• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does It Really Count?
0

7 posts in this topic

Recommended Posts

patz16    0

So my mother told me to ask this. We would like to know if I still need to go on a glueten diet for a whole month to get tested. I have been on a glueten free diet for only a month, and so we're wondering if I can still get tested like this since I have only not had glueten for a month. Would I only have to go on a glueten diet for 2 months or just one? Or would I have to do the full 3 months?

I think the reason we are hesistant to do the testing for a whole 3 months is because of how badly off a month ago, and because this is my junior year and I need to finish my community service hours, take the SAT , ACT and apply to colleges ect. I'd ike to hear from everyone else. What would you do in this situation?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


mushroom    1,205

The going back on gluten to be tested is a very personal decision which has been faced by many here. Is it really worth all the extra pain and the extra damage, undoing what good you have already done? Sometimes people will talk to their doctor and tell the doctor they are going to do a gluten challenge. And then have the doctor document the effects of eating gluten. You may not get the celiac diagnosis, but if you can get a doctor's note saying you must not eat gluten, that you are at the very least non-celiac gluten intolerant, that could be just as good as far as the college authorities are concerned. You would need to discuss this up front with any college you apply to and opt out of the meal plan, maybe find one that will give you a fridge and microwave in your room. Be up front about it, and if you have a letter from your doctor they may accommodate you. Get the doctor on your side in all this.

I personally would not do a challenge. But then I was a lot older than you when I figured it out and couldn't tolerate any more damage. But I don't believe that anyone should have to damage themselves to get a diagnosis. That's like saying if you haven't attempted suicide how can you be suicidal? :unsure:

  • Upvote 1

Share this post


Link to post
Share on other sites
mushroom    1,205

So my mother told me to ask this. We would like to know if I still need to go on a glueten diet for a whole month to get tested. I have been on a glueten free diet for only a month, and so we're wondering if I can still get tested like this since I have only not had glueten for a month. Would I only have to go on a glueten diet for 2 months or just one? Or would I have to do the full 3 months?

I think the reason we are hesistant to do the testing for a whole 3 months is because of how badly off a month ago, and because this is my junior year and I need to finish my community service hours, take the SAT , ACT and apply to colleges ect. I'd ike to hear from everyone else. What would you do in this situation?

Just noticed that I did not address your specific questions. Depending on your sensitivity and degree of damage it MIGHT still be possible to get a positive test - stranger things have happened - but it is not likely. If it had only been for a week I would say yes. The recommended time to be on a full gluten diet is two to three months, depending on who is talking, eating the equivalent of 3-4 slices of bread per day.. The longer you stay on it the more likely the test will be positive if you are in fact celiac. I do not believe just one month on gluten would make any difference since you have been gluten free for a full month. And yes, the things you have to do this summer are important.

Share this post


Link to post
Share on other sites
mushroom    1,205

I did a 2 week challenge after a month gluten free and it was enough for a positive test.

It can happen, there are no absolutes. You are one of the lucky ones. In fact you may not have even had to do the challenge. As I said to the OP, it is within the realm of possibility that she could get a positive test now.. It is more likely that she would not. And the time to redamage is individual to each person. The guidelines are to try to make sure that all those who do have celiac disease will test positive. :)

Share this post


Link to post
Share on other sites
Ads by Google:


Tread carefully.

If you have an uber- conservative and ill-informed doctor who thinks testing one month gluten-free is likely to be ACCURATE and wants to dx you this way then I suggest you find a new doctor.

You will, without a 2-3 month challenge, more than likely test negative. Then what will the "record" say? You're negative. Not "unknown". Negative. Because that doc is too ignorant to know the tests are inconclusive.

My advice - look for a doctor who will dx you as-is if yours won't. Then, if all else fails, try a challenge. You probably won't be able to do it if your symptoms are that severe. You'll still end up with the same dx - either Celiac or NCGI.

