• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac And B-12
0

6 posts in this topic

My oncologist has told me that I am annemic and need B-12 in my system. He explained that B-12 will not be absorbed in my stomach so I don't get any B-12 in my bloodstream. He put me on shots. Once per week. He says probably for the rest of my life. Ive always been the low-metabilism type guy. Always tired, etc. Does anybody have experience with this? Will this help me to get my energy back that I lost years ago? He also told me that I've probably had celiac for many years. I'm 54 and havent felt great for a long, long time. So, I was just wondering if anybody out there has the same issues !!Thanks. This is my first time here. I was just diagnosted last month so Im still trying to figure everything out with this problem......

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I am relatively new to Celiac and am trying to figure out what this all means for me also. I didn't know there was anything wrong with me until Dec. when a GI doc mentioned anemia during a routine colonoscopy at 50. As I have read more about Celiac, I can say I can identify with some symptoms and defiantly have some absorption issues resulting in anemia, Vit D and recently told of B12. On Wedn. I was put on weekly B12 shots for 24 weeks. I thought weekly seems a little different than what I heard others say, but I'm going to give it a try. My husband was put on the same amount but once a month. Different doctor than mine. From what I have read, it seems the shots are the best way to go because of the absorption issues with people with Celiac. I'm sure all people are different, but I had the impression that once off gluten and your intestines heal, your body would then absorb the nutrients and you wouldn't have to stay on the shots. As I said, I am new and learning as I go.

Good luck to you

0

Share this post


Link to post
Share on other sites

I have gotten 2 B12 shots. I don't know if it is from them or from going gluten free that has helped me. I guess it could be a combo of both. I hope you can get your energy back because I know how miserable it is without it. Hang in there. I do know that it takes time.

0

Share this post


Link to post
Share on other sites

I'm taking "sublingual liquid B complex with B12". It will go into your blood stream from under your tongue, not through your stomache or intestines. I guess that would be the alternative to the shots, but I don't have medical insurance.

0

Share this post


Link to post
Share on other sites

I initially took B12 shots once a month; I still take them every three months although now four years post gluten free. Some of us, it seems, do not fully recover our absorption ability, and while I am obviously getting some from my food I still have to supplement. Same with everything else :(

0

Share this post


Link to post
Share on other sites
Ads by Google:


I initially took B12 shots once a month; I still take them every three months although now four years post gluten free. Some of us, it seems, do not fully recover our absorption ability, and while I am obviously getting some from my food I still have to supplement. Same with everything else :(

Looks like Im not the only one with the problem. I am taking the shots once a week and was told by my oncologist that it will probably be a life long treatment.. Doesn't sound like much fun. But, as a cancer survivor, I know it could be alot worse. I'm just wondering how long before I start feeling better. Does it take a few weeks for the shots to take effect?? Thanks to everybody. I am learning as I go, for sure.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,783
    • Total Posts
      932,393
  • Member Statistics

    • Total Members
      64,259
    • Most Online
      3,093

    Newest Member
    BFerris
    Joined
  • Popular Now

  • Topics

  • Posts

    • Does he run a lot? On hard ground? My ferritin started at 74 and is now 20. My rbc count was normal but showed mild anemia after an 18 hour fast.   I initially also thought it might be due to malabsorption, and it may be, although my gut doesn't show a ton of damage. Coincidentally I started running around  all of this, with A 6 month break in between, and have also recently read that Runners Who log a lot of miles generally are pretty low on ferritin if they don't supplement.  I only do between 6-15 Miles per week.  I eAt a mixed green salad about 5 times a week, red meat a couple times a week, and then a lot of other high iron foods.  lamb stew is a tremendous source of iron, as well as mussels. I am a big fan of garden lights chocolate zucchini muffins as well each mini muffin contains 20% of the daily value.  I Like to eat Two for breakfast with my coffee.  if he stopped eating gluten about a month ago you might still be able to get the blood test done. I'm sure you have read by now that you need to be eating gluten to be tested.  antibody start falling Right away but for some people it takes a long time.   I'm not a doctor but I would think that if you have enough damage to mal absorb iron then it would take a lot longer than just 4 weeks for you to  fix that kind of damage And reabsorb it again.    did they order a total iron binding capacity?  and was the iron panel done while fasting? You don't really need to fast for a ferritin but serum Iron can easily be elevated With food.  Although symptoms vary depending on the individual I have read quite a bit online that When ferritin drops below 40 people can start getting symptomaTic.  so you are likely correct that his feeling better is related to his ferritin level increasing.  giving up gluten means giving up certain nutrients as well. So if he's already vegetarian he needs to really pay close attention to what nutrients he might be missing in his diet now if he's giving up whole grains.  
    • Thank you! I will look into it! 
    • You would honestly think that after you body goes nuts attacking your insides trying to kill the gluten after 2 days of food poisoning yourself with it the damn antibodies would show up in insane levels in your blood Life is not that easy though.
    • Some days I have 3 pieces of bread, other days I just can't handle more than 1.  I had to take a day of gluten rest after the first week.  I felt too aweful. Now I'm almost done with week 2 and I feel like I need another break.  Just so hard to do something to yourself that you know will hurt.  They just don't know how much and for how long.  There was a recent study that looked at gluten challenges in folks actually diagnosed with celiac and some took months to have elevated antibodies.   Just one day at a time.  I hope things go well for you. 
    • Thank you for replying. I think you are right- why take the chance of reinfecting myself with gluten exposure again when ive been trying so hard to rid it from my life?  I just read some interesting articles on Sjogrens Syndrome and gluten sensitivity and that they are related so that may answer one of my questions. Your symptoms took over a year to resolve?! Holy moly.. I fear that is going to be my issue too. Are you feeling better now?  
  • Upcoming Events