• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

Moderated For First 10 Posts, Approved, Now Try To Post After 10
0

12 posts in this topic

I actually think I posted about 15 posts the first few days but only 10 showed up. I was looking to the forum to help me better learn more about Celiac and also help others with my experience with the disease, but it is hard to do it when my posts do not show up. I have not posted anything inappropriate. just wondered why some posts were removed and why I still need to be moderated!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I actually think I posted about 15 posts the first few days but only 10 showed up. I was looking to the forum to help me better learn more about Celiac and also help others with my experience with the disease, but it is hard to do it when my posts do not show up. I have not posted anything inappropriate. just wondered why some posts were removed and why I still need to be moderated!

You are good to go! I hope you took time to review the Board Rules, on your way to postdom.... B)

0

Share this post


Link to post
Share on other sites

I'm not sure what happened. Try to answer this and we will see if it works. Maybe the computer can't count?

0

Share this post


Link to post
Share on other sites

It still tells me my post will need approval even tho the post that started this thread did show up. Maybe I have posted some of the same material on differeent threads, but when you are dealing with a disease and people ask for your experiences with the disease, there will be a lot of reitions in your answers. The content will be similar maybe to some of my other posts but how can I relate what I have been thru if my posts are removed? just doesn't make sense to me. I came here for help, not rejection.

0

Share this post


Link to post
Share on other sites

Try again. Something funny was set on your account and I think it's fixed now. If not, we will have to go above my access to the system.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Try again. Something funny was set on your account and I think it's fixed now. If not, we will have to go above my access to the system.

I am too tired to try anything else tonight. I am an intelligent person who could add value to your forum if I was allwoed to do so.

0

Share this post


Link to post
Share on other sites

Looks like it worked?

0

Share this post


Link to post
Share on other sites

Please don't go away because of a system glitch! We're a very open, compassionate group of people. If you need information, advice, or just someone to listen, we're all here for you. Please don't stop posting--we want to hear your voice!

0

Share this post


Link to post
Share on other sites

Hi all. I'm newby. The blood test was negative but then I told Dr I'd stopped consuming wheat three weeks before the needle went in, so it apparently means nothing.

It's certainly celiacs. I had multiple symptoms of it until I stopped eating wheat and woah! Its a miracle. I'm not ill anymore and still improving.

Despite taking iron supps I'm near anaemic. Anyone know how long before my iron levels will get back up to somewhere near normal.

Mod. Let me start topics. I'm a good celiac! I AM!!!

0

Share this post


Link to post
Share on other sites

Hi all. I'm newby. The blood test was negative but then I told Dr I'd stopped consuming wheat three weeks before the needle went in, so it apparently means nothing.

It's certainly celiacs. I had multiple symptoms of it until I stopped eating wheat and woah! Its a miracle. I'm not ill anymore and still improving.

Despite taking iron supps I'm near anaemic. Anyone know how long before my iron levels will get back up to somewhere near normal.

Mod. Let me start topics. I'm a good celiac! I AM!!!

You can. Choose a category on the Home Page of the Forum, and click on new post. And welcome!

0

Share this post


Link to post
Share on other sites

You can. Choose a category on the Home Page of the Forum, and click on new post. And welcome!

Or maybe it's "Start New Topic" ?

0

Share this post


Link to post
Share on other sites

Or maybe it's "Start New Topic" ?

