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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Symptoms Confusion
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2 posts in this topic

I am new to this forum.

I have been diagnosed with Celiac for 5 years after so many tests...I also have DH.

I am following my diet 100%

Two years ago I realized that I cannot tolerate milk and soy, so I cut all milk/soy products. I went to get tested and it came out negative. I stayed on my diet (Gluten/Milk/Soy)because I was scared to go back to milk and soy...I felt better for some time (7 months or so). Now, again I started getting reactions.

My symptoms now: (I had the same symptoms before I was diagnosed with Celiac but they were severe)

-Brain fog (Major symptom!!! I cannot concentrate while working... I forget everything and if I have a meeting I forget what is it for...)

-Mood Problem!! I just feel angry all the time and don't want to talk to anybody. I just want to be on my own. I also feel like nobody is understanding what I am going through and makes more upset...

-Breakout (Face & chest)

-Itching my thighs ( I start itching until it bleeds -Gross!- it also leaves marks)

-Bloating

-The roof of my mouth gets very soar.

-My period is a week or more late every month.

I have just started taking B-complex sup, Calcium sup, probiotics.

I am just confused with my symptoms...

I also want to go to some Dr who really knows about Celiac ... because most of the Drs I go to they just tell me follow your diet and you will feel better! They don't try to find out why I am still having those symptoms even though I am cutting so many foods...Please tell me if you know any Dr in the Area of New York or New Jersey.

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I am new to this forum.

I have been diagnosed with Celiac for 5 years after so many tests...I also have DH.

I am following my diet 100%

Two years ago I realized that I cannot tolerate milk and soy, so I cut all milk/soy products. I went to get tested and it came out negative. I stayed on my diet (Gluten/Milk/Soy)because I was scared to go back to milk and soy...I felt better for some time (7 months or so). Now, again I started getting reactions.

My symptoms now: (I had the same symptoms before I was diagnosed with Celiac but they were severe)

-Brain fog (Major symptom!!! I cannot concentrate while working... I forget everything and if I have a meeting I forget what is it for...)

-Mood Problem!! I just feel angry all the time and don't want to talk to anybody. I just want to be on my own. I also feel like nobody is understanding what I am going through and makes more upset...

-Breakout (Face & chest)

-Itching my thighs ( I start itching until it bleeds -Gross!- it also leaves marks)

-Bloating

-The roof of my mouth gets very soar.

-My period is a week or more late every month.

I have just started taking B-complex sup, Calcium sup, probiotics.

I am just confused with my symptoms...

I also want to go to some Dr who really knows about Celiac ... because most of the Drs I go to they just tell me follow your diet and you will feel better! They don't try to find out why I am still having those symptoms even though I am cutting so many foods...Please tell me if you know any Dr in the Area of New York or New Jersey.

It sounds like you might have another intolerance? Keep a log of everything you eat, along with any symptoms. Many food reactions are delayed, so a log lets you look back and see if there are patterns to the symptoms that match up with certain foods. There aren't any good tests to check for what's "getting" you. It's more a trial and error thing.

Best wishes and good luck!

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