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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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shrty331

Should We Get A Second Opinion?

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My six year old son was recently tested for celiacs. His gliadin deamidated IGA was >100. Gliadin deamidated IGG, (tTg) AB IGG, (tTg) AB IGA were negative. He was sent for an endoscopy and biopsy and the doctor said he saw mild scalloping. We were pretty sure we finally had an answer to why he was dropping growth curves, can't concentrate at school and has had constipation since he was a baby. But the gastro told me the other day the biopsy is negative so it's not celiacs and wants to keep him on miralax for the next three months and than meet with a nutritionist to go over what he is eating to see if he is eating enough calories and getting enough fiber... no mention of a possible gluten sensitivity or maybe if it could be celiacs but it was missed on the biopsy... when I tried to ask questions she really didn't answer anything... does anyone think it could still be celiacs? Or is there something else it could be that is causing the high antibodies? Should we take him to someone else???

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Yet another doctor who wants us half dead before they will diagnose.:angry: I would get a second opinion only because he would need precautions taken at school. The blood test he had that was a strong positive is the best celiac test we have to date. The scalloping is a sign of celiac and biopsies can miss damaged villi especially in children. After all testing do get him strictly gluten free. Sometimes a ped will give the diagnosis once they see how symptoms resolve on the diet, growth becomes normal and the child gets sick when they accidentaly get gluten. Now that your little one has shown positive on testing do be sure to get the rest of the family tested if you haven't already.

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We have had the other two tested by the pediatrician. The youngest was fine. My daughter (8 years old) had "positive A" listed for endomysial IGA. And the AB titer was 1:5. The other tests were all normal. She goes to the same gastro as my son on Thursday. I am guessing they will order an endoscopy/biopsy for her as well...

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Make sure Mom and Dad get tested also. You might want to give the whole house a gluten free trial after all testing is done. With little ones that is often the easiest way to go. Prevents one waving Oreos in the others faces and dancing. :D

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The husband and I have both been tested and both came back negative... we went to a gastro and she is sending us both for endoscopies in june. I have been eating low carb, so almost no gluten for over a year, so I wasn't surprised that mine was negative. Been eating as much low carb gluten as I can for the past month and will continue until the biopsy. Pretty sure I have it as I have hashis, hypoglycemia, UARS, fatigue... I will be going back to my low carb diet either way, but am hoping for a definite dx for the kids.

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If you test your stomach pH with easy to buy pH strips you will know whether it really is high pH (low stomach acid or a little stomach acid as your describe it) or low pH (really high stomach aid) that is causing the issue's. Once you know for sure you  will know who to go about correcting it. Supplementing with BetaineHCL is fairly harmless . . .unless you have an ulcer. And you will/would probably know it instantly if you take some BetaineHCL and it feels like someone is putting out a cigarette in the middle of your stomach.  It is acid burning your sore/ulcer. thankfully eating protein/food quickly neutralizes/raises stomach acid especially when taken with a glass of water. staying hydrated with a meal also helps improve digestion so be sure to take some water/drink like a tea or juice etc. for example if you want to the BetaineHCL to work properly. Milk has the opposite effect.  If you feel a burning milk can coat the lining of your stomach helping to erase/ease the effect of strong acid. And why people who eat hot **** five alarm peppers aka known as Hot heads keep milk close by if they need to dampen the fire in their stomachs from eating too many peppers. . . . and drinking water can aggravate this practice of eating the hottest peppers you can find. I hope this is helpful. I have rambled on long enough. be sure to read the sickboy user in the medhelp thread of how he helped his GERD/bile reflux. here is medhelp link for easy reference included in the "silent reflux" thread if you haven't read it yet. https://www.medhelp.org/posts/Gastroenterology/UNCONTROLLABLE-BILE-REFLUX-PLEASE-HELP/show/738242?page=1 he was suffering for 5 years and got better so don't lose hope. It can seem very daunting but people on this board do get better. we have used different methods but people do get better. again this is not medical advice just things that have helped me. good luck on your continued journey but it is not a long way back if you know the way. 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them (sufferer still suffering)   which are in any trouble, by the comfort wherewith we ourselves are comforted of God.” posterboy by the grace of God,    
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      http://udisglutenfree.com/product-category/pizza-crust/
      https://daiyafoods.com/
      http://iansnaturalfoods.com/products/gluten-free-cheesy-french-bread-pizza/
      https://www.geefree.com/collections/all/products/cheese-pizza-pocketshttps://cappellos.com/collections/pizza
      *^Grain Free Pizza crust to make your own with using eggs, coconut and arrowroot for a base crust blend. The Naked pizza crust is dairy free. Order frozen by the case and they ship them to you.
      https://realgoodfoods.com/productpage/
      *^Grain Free Pizza They use Dairy Cheese blended with chicken breast to form personal pizza crust. You can order them frozen and shipped to you. NEW PRODUCTS they do Enchiladas NOW
      https://www.califlourfoods.com/collections
      *^ This is the only one I buy, grain free, low carb crust, and the plant based one is great, NOTE these make a New york style flat crust, I use 15 min prebake before adding toppings to make them extra crispy
      http://glutenfreedelights.com/our-sandwiches/
      ^Gluten free hot pockets? YES they make them for when you need the old instant hotpocket, odd craving but I know they hit sometimes.
      CRUST MIXES Grain free
      https://www.simplemills.com/collections/all/products/almond-flour-pizza-crust-mix
      https://julianbakery.com/product/paleo-pizza-crust-mix-gluten-grain-free/
    • My MRI has been clear. They did a spinal tap back in May which was also good.  MS ruled out many times. All my symptoms match Gluten Ataxia, but I don't know for sure since I don't have a dx. However, I DO have Hashimotos so at least going Gluten Free is necessary for that. I go to my Rheumatologist on Jan. 30th, 2018. Can a Rheumatologist determine Gluten Ataxia? If so how long should I be back on Gluten for testing?  Thanks for the heads up on Free and Clear products. I will look into that.
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