• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac And B-12
0

6 posts in this topic

Recommended Posts

kendick    0

My oncologist has told me that I am annemic and need B-12 in my system. He explained that B-12 will not be absorbed in my stomach so I don't get any B-12 in my bloodstream. He put me on shots. Once per week. He says probably for the rest of my life. Ive always been the low-metabilism type guy. Always tired, etc. Does anybody have experience with this? Will this help me to get my energy back that I lost years ago? He also told me that I've probably had celiac for many years. I'm 54 and havent felt great for a long, long time. So, I was just wondering if anybody out there has the same issues !!Thanks. This is my first time here. I was just diagnosted last month so Im still trying to figure everything out with this problem......

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Ziva    0

I am relatively new to Celiac and am trying to figure out what this all means for me also. I didn't know there was anything wrong with me until Dec. when a GI doc mentioned anemia during a routine colonoscopy at 50. As I have read more about Celiac, I can say I can identify with some symptoms and defiantly have some absorption issues resulting in anemia, Vit D and recently told of B12. On Wedn. I was put on weekly B12 shots for 24 weeks. I thought weekly seems a little different than what I heard others say, but I'm going to give it a try. My husband was put on the same amount but once a month. Different doctor than mine. From what I have read, it seems the shots are the best way to go because of the absorption issues with people with Celiac. I'm sure all people are different, but I had the impression that once off gluten and your intestines heal, your body would then absorb the nutrients and you wouldn't have to stay on the shots. As I said, I am new and learning as I go.

Good luck to you

Share this post


Link to post
Share on other sites
raea2002    1

I have gotten 2 B12 shots. I don't know if it is from them or from going gluten free that has helped me. I guess it could be a combo of both. I hope you can get your energy back because I know how miserable it is without it. Hang in there. I do know that it takes time.

Share this post


Link to post
Share on other sites

I'm taking "sublingual liquid B complex with B12". It will go into your blood stream from under your tongue, not through your stomache or intestines. I guess that would be the alternative to the shots, but I don't have medical insurance.

Share this post


Link to post
Share on other sites
mushroom    1,205

I initially took B12 shots once a month; I still take them every three months although now four years post gluten free. Some of us, it seems, do not fully recover our absorption ability, and while I am obviously getting some from my food I still have to supplement. Same with everything else :(

Share this post


Link to post
Share on other sites
Ads by Google:


kendick    0

I initially took B12 shots once a month; I still take them every three months although now four years post gluten free. Some of us, it seems, do not fully recover our absorption ability, and while I am obviously getting some from my food I still have to supplement. Same with everything else :(

Looks like Im not the only one with the problem. I am taking the shots once a week and was told by my oncologist that it will probably be a life long treatment.. Doesn't sound like much fun. But, as a cancer survivor, I know it could be alot worse. I'm just wondering how long before I start feeling better. Does it take a few weeks for the shots to take effect?? Thanks to everybody. I am learning as I go, for sure.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,906
    • Total Posts
      938,594
  • Member Statistics

    • Total Members
      65,822
    • Most Online
      3,093

    Newest Member
    blueides
    Joined
  • Popular Now

  • Topics

  • Posts

    • Not sure what you mean by "celiac growth spurt." How was the celiac diagnosis arrived at?  Based only on symptoms? Genetic testing? Endoscopy? Are you making sure that your daughter is strictly following a gluten free diet?
    • To me it sounded like he thought frying corn chips would contaminate the oil .     I never eat there.  I know a few years ago, the one by me was pretty Celiac friendly.  Maybe you had to have grilled wings?  They would get a clean bowl to toss them for Celiacs.  I don't know because I wasn't interested.  Maybe it depends on the store?  I would imagine one in Portland or Seattle or Denver , might be more aware than one in Omaha?  But even that depends.....
    • I would not eat there either for many reasons listed already. But what is wrong with yeast? *quote from op, not kareng 
    • Hi,  I just wanted to add some insight to my question on the test results.  I am 58 experiencing stress fractors to the foot without any extra activity.  I have osteoporosis and the thought process of the doctors is that I have another cause besides age for the osteoporosis.  The foot is not healing after 11 weeks in a boot.  Ortho sent me to Endo.  Endo did blood test.  Hormones normal and received the below results on Celiac.  I have had osteoarthritis since 21, Was diagnosised at 29 as being allergic to wheat, symptom was I lost my voice after having my first child.  Had my second at 32 and magic I could eat wheat again and not lose my voice.  Last year I was tested autoimmune because of lung issues; MAC and bronchiaestasis.  IGA was high then but no further testing.  I do not have digestion issues except lactose intolerant.  I do have low values on vitamin D. I do not go back to Endo until 2 weeks from now.  My sister is fighting her own issues which is pointing to autoimmune but drs. have figured her out yet.  My mom as MS and her mom died of ALS, Dad's side had Lupus.  Any thoughts?
    • I am sorry to hear you are having these problems with airborne particle sensitivity. My initial symptoms were neurological (extreme fatigue and visual migraines) and dermatological.  I had "eczema" from the base of my skull to my bra-line that itched and burned terribly.   I do not have Celiac disease but I do have gluten intolerance.  I have remained strictly gluten free for 6.5 years now (except for occ'l "glutenizing" by someone trying hard to be nice and feed me something they believe is gluten-free).  The first year I was gluten free I continued to have this rash in a smaller area but it would flare in the hairline.  We found gluten free oats in a product we used and cutting out oats almost completely alleviated my skin reaction.  My doctor informed me that the protein in oats is similar to other grains containing gluten so I may be reacting to it even though it is not actually gluten.   I now use only gluten free hair products as I have long hair and I figure that even though it is external hair blows in my face and I push it away or I may touch my hair to push it out of the way when eating or socializing.  Everyone is different as far as items they tolerate but I have had good results with Griffin Remedy (available online at their website), Aura Cacia (although they do use Cetryl Alcohol which I used to try to avoid for other reasons), and Avalon Organics Cucumber gluten-free shampoo and conditioner.  You probably already use gluten-free facial care products and lip glosses as you sound knowledgeable about Celiac and gluten-free issues. I don't buy any of my gluten free products from a store where they are shelved with the regular baking products.  (I would be OK with washing an item if it were plastic packaged but many are in cardboard so I personally feel the risk of contamination goes up).  I am blessed to be married to a man who is open minded and glad to see me feeling better so there is nothing with gluten in our home (in food products).  My diet is similar to the person who stated, "Solid advice" above.  Finally, if I am going out with friends I take food along with me except for a very few establishments where I am sure that I am safe.  I also bring a bottle of water or iced tea, and even a napkin, as some people preparing food may be touching something with gluten and then handling glasses for beverages or setting tables without being fully aware (as was mentioned above pertaining to the gluten-free oats).  I also found with the gluten-free diet fad that I have to be vigilant in asking about preparation in unknown venues (i.e. We were on a ski vacation and I was excited to see gluten-free items on the menu BUT the preparation area was not segregated, nor was the cookware.  I was able to explain my needs and accommodations were made.  Hopefully, the owner were more educated regarding the needs of people with gluten sensitivities vs. dietary preference and made some changes in their practices.) I hope you find the piece to your puzzle that works for you!    
  • Upcoming Events