• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Undiagnosed 20 Month Old On gluten-free Diet - Bowel Issues
0

Rate this topic

8 posts in this topic

Recommended Posts

OK so this is about my son's poop. Sorry if tmi but we all know it's a popular subject here...

I self diagnosed and have been gluten-free for about 3 years. Shortly after starting solids, we noticed my LO was having really awful, pale, stinky and grainy BM's. He was also pooping really frequently and got horrible bleeding rashes and sores on his butt. No matter how often we changed him. If we left him without his diaper on, we saw he'd poop every half hour or so.

The daycare he's in has a gluten-free option (food is catered). We signed him up and his poops and rashes got better immediately ( well, within a week or so).

He then transferred from the infant room, where he was fed in a high chair,to the toddler room where the kids sit side by side at the table to eat. Our little guy is a big eater and he'll steal food...

So over the past several months, since he switchedto the toddler room, he has started getting nasty poos again. Not as bad as before he went on the gluten-free diet but still pretty loose and very very foul smelling. He'll have 3 or 4 bm's a day. And sometimes his bum gets quite red.

We've asked the caregivers if it's possible he's grabbing the other kids' food and ingesting gluten. But they get all defensive and swear up and down that's impossible because they are always watching him(hmmmm yeah, right ).

Anyway - I'm looking for advice. If you were me would you suspect gluten is the likely culprit here? His bm's are clearly abnormal ( the caregivers make comments about them all the time). Or would you suspect something else? And if so what should I be on the lookout for?

He loves to eat and is growing like a weed (30 lbs at 20 mos) so this isn't stunting his growth. But he just isn't *right* if you know what i mean.

Any suggestions would be welcome.

Thx

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


He may be getting cross-contamination from the toys that other children have touched...or even from the table surface. Also, he may be experiencing additional food sensitivities. You might try eliminating dairy, soy, and oats to see if any of these foods are causing his problems. These are the common trouble foods for people with celiac, but he may have a food sensitivity that is uniquely his.

Share this post


Link to post
Share on other sites

Thanks for the input.

He doesn't eat oats but deffo he has dairy and soy. He never had issues with them before (when in the infant room at daycare) but anything's possible. Things do crop up over time. I'm just not sure if the catering company can accommodate such a restrictive diet. And daycare policy says I can't bring food in for him. Ugh. But I'll investigate what the catering co can do.

He does eat a lot of fruit (bananas, oranges, apples,strwaberries, etc. ) we were afraid those may have been contributing to his poop issues but a few weeks after cutting those way back we're still having the nasty poops.

*le sigh* who knew I'd spend so much time wishing for my son to have "normal" bm's ... lol

Share this post


Link to post
Share on other sites

My son has *never* had a normal bm. When he eats gluten, things are BAD, but *all* food causes problems for him.

If your son has a dietary need, either the daycare has to provide safe food or you will bring in what is safe for him. When it comes to a child's health, there should never be any agruments about their diets.

Share this post


Link to post
Share on other sites

Well after having him home with us over the long weekend, eating strictly gluten-free foods prepared by me, we were down to two normal looking and smelling bm's today. This has happened over other long weekends. But two day weekends don't seem to be enough time for him to get back to normal.

I guess he must b getting cc'd somehow. Friday he had 5 bm's. And they were huge and stinky.

Don't know how to get the daycare to take this seriously without a diagnosis. My gp won't take me seriously. So there's little hope daycare will.

Share this post


Link to post
Share on other sites
Ads by Google:


Not sure how seriously anyone takes these things without an official diag - or even a diag- I found out yesterday that my son was playing with playdoh at school! WTF!

Share this post


Link to post
Share on other sites

Not sure how seriously anyone takes these things without an official diag - or even a diag- I found out yesterday that my son was playing with playdoh at school! WTF!

My son can play with playdough and be just fine. Now if he would eat it, that is a different story.

Share this post


Link to post
Share on other sites


Ads by Google:


my son is just going through all the test at the moment and a very strict gluton, wheat, soya, dairy, eggs free diet and well im having similar problem that the school want even set up a meeting with us about his school dinners till they had letter from gp, gp want write letter as results from test aint back and this diet is just precaution given from consultants from hospital and gp has not recieved notes from this.so i have to take pack lunch in for him but they start moaning as he isnt getting all food groups as most of his lunch is fruit and veg any ideas wat i can give him

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,139
    • Total Posts
      939,873
  • Member Statistics