Yes :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,017
    • Total Posts
      933,819
  • Member Statistics

    • Total Members
      64,588
    • Most Online
      3,093

    Newest Member
    Donna Anderson
    Joined
  • Popular Now

  •  

  • Topics

  • Posts

    • This all makes me want to break out my ic maker and see if I can recall how to use it. Very inspirational!
    • Has he had a recent blood test for Celiac?  That would be where I would start. If it is still negative, I would look for other things, like a FODMAP issue.
    • My son (age 7, almost 8) has had GI issues for several years.  Almost 2 years ago (about a week after he turned 6), we had him tested for celiac and his blood test results were negative.  His test results were:  tTG IgA:  1; Immunoglobin A:  129.  I've read that false negative results do occur, but that typically it is an IgA deficiency that causes false negative tTg IgA results, and my son was not IgA deficient according to this blood test.  But his symptoms (some of which ebb and flow but which have been getting worse the last several months, include the following: --Complaints of tummy pain and nausea --Excess gas, bloating --Stools often look abnormal:  mucous in stool, often very bulky stools, gassy, explosive bowel movements, etc. --Extremely low BMI (He has always been below the 3rd percentile for weight, with height in the 50-75th percentile, but at his check-up in January (age 7.5), he fell off his height curve (weighed 42 pounds and measured 48.5 inches)  --Oral health issues:  He not infrequently complains of canker sores; At dentist visit a couple weeks ago, they discovered 4 cavities (This was the first time he allowed x-rays to be taken).   There may be some discoloration of his teeth as well, but I'm not 100% sure it the same kind of enamel defect I've read about.  I did not think to ask dentist about celiac at the time but I've since read about connections between oral health and celiac.  --weird blood test results:  I went back and looked at the blood tests that were taken 2 years ago, and it turns out some of the abnormal results can be linked to celiac.  For example:  Low cholesterol (Total Cholesterol was 114), which I read can be linked to malabsorption of fats caused by celiac; High Asbolute Eosinophils (result:  791; normal range is 15-600).  And Lo and behold, according to google, high eosinophils can be associated with celiac.  He also had low MPV results and high triglycerides.  Not sure what those mean.  Some of the abnormal results (like the eosinophils) are also linked to allergies (he has seasonal allergies), and to other auto-immune diseases -- we have a family history of ulcerative colitis so that is also a concern.  We tried a gluten fee diet for about a month several months ago, but I don't think it was ever 100% gluten free -- there were several times we were tripped up by school or after school snacks, and meals when traveling.  Prior to the time we tried the gluten-free diet, my son was not really complaining about his tummy troubles (they have ebbed and flowed --over the last several years, there have been period where sometimes 3-5 times a week he has bouts of nausea and pain, and months long periods with very few complaints).  At the time we tried a gluten-free diet, he was probably in one of the months long periods of feeling pretty good, few complaints.  My recollection is we dropped the gluten-free diet because we didn't see a big difference.   But my son recently told me he felt a little better on the gluten-free diet. I'm pretty sure the next step is to do the endoscopy/colonoscopy.  The GI doctor suggested this last year, given our family history of ulcerative colitis and unexplained symptoms, but we were hesitant to put him through this when, at the time, he was feeling pretty good.  But his symptoms have come roaring back the last several months, and at this point, we just want to find the answer.  We will plan to wait to restart a gluten-free diet until after the endoscopy.  So my questions: --Does anyone have experience with a false negative blood test result, particularly in children? --How bad is the endoscopy procedure?  What should we expect during the prep and after the procedure? --Any insight into what his symptoms mean?  
    • Once upon a time, bananas were thought by many doctors to possess tremendous healing properties. Bananas were used to help diabetics to use weight. Doctors told mothers to feed bananas to their infants starting at 4 weeks. And for a long time, the diet seemed to help people "recover" from celiac disease. Invented by Dr. Sidney Haas in 1924, the high-calorie, banana-based diet excluded starches, but included bananas, milk, cottage cheese, meat and vegetables. View the full article
    • You've opened up a great discussion here, peterfc.  Most illuminating.   I remember when I lived in Oz back in the 1980s there were three frozen custard outlets around Sydney.  I think, from memory, they only sold about three flavours - vanilla (plain), strawberry and chocolate.  But the ice cream was absolutely delicious.   I think ice cream made with a custard is a great way to enhance the nutritional value of the stuff - and possibly reduce the fat content to boot?  Brilliant.
  • Upcoming Events