• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

More Restaurants Refusing To Accommodate
0

35 posts in this topic

Recommended Posts

Juliebove    93

I have noticed the opposite here. More and more places are offering gluten-free things. Oddly enough my daugher has outgrown her gluten intolerance so she doesn't need those things! But it is good for other people.

I do agree with the poster who mentioned gluten-free as being a fad. I had some Energ-G bread that I wanted to give to a person who needed it. But the only other gluten-free person I knew of (aside from the owner of the local health food store and would not eat such bread) also outgrew her gluten...whatever...not sure if it was an allergy or intolerance.

This lady overheard me say this and said that her husband was trying to stick to a healthy diet so she would take the bread. I had a feeling that my trying to explain what gluten was and why her husband probably didn't need to avoid it would be lost on her. So I just gave her a loaf of each of the breads we had to try. They liked it so I gave her the rest of it.

I also have a feeling that they are hurting more financially than she might have let on so perhaps *any* bread I gave her would have been a help. Her husband is no longer able to work due to some medical issues.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


mushroom    1,205

Youe daughter is certainly one of the few and the lucky if she truly no longer has to eat gluten free. Long may it continue!

Share this post


Link to post
Share on other sites
sandsurfgirl    193

Today the restaurant that said on their website they can't accommodate food allergies did an awesome job for me. They couldn't give me any meat because all their meats are premarinated in soy sauce. Very weird for a Mexican restaurant. But they made me a nice HUGE platter of veggie fajitas and a side of rice and beans with guacamole. It tasted great. DS got a cheeseburger with no bun and a side of beans.

I thanked the manager for all her help and attention and she told me she made them clean the grill and prep it in a separate area.

Bucca Di Bepo had an gluten free menu. Not sure if they still do. Italian is scary because of the flour everywhere but I never got sick there and it's awesome. So I do think it's a matter of them knowing what they're doing and also caring to do it well.

Share this post


Link to post
Share on other sites
sandsurfgirl    193

I have noticed the opposite here. More and more places are offering gluten-free things. Oddly enough my daugher has outgrown her gluten intolerance so she doesn't need those things! But it is good for other people.

I would be very careful with that. That's pretty much unheard of. Allergies can be outgrown but this... not so much.

Here's a quote from another thread that I read tonight.

"If you were gluten free for any length of time, the antibodies could have died down.

It is one of the reasons they used to think children outgrew Celiac.

At some point they appeared to be able to eat gluten again.

But then they noticed that these kids are the ones who developed the secondary autoimmune diseases and cancers associated with Celiac.

Don't een know if you are Celiac or not, but that could happen. The antibodies go away when your body doesn't have to fight wheat anymore. Then it takes time to build them up when you do start eating wheat."

Celiac is a weird disease. It can go into remission and then come back with a vengeance. Because of the wide variety of symptoms you may not realize she's getting sick from gluten.

Anyone with "intolerance" can never rule out celiac because the testing is so unreliable. Intolerance is just as serious as celiac and there is a very good chance she does have celiac and the tests were a false negative.

I think it's tempting to say yay no more gluten free but it's a dangerous experiment. Be vigilant. Since she's eating gluten again, after a few months get her tested again. Might as well, at least the blood test.

Share this post


Link to post
Share on other sites
dani nero    49

I would be really interested in talking to the managers or whoever in charge of these decisions at few of the restaurants that do it consistently well. I'd like to find out why and how.

I find it's generally the better restaurants that do gluten-free well; upcoming chefs... If they use fresh ingredients it's very easy to do gluten-free (except bakeries). I find it's an attitude, a general feel to the place - pride in what they do and a passion for food perhaps that seems to be in common, at least on the surface?

I suspect the effort and training at a restaurant that does gluten-free well trains their employees well in general, and doing gluten-free is just easier.

Maybe when the restaurants are owned by a family or a food fanatic who take pride in offering really good food for everyone. It would be very a very interesting study :-)

Share this post


Link to post
Share on other sites
sandsurfgirl    193

Maybe when the restaurants are owned by a family or a food fanatic who take pride in offering really good food for everyone. It would be very a very interesting study :-)

It depends on the family. There is a family restaurant here that keeps their chicken recipe secret. Even the managers don't know what's in the seasoning package. I asked if they could contact the owner and just find out if it has gluten. We used to eat there all the time and it's up the street from us. The owner just kept blowing me off and not responding so I gave up.

Share this post


Link to post
Share on other sites
mushroom    1,205

Maybe when the restaurants are owned by a family or a food fanatic who take pride in offering really good food for everyone. It would be very a very interesting study :-)

I eat at a small lunch counter where the owner/chef is a celiac, and it is so wonderful to feel totally safe. :D

Share this post


Link to post
Share on other sites
bartfull    565

We have a beautiful, fairly new retirement home/assisted living facility in our town. They hold events and concerts that are open to the public. I went there yesterday because they had a Mother's Day buffet and a very talented harpist was playing. I did not intend to eat, but was happy to pay my twelve dollars just to hear the harpist.

I got up and LOOKED at the buffet, and there was a nice lady there who asked if she could help me. I explained about the Celiac and corn allergy. She promptly pointed out the things I could eat - the roast beef that had been cooked plain, the vegetables and salads, the potatoes ("but you can't have the gravy"). The only thing she wasn't aware of was the marshmallow topping on the sweet potatoes being made with corn. I explained to her that veggies are often washed in a citrus wash made with corn. She assured me that they used pure ice water to wash their veggies and nothing else.

So I took a chance. I had two slices of roast beef, some carrots (raw), some cukumbers (plain) and a small handful of grapes for dessert. It was so nice to be able to eat with my friends, and so far I have not had a reaction.

This is only the second time I have eaten out since last June. I feel triumphant! I don't mind bringing my own food or eating before I go, but how cool it was to relax and enjoy the music AND the food!

Share this post


Link to post
Share on other sites

We have a beautiful, fairly new retirement home/assisted living facility in our town. They hold events and concerts that are open to the public. I went there yesterday because they had a Mother's Day buffet and a very talented harpist was playing. I did not intend to eat, but was happy to pay my twelve dollars just to hear the harpist.

I got up and LOOKED at the buffet, and there was a nice lady there who asked if she could help me. I explained about the Celiac and corn allergy. She promptly pointed out the things I could eat - the roast beef that had been cooked plain, the vegetables and salads, the potatoes ("but you can't have the gravy"). The only thing she wasn't aware of was the marshmallow topping on the sweet potatoes being made with corn. I explained to her that veggies are often washed in a citrus wash made with corn. She assured me that they used pure ice water to wash their veggies and nothing else.

So I took a chance. I had two slices of roast beef, some carrots (raw), some cukumbers (plain) and a small handful of grapes for dessert. It was so nice to be able to eat with my friends, and so far I have not had a reaction.

This is only the second time I have eaten out since last June. I feel triumphant! I don't mind bringing my own food or eating before I go, but how cool it was to relax and enjoy the music AND the food!

Yay!

Share this post


Link to post
Share on other sites
KMMO320    6

I work in a teeny restaurant and I have to admit, it is VERY hard to accomodate food allergies. I bring my own food to work unless I feel like ordering a plain salad. For Celiacs, