This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
Subscribe to FREE Celiac.com email alerts
What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
Hi all- im so sorry you are suffering from this gluten nightmare..... here's my story in a nutshell. Any friendly advice is much appreciated.
I am 41, female, healthy weight, ex smoker.. even quit alcohol 10 months ago because of AI disease. Been DX'd with 1) Sjogren's Syndrome and 2) Relapsing Polychondritis. For those that don't know, RP is an AI disease where the body destroys its cartilage. Its pretty aggressive and there is no cure. It is fatal for alot of ppl when the airways collapse. Ive had chronic inflammation for probably 10 years but it is getting progressively worse. It didn't dawn on me until a few weeks ago that gluten intolerance may be driving this. I am in between doctors. I have a new patient apt w/ a new internal med doc 06/28/17. Id planned to ask her then to please test me for celiacs. (going back onto gluten to test this makes me ill thinking about it) My brother and mother have it.
I feel good and have plenty of energy. I am a healthy weight. I run, I bike, I walk, I take an hour long aerobics class 3 days a week. I have NO digestive issues. My 10 page labs are green across the board, except for high inflammation. Ive started researching this issue. Ive had more injections in the neck and back and wrists than I can remember. Ive had ablations, exploratory surgeries, botox, trigger point injections.. even a level 2 cervical fusion due to high inflammation in the spine and OA destroying the discs.
I have reduced gluten as much as humanly possible. I quit drinking. I take a good quality probiotic and fish oil. My hormones are all good- I take sublinguals for those. My thyroid is perfect. My periods are perfect. My skin is clear. Ive stopped eating dairy, corn and soy. I pretty much currently live off big homemade green salads with olive oil, I make my own soap (which I use as shampoo) I make my own laundry detergent..I even started eating several fork fulls a day of fermented cabbage (ughh) because of the healthy benefits to the gut. Its only been a few weeks. Am I just impatient? What gives? My eyes, wrists and spine are absolutely on FIRE.
This is really tough.
There is still a lot of research needed in diagnosing (or dismissing) celiac disease. It shouldn't be months/years of misery and uncertainty. A couple of years ago Dr. Marsh (THE Dr. Marsh of the Marsh biopsy rating system) criticized the US celiac community for not recognizing an increase in IELs as early celiac disease. He asked if these doctors would like to be responsible for the oseoperosis or lymphoma of the undiagnosed patients.
I have also seen that it can take months for antibodies to rise. There was a paper (2015) that looked at gluten challenges in diagnosed celiac patients. These are folks with confirmed celiac and for some it took over 3 months for blood tests to show anything.
I hope the strict gluten-free diet works for you. I hope to hear you report back in a couple of months. I'm undergoing my gluten challenge right now. Week 2. It's just really tough.
My 13 and 7 year old have Celiac Disease and my 4 year old has the genes. I have a double dose of the genes so no matter what my children will get a gene that could develop into the disease. I hope that my youngest son doesn't ever develop the disease, but his dr said it could activate later in life. My kids are thriving, they have normal lives, they are smart and have gained knowledge about food that they can carry with them throughout their life. They really don't let anything stop them from living a normal life. I think you'll have the upper hand if you choose to have kids. You'll have the knowledge of what to do to keep them safe if they do have Celiac Disease. You'll be able to relate since you were young when you were diagnosed. How was it for you growing up?
My 7 year old son has this happen. I too get highly angry, like could flip a vehicle kind of angry. It's hard for the little ones to understand what is going on at the time, only knowing that they can't control themselves.... The glazed crazy look in his eye are always a tell. Sleep helps, along with lots of water the following day. The next day we talk about everything and try to figure out what could have glutened him. We've had talks with our school and teachers letting them know that our son is to not eat anything unless we bring it. I think the last time this happened to him was from using shared supplies after a treat party. Now he's very cautious of putting his hands to his lips or mouth.
Now as far as chips, my kids stick with Kettle Brand Chips. They are certified. Potatoes aren't my friend so I can't really say if they taste great.