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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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patz16

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I am 16 years old in the 11th grade and have been suffering for many years. I suffered with extreme fatigue to the point where I would sleep for 14 hours and still be tired, Severe depression and anxiety,joint pain (more than my 76 year old grandmother), decalcification of my teeth. About 2 years ago I lost 40 pounds in about a month or 2 and my mother was very worried. The hospital told us : nothing was wrong with me and other doctors said the same but one found H-Pilori and I was diagnosed with that. The thing is that even though I got past that infection, I was still sick and getting worse. About a month ago I couldn't eat without getting sick or having diarreha. My cousin is glueten sensitive so his mother told mine that I should follow that diet and I did. I got so much better - I became another person , much energy , feeling great , no more pain. I realize now that there is probably a 95% chance that I have celiac disease but I really don't want to get tested because I know that I would have to go on that horrid glueten diet again. What bothers me the most is that I could get a negative even if I go back on the diet. My question is Should I go back on the diet to get tested or just live my life this way? I dont think the pros outweigh the cons Please help, I would love to hear from others.

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I am 16 years old in the 11th grade and have been suffering for many years. I suffered with extreme fatigue to the point where I would sleep for 14 hours and still be tired, Severe depression and anxiety,joint pain (more than my 76 year old grandmother), decalcification of my teeth. About 2 years ago I lost 40 pounds in about a month or 2 and my mother was very worried. The hospital told us : nothing was wrong with me and other doctors said the same but one found H-Pilori and I was diagnosed with that. The thing is that even though I got past that infection, I was still sick and getting worse. About a month ago I couldn't eat without getting sick or having diarreha. My cousin is glueten sensitive so his mother told mine that I should follow that diet and I did. I got so much better - I became another person , much energy , feeling great , no more pain. I realize now that there is probably a 95% chance that I have celiac disease but I really don't want to get tested because I know that I would have to go on that horrid glueten diet again. What bothers me the most is that I could get a negative even if I go back on the diet. My question is Should I go back on the diet to get tested or just live my life this way? I dont think the pros outweigh the cons Please help, I would love to hear from others.

Hello and Welcome!

If you have a family history of Celiac and a positve response to the diet,it's likely you have Celiac Disease of a Gluten Sensitivity.

To be tested, it's recommended that a person consume gluten for three months to get the tested. Do you want to do that?

It's a personal choice. :) Not too much help, am I? :rolleyes:

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Hello and Welcome!

If you have a family history of Celiac and a positve response to the diet,it's likely you have Celiac Disease of a Gluten Sensitivity.

To be tested, it's recommended that a person consume gluten for three months to get the tested. Do you want to do that?

It's a personal choice. :) Not too much help, am I? :rolleyes:

I realize that it is. I plan to attend college in Fall 2013, but I am worried I wouldn't be accommodated as well if I don't have proof that I am indeed glueten intolerant. Will I be able to tell hospitals for instance that I know I am, or would I need to be tested for that?

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My Dvice is to find a doctor who is knowledgeable about celiac disease/NCGI (hard to do but worth it) and explain your symptoms, reaction going gluten-free, and family history.

I would ask for vitamin level tests - irons, b's, d, k, calciums, magnesium. If these are low it could support celiac disease. Ask for HLA testing, that could also support celiac disease.

Explain your concerns about school and ask for a dx. See what happens.

My ND has dx'ed me celiac based on alternative methods above, along with my raging rash. I couldn't be tested because of steroids (rash). Of course, going gluten-free was a shot in the dark anyway, but I couldn't challenge later because it was gluten and I'd be covered head to toe in my rash...

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If it were me, I would just call myself celiac and go with it. As for college....could be tricky...but, you may get a doc to dx you without the tests based on response to the diet and your history. Dr shop if you need to! I question whether college accomodations wud be worth it. I wouldn't trust a school cafeteria to cook me gluten-free meals without contaminating them!

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Are you going away to college and would you have to pay for a meal plan? This would be the only consideration I could think of for getting a diagnosis from a medical professional. I think you would be much more likely to be able to work a diagnosis out of a naturopath (ND) than an alleopathic (M.D.) doctor - they are a lot more rational about considering all the facts instead of just test results.

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I think I should mention that I am not from the mainland United States and am from the United States Virgin Islands. I don't even think we have those kind of doctors here.

Also I do wish to go away to college, but I am not sure if I will be able to.

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