting about eight months after my first child was born, and about four months after I was diagnosed with postpartum thyroiditis. I also saw the homeopath then. They definitely weren't as bad that time, lasting only five months or so and even disappearing completely in Florida--sun can do that, but not the bout I had last year.)

Allergy testing: blood tests were largely negative (some mild inconsequential allergies), and I couldn't do skin tests because I couldn't go off the antihistamines at all

Skin patch testing: nickel allergy, balsam of peru allergy (I eat foods containing those things, but don't wear anything with nickel, still don't eat raspberries or food dyes, and don't overdo citrus)

The celiac tests were NORMAL in November 2011. I had been gluten "lite", but not in the 30 days prior to the tests. Then, I was eating gluten every day. I tried gluten-free, sort of. Nothing really seemed to make a difference hives-wise. Some things made them obviously worse.

Anyway, I recommend skin patch testing (with a dermatologist who knows about this), and seeing a homeopath.

For other reasons (inability to lose weight despite exercise, gaining more around the middle), I'm trying gluten-free for real right now. It also occurred to me, after reading an article here, that my thyroid meds (levoxyl) are a higher dose than they should be for my weight. I guess I should be at 75mcg, but I'm at 100mcg. It's not a huge difference, but just one more thing that is a bit off. With the hives, I felt like I could do nothing--no exercise, anything I did with eating felt obsessive since it was obvious I still had the hives no matter what I did. There was a definite connection in the "literature" between gluten, hypothyroidism (of course, autoimmune hypothyroidism, which apparently I don't have), and chronic hives, but I wasn't seeing any difference and it was just too depressing.

Good luck!

Share this post


Link to post
Share on other sites
nicolebeth    1

They need to run an antibodies test for Hashimoto's. It is possible to have normal levels as the thyroid works in overdrive trying to overcome the attack.

http://labtestsonline.org/understanding/analytes/thyroid-antibodies/tab/test

Oh, that's interesting. I was negative for Test #2 on that list, but Test #1 was not run. Thanks for that information!

Share this post


Link to post
Share on other sites
beachbirdie    43

In short, two questions: what tests should I ask my doctor to run to test for Hashi's? Is it possible to have "normal" TSH, T3, T4 and still have it?

Thoughts? At least I hope to get my questions on Hashi's answered.

Yes, you can have normal TSH/T3/T4 and have Hashimoto's. Hashi's tests are anti-thyroid peroxidase (anti-TPO) and anti-thyroglubulin (TgAb). If they did not do both, they cannot diagnose Hashimoto's.

Which T3/T4 tests have they run? They should have done "free" T3 and "free" T4, totals don't tell you much.

And just how normal is your TSH? Have you gotten copies of your lab reports? If you post them here someone can take a look and give better help. Many doctors will tell you your TSH is normal, but they may be using a range that is far too wide for most people. If you are a high normal on TSH, you could be progressing to an ever higher number. And you could be miserable until the docs decide they are ready to treat you.

I don't know much about chronic urticaria, but my cursory reading indicates that thyroid treatment helps a LOT of people who have it.

There is always the possibility that there is more going on. Autoimmune people have very complicated issues!

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,921
    • Total Posts
      938,703
  • Member Statistics

    • Total Members
      65,850
    • Most Online
      3,093

    Newest Member
    rachellelnd@gmail.com
    Joined
  • Popular Now

  • Topics

  • Posts

    • Ah yes... dry beans. I am fortunate to live near a plant that only processes beans, pulses and rice (Western Rice Mills if you're on the west coast). I doubt that they test, but I would suspect that the biggest part of the risk with that type of food is in the plant where they pack them, as things like barley pearls and wheat berries are often sold as dried goods and would probably be done on the same lines. I would agree that dry beans could be problematic depending on source. 
    • No, Armour has always been gluten free.  The formulation changed a few years back and during the switch, there was a shortage.  That has long since resolved.  Forest Pharmaceuticals (manufacturer of Armour) was bought out by Activas in 2015.  They increased the price!  Now it is comparable to synthetic.   Imtried to find a good and reputable source about the history of thyroid replacement.  Here is one link -- the story is pretty accurate, but the site is trying to sell you stuff.   https://thyroidpharmacist.com/articles/the-history-of-natural-desiccated-thyroid-medications/  
    • If she is now at a public school, accommodations can be made for disabilities.  Here is a link that explains a 504 plan and an IEP, but you will have to investigate based on your state.   https://www.foodallergy.org/education-awareness/advocacy-resources/section-504-and-written-management-plans https://www.understood.org/en/school-learning/special-services/504-plan/the-difference-between-ieps-and-504-plans http://kidshealth.org/en/parents/504-plans.html https://www2.ed.gov/about/offices/list/ocr/504faq.html i am not very knowledgeable about this subject, so I encourage you to contact your school district for help.  Your doctor might be a good resource too.   You might consider homeschooling until she has been diagnosed and has received treatment.  The Department of Education can direct you to homeschooling resources.  There are lots of wonderful programs out there and you can get financial support.   I wish you all well!  
    • You make a good point about being neurotic. I'm slowly getting better. I guess time will tell. But thank you for the insight.   As far as roommates go, that's a good idea. I've definitely been thinking about that. But these guys are my best friends and the process of getting a new roommate this late in my schooling might be hard. Although, I will keep my eye out for the opportunity. 
    • Hello I understand what you are going thru. My son almost died from going 27 years without figuring out it was gluten and then corn causing all the illness. I brought him to Drs, none of them figured out gluten intolerance. Oh they told us he had everything else. Then as time went on, he found out he has issues with corn. Corn has identical genetic make-up as gluten.  Corn is sneaky and everywhere. Contact the manufactures, ask them if there is a chance of contamination or corn ingredient in their products. My son gets neurological problems when gluten/cornized. Anxiety, obsessive thoughts, can not think. He had to be taken out of school and homeschooled. He just found out the digestive enzymes he was taking contain an enzyme that is grown on barley. Enzymedic basic.  My suggestions for you are, seriously go find another place to live. You need your mind and health to continue school. If you don't and continue living where you are, school will suffer. In your spare time, find out all you can about gluten and what other foods act like gluten in the body. Like I said, corn has the same genetic make up as gluten, some people can not eat rice either. This is something that is doable, it is just becoming very aware of what goes in the mouth. Please find another place to live. You don't need to deal with those jerks, you have enough going on with school and health. There might be other people in your school that are celiac or gluten sensitive. Find them, post notes up, start a newsletter about gluten free lifestyle. I bet there are many people that would welcome that newsletter.  You don't need to do this alone!   You are the most important person in your life, you deserve to feel good and be respected! Stay away from those that don't respect you. Search out those that will.  Eating out is something that can be done, find those places that will work with you. Ask to have burgers or meat cooked on aluminum foil. Fresh veggies, fruits all gluten free. Again, research restaurants in your area willing to work with you. Even call the manager and talk to them. All the best to you!  Hang in there.   
  • Upcoming Events