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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Leg Pain And Negative Bloodwork
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2 posts in this topic

I have a question that's been nagging at me and I want to get opinions from people with some more experience.

My 4-year-old daughter is a very picky eater (often eating only the gluten options that are offered and the forced bite or two of protein and veggies) and has a history of fairly frequent leg pain, sometimes to the point that she "can't walk". She's quite the dramatic child, so it's hard to ferret out what's exaggeration vs. what's real. All-in-all, though, I do believe her.

Since my 10-year-old daughter was recently diagnosed with celiac via blood test (TTG>100) and I suspect myself, I had my other two girls tested, both of whom came back negative. Now that two of us are gluten-free, my 4-year-old has had less exposure to gluten than ever and I did notice that her leg pain has been pretty much been gone. Last night she was up with it again and she did have Kraft mac and cheese for dinner, but there is not a definite connection between the pain and the gluten ingestion. She's eaten regular pizza with no pain.

Does this sound like it could be gluten even though the blood results were negative? I don't want to get her the biopsy - too risky at too young of an age, but it's hard for me to justify going completely gluten-free just yet with no actual reason to do so. Or is there? I'd like to hear people's experiences with leg pain.

Thanks!

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It could be gluten. Could also be growing pains. It's quite common at her age and if I recall correctly it tends to peak at night. It might be worth keeping a food and symptom log and see if you can correlate the pain to gluten consumption.

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