    • Total Members
      66,126
    • Most Online
      3,093

    Newest Member
    Sweetmary65
    Joined
  • Popular Now

  • Topics

  • Posts

    • I think she wants you to be strictly gluten free and heal.  Not give you things to patch up the damage you are causing by not getting your antibodies down and healing.   I am sure  she expected that you would take your diagnosis seriously and eat gluten-free.  4 months after your diagnosis, your antibodies would have gone down better.  But you weren't eating gluten free.  Eat gluten free. Take your supplements.  Read about the correct way to get your iron up - B12, vitamin C, don't take with calcium foods, etc  
    • Hello! I'm hoping to get some advice from y'all about iron IV infusions. First, some background: I was diagnosed with celiac disease at the beginning of June this year (2017).  I had labs done in March and my serum ferritin was 5 ng/mL. Hgb was 11.1, which isn't all that low, but is still flagged as below the normal range. I took 325 mg ferrous gluconate supplements daily for two months, and when my ferritin was rechecked, it was down to 4. The doctor ordered a celiac antibody panel and all of the levels were high. Confirmed with endoscopy at the end of May. A month later, I left for a 2-month study abroad program in France (aka the land of bread and pastries). After returning to the US at the beginning of August, I finally went gluten-free.  At the beginning of September, I returned to my University. Almost immediately, I realized I was really tired and was having a hard time making it through the day without a nap. I finally had a follow-up GI appointment around September 20th with the PA of the doctor who performed my endoscopy (not the same doctor from March). During the appointment, I asked her what we would do if my labs showed an iron-defiency. She told me that we would either do oral supplements or IV infusions, depending on whether or not she thought I'd absorb the supplements. When the lab results came in on the online patient portal, she made no comment on any of the iron-related results, just sent me a message that my antibody levels were still quite high, that I needed to keep up a strict gluten-free diet, and that we would recheck everything in six months. My ferritin was down to 3, Hgb was 10.3, iron saturation 6%, etc.  I was concerned about those results, so I called the PA's nurse and left a voicemail asking what the plan was for getting those levels up and got a portal message back from the PA saying that my hemoglobin was slightly low and will get better over time as I cut out all the gluten in my diet, but that I can start taking supplements if I want to speed up the process. I know that the Hgb still isn't that low, but it seems like the ferritin level is more serious. I went back for an appointment with the doctor who first found the iron-deficiency back in the spring and she seemed a lot more concerned. When I brought up IV iron therapy, she seemed to think it was a good idea. However, she's a primary care physician through my school's clinic, so she can't give me infusions. She called the PA with the intention of finding out whether or not she would change her mind about infusions, and had no luck. Interestingly, the PA's nurse informed her that they don't expect me to be able to absorb the supplements right away, and would consider IV infusions after I've been gluten-free for another six months.  I've done a bit of research on the IV infusions and it seems like I fit the criteria. Based on my antibody levels, I'm clearly not able to absorb iron any better than back in the spring, when the oral supplements did nothing for me. I understand that once my intestines heal more, I'll start being able to absorb iron better and should be able to boost my levels with oral supplements. However, I feel like I need a solution that will help me much sooner. I have a very demanding course load this semester and I'm constantly exhausted. I fall asleep doing homework at least twice a week. My grades are suffering, my mental health is suffering, and my relationships are being tested. I still don't have an explanation for why the PA doesn't think IV infusions are appropriate and I don't understand it. I really don't know what to do next because I'm afraid if I try to talk to the PA again, she'll get annoyed. I know that was super long, so for anyone still reading, thank you for bearing with me!! Now for the questions: 1. Do you think iron IV infusions in the near future would be a reasonable treatment for me? 2. Do you have any advice on how to make them happen? And if you have any other advice that's relevant to my situation, I'd love to hear it!   Thanks so much, Sofie
    • I can tell you that last week, I picked up and delivered 30 boxes of Costco pizza to a hungry marching band.  I lived!  Seriously, just wash your hands after handling.  Ennis is right.  Do not take a big sniff of the boxes in case there is any residual flour.  It took days for my van to air out and I did lay some old beach towels to protect my interior as normally, gluten is not allowed!  
    • I just found a nicer compilation of her work, much easier to understand. She also makes the connection between Sleep apnea, vit. D and the gut. Maybe you will enjoy it too:  https://www.vitamindwiki.com/Handout+on+Vitamin+D+(Hormone+D)+and+sleep+-+Gominak+2012 She mentions autoimmune diseases in general but not Celiacs. But I think it all connects and makes sense.  You are right, no matter how a post is, someone might read it. I did. 
    • i looooove nuts.com.  i've already ordered all my nuts, etc, for holiday baking from them.  if you order (i think it's 65 bucks) enough, you get free shipping.  the nuts are so pretty, not all busted up and stuff.  they send you a little sample with your order (this time it was goji berries) also, i got pepitas and sweet rice flour.  they have added alot of new products.  i highly recommend them
  • Upcoming Events