Share this post


Link to post
Share on other sites

After a very positive blood test, I was gluten free for about 2 weeks. After that, I tested negative. After a 3 month gluten trial (doctor suggested LONGER but I felt too yucky) I still tested negative. I stopped after that and went gluten free. My son has celiac (diagnosed by blood and endoscopy) and since I had all the classic symptoms (that disappeared when gluten-free), and a positive first blood test, that was all the information I needed. Doctor ended up diagnosing me with "gluten intolerance" since he didn't have "evidence" for Celiac. Whatever.

If you are going to do it, I would suggest doing it right (3-6 months, the longer you make it the better chance at an accurate test) and try in the summer or when you can afford to be ill frequently.

I agree, you doctor does not sound like he/she knows much about Celiac - find a new doctor too.

Cara in Boston

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,920
    • Total Posts
      938,696
  • Member Statistics

    • Total Members
      65,848
    • Most Online
      3,093

    Newest Member
    Ashdrye13
    Joined
  • Popular Now

  • Topics

  • Posts

    • My son is 5 and his symptoms are all behavioral and neurological. If he eats a few pretzels he will develop something called a stereotypy where his fingers become sort of stuck in distorted positions for days. If he eats gluten he also experiences auditory and visual hallucinations, insomnia, loss of balance and fine motor, periods of confusion (doesn't know where he is), dialated pupils, chronic post nasal drip, keratosis pilaris covering torso, extreme behavioral issues, constipation and bloating. We've been to 3 neurologists, 2 allergists, an endocrinologist, psychological, psychiatrist, dermatologist,  infectious disease specialist and soon will see a gastroenterologist. He's tested negative for celiac and doesn't have the gene which would indicate gluten as an issue for him. Despite these facts, we entirely removed gluten and dairy from his diet and he is a normal happy playful child again, living the life he should be living.  He's had a few instances of dietary mishaps at school which were difficult to recover from. We implemented the AIP diet which for us included no grains (no corn, rice or quinoa), no dairy, no legumes (especially soy), no eggs and limited nightshades. Basically, we have been eating only vegetables, fruits, meats and nuts. Nothing processed. It works. Now we are at the point of adding things back into his diet and it's going well. We've determined that he's sensitive to a particular baking mix brand called Simple Mills. So there are only two possibilities to this a) Simple Mills brand isn't as gluten free as it needs to be or b)my son is actually sensitive to baking soda.  I also think he might be dealing with intestinal permeability or "leaky gut". I've been reading about a protein called zonulin and I question whether that could be a potential biomarker in our case. Prayers for your daughter. If you think it's a dietary trigger then you are right and I encourage you to never give up. You will find an answer if you keep looking. I promise.  
    • Well.... it can be... the plastic lid on the lovely chicken salad you brought for lunch sticks, you pull too hard and it, and half your salad going flying all over the company computer?  
    • @cyclinglady I heard that there were problems with Armour Thyroid when it came to gluten a few years ago. I thought it was no longer safe? @MegamaniacI had forgot to put that in my original post that I have a lot of issues with anxiety as well. I've never actually been officially diagnosed with a type of depression/anxiety/etc, but I've had problems with that ever since I was pretty young (I think before puberty). I'm sorry to hear about your medical field experience. I've actively sought out doctors (and got lucky having a great primary dr) over the past few years since very few seem to know much about it. The fact that a doctor would laugh at a patient for anything is pretty infuriating. Sorry to hear that. I went to a gastro that barely listened to a word I was saying and only offered a short term "solution" so I never went back to him.
    • He left a voicemail (which I was really thankful for bc it is SO hard to get ahold of someone) and said the celiac panel came back positive and told me to start a gluten free diet and asked me to call him. He said he was going to set me up with a nutritionist. I will definitely check out the newbie page. I am in the navy and I'm pretty sure I get kicked out for this. The first grocery trip was pretty difficult for me. I almost cried thinking about how different my life will be. Thanks for the support everyone ! 
    • No I don't know what that is.  The school's been understanding but I just can't have her hurting the other kids were attacking the principal so I've decided to keep her home until she starts acting normal again.   She has not been officially diagnosed with celiacs we have an appointment soon.  She is allergic to gluten wheat and milk.  It seems like the gluten or the wheat affect her mood greatly. 
  • Upcoming Events