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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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Vitamin Panel Results-- Help Please!
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10 posts in this topic

I have been gluten free almost 3 months, I just had a vitamin panel done to check iron, folate, vitamin D, B12 and thyroid panel. She told me at my follow up today that I am only slightly low on iron and folate----I was NOT low 6 momths ago so she says this is not an absorption/celiac issue, but probably due to cutting all grains. She gave me a lab order to get a full anemia panel this week, and again in 2 months, gave me a Rx for iron and B complex for folate. But, I wanted to see what you experts though of my numbers and what supplements I should purchase!

So I come home and do my own research, and see that my D and B12 levels ARE low even if not on her "reference scale" of normal ranges.

Here are my results:

Folate: 5.2 (>5.9)

Iron: 56 (60-150)

B12: 357 (180-914)

Vitamin D: 36

Also, thyroid tested normal, the results:

T4: 6.9 (6.1-12.2)

T3 Uptake: 42 (32-48)

FTI: 7.4 (5.9-13.1)

TSH: 0.95 (0.34-5.60)

Thanks so much!

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The results can't be interpreted without the ranges.

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Does anyone have suggestions? Also, what form of B12 should I get? I have heard the methyl B12 is better absorbed and bioactive, I have heard to use sublingual.

Thanks!

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I'm not the most experienced at this, but I take NOW brand methyl B12 lozenges.

~Laura :)

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Get sublingual b12. As celiacs it is hard for us to absorb things before we heal so the sublingual allows it to be absorbed through the vessels under your tongue. There's a brand of vitamins that is completely gluten free that I use. I believe it's country farm. I'll look at them tomorrow and let you know for sure. :) good luck!

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You also need to be taking Vitamin D3 supplements. at least 1,000 iu/day.

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I already take 4000 units of D3 daily! :)

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I have struggled with my vit d for many years. I was at 9 when I started. Then hung around the teens for awhile. I even was on the prescription d of 50000 units twice a week. I started taking this d3 that is 10000 units and sublingual and I finally have a good vit d level. 10000 is the max daily dose. But the newest research is saying most people need to be taking more it improves brain function, sleep and even has ties to our heart function.

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I have my eye on some sublingual B12, the methyl version-- they have a few different varieties, 1mg, 5mg, etc- the one that is 5mg has 400mcg of folic acid which I am low on. The larger dosage one (brand is Source Naturals) is a combo of methyl and dibencozide B12 which are supposedly the bioactive forms. Is the 5mg too much, the directions say one daily. I would like a B complex which includes folate, the other B vitamins, and the methyl version of B12, but have not found that.

I am considering taking the liquid Floradix iron, I worry about the side effects of an iron tablet- anyone use this kind? It is supposedly much better absorbed, only downside is the price, as most liquids are pricy. My next choice was the RAW iron from Vitamin Code.

I already have my D3, I will up the amount for a couple months till my next labs. I ordered new probiotics, and am also looking to get some omegas in there.

Only other thing I see is controversial is L-Glutamine, and also digestive enzymes....are these necessary or beneficial for me at this point?

I really appreciate any advice, it can be difficult to get the correct amounts and I really want to feel better, I have ZERO energy right now and feel like a truck ran me down! :)

I am ready to take control, as my primary doc is not much help in this matter! I am seeking out a naturopath to work with on these vitamins and such!

Thanks!

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Digestive enzymes are indicated if you feel that your food is being poorly digested, loose poorly formed bowel movements, perhaps some gastric distress - bloating, gassiness. If none of this applies to you you probably don't need them.

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