• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

My Family
0

8 posts in this topic

I haven't been diagnosted just yet, but I have suggested to my mom that she and one of my little sisters get tested.

I have 3 sisters and the one that I am suggesting that she have tested has migraines to the point of vomiting and has recently been experiencing bloating after eating bread. Which is just crazy considering the fact that she is a fan of bread.

My mother is willing to have my sister tested but said not to worry about her. She has managed this long. My mother was told she had IBS about 8 years ago.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Mnicole - convincing family is tough. I've been trying to get my mom to get tested. She was diagnosed with IBS over 20 years ago, has MS and Fibromyalgia...tons and tons of symptoms but she hasn't agreed yet. Every time we talk I share the positive changes I'm finding and every so often I suggest she think about it. She's stubborn but the apple doesn't fall far from the tree so I'll keep trying! Focus on the positive with your mom. Maybe you can convince her.

0

Share this post


Link to post
Share on other sites

Oh my.. why do people accept all those other diagnosis like IBS, Fibro etc etc but not celiac/gluten intolerance? Such a mystery. There is a PHD thesis in this. Why are other diagnosis acceptable but another not? Pure psychology and perhaps some history, agricultural/economic PR.. I'm not sure exactly.

0

Share this post


Link to post
Share on other sites

Oh my.. why do people accept all those other diagnosis like IBS, Fibro etc etc but not celiac/gluten intolerance? Such a mystery. There is a PHD thesis in this. Why are other diagnosis acceptable but another not? Pure psychology and perhaps some history, agricultural/economic PR.. I'm not sure exactly.

I know for me, I am having a hard time coming to grips with it all. I accepted the IBS diagnosis without blinking because all I had was stomach issues. There were some days it was so bad that I felt like I used an entire package of tp and spent my day in the bathroom, and other times where I would go a week or more without any problem at all, some days I would have the OPPOSITE problem: Constipation.

But that was all. so I could accept it. I learned to deal with my tricky stomach and stopped being shy about public bathrooms. Its just the way life was. I barely even gave it much thought because no one told me to restrict my diet. I had my gall bladder removed, so I did watch the heavy, greasy stuff but otherwise the dr basically shrugged his shoulders and wiped his hands clean of me. And I trusted him.

Now, its more than GI stuff, its headaches, sinus infections, cramps, joint aches, chills, fever and irritibility. But still, I am having a hard time accepting celiac disease as a diagnosis only because its become so widespread in the last few years, I am afraid of accepting it in case its just the "new and cool" diagnosis. I am being told to restrict my diet...that means a lot of change for this bread lover...

Its all pscholigical. I WILL accept it and I WILL do what I need to but its so severe to me, its hard to just...come to grips with. I also am having a very hard time getting my parents and in laws to understand. My husband is awesome, he gets it, as do my kids, but everyone else looks at me like I am crazy and "buying in" to the newest and coolest diagnosis...

its hard.

0

Share this post


Link to post
Share on other sites

Oh my.. why do people accept all those other diagnosis like IBS, Fibro etc etc but not celiac/gluten intolerance? Such a mystery. There is a PHD thesis in this. Why are other diagnosis acceptable but another not? Pure psychology and perhaps some history, agricultural/economic PR.. I'm not sure exactly.

Easier to pop a pill than to change eating habits.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Easier to pop a pill than to change eating habits.

Yup, the "fix me" mind set.

0

Share this post


Link to post
Share on other sites

It took me over two years to convince my mom to get tested but she finally did, and guess what? She has celiac disease. I knew it all along, and I suspect that she knew too and didn't want to test until she was really ready to cope with the diagnosis. I, myself put off testing for almost a year after my youngest was diagnosed. I knew he had gotten it from me and I wasn't ready to give up my favorite foods just yet. Plus, I was so focused on him and his health that I didn't want it to be all about me (too).

My kids and I did a family tree to see how many of our blood relatives need to be tested, and the number was a staggering 56! (My mother has 12 brothers and sisters and they all have children). Out of those 56 only me, my two children, my mom, and my brother (negative!!) have been tested. All others have refused.

I remind them constantly on Facebook and our family website. I send articles and little tidbits about yummy gluten-free foods but it doesn't work. My cousin, who is more like a sister to me, just flat out refuses to test her kids. It's infuriates me because her youngest is sick a lot with celiac disease like symptoms and I worry about them. But what more can I do? I just get frustrated and then...let it go.

0

Share this post


Link to post
Share on other sites

My mother just showed me her vitiligo. Crazy that she will not get tested.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,062
    • Total Posts
      934,094
  • Member Statistics

    • Total Members
      64,653
    • Most Online
      3,093

    Newest Member
    sebastianany
    Joined
  • Popular Now

  •  

  • Topics

  • Posts

    • Hi Michelle and welcome I'm guessing you're like me and from the UK? Which means that sadly much of Tessa's list won't be accessible, but don't worry there's plenty to eat here too. I'll go ahead and reply as if your a Brit, if not ignore me Be careful not to scare yourself by doing this. There are a lot of sites that sensationalise or try to scare you into buying their products. You've found a good site here, make use of it, but don't be afraid to turn the web off if its all getting a bit much.  One site you should go to and join is Coeliacs UK. They will send you a book with all the brands you can trust and this will be worth its weight in gold. You can also access it online. Highly recommended.  As above. Go and have a great time. The diet can start on your return. One final thing. It can get overwhelming in the first few months and it's a massive shock, at times you will feel sad and maybe resentful, you will go through a bit of a grief process in other words, but it will get better as you learn the ropes and you will feel so much better once you're on the diet.  As you learn try to let others around you know so that they understand and you don't feel too isolated. Use this site too, there's lots of help and understanding available here Best of luck and enjoy Turkey!    
    • celiac disease typically screws up your whole autoimmune system. in my case, it took several years to identify all of the intolerances. there are different responses to different substances... you may have one or several of them depending on the substance. Mine include nausea, abdominal pain, lethargy, brain fog, cramping, muscle tightness (resulting in joint pain), muscle spasm, creepy crawly skin, skin dryness leading to lesions/ psoriasis, diarrhea, constipation, sudden weight gain/loss of 2-3 lbs per day.   the frustrating part is/was that the more I stayed away from gluten and other offenders, the better/stronger i felt but then i would discover another substance that had been hiding but now was brought to the forefront since the maybe-more-offending irritant was now gone. this went on for a couple years.  i now have a huge list of offenders and very few acceptable foods, but I keep reading and experimenting hoping for a more varied and healthier diet.   i refer to myself as a human test subject because essentially you have to try something in order to gauge its effect.
    • Enjoy your trip and worry about the diet until after you get back unless you are having severe symptoms.  Then follow Ennis' advice about gluten-free restaurant cards in various languages.  Lots of us have traveled successfully.  You just need to prepare a bit more.   In the meantime, savor your gluten-filled food until your endoscopy.  My advice (anemia was my only symptom)?  Do not over do it.  I pigged out.  By the end of seven weeks (I had lots of work issues that prevented an earlier endoscopy), my gut was hurting.  
    • Yes- her sister has actually been genetically tested through Prometheus labs about 5-6 years ago by a gastric when she was having lots of stomach issues. She had recently been diagnosed with the Hashimoto's and was having recurring bouts of constipation/diarrhea.  i think that is another reason why I kind of thought that my other daughters problems were not celiac. Their father and I do not have any known autoimmune so we should probably be tested at some point. 
    • I don't see any gluten   
  • Upcoming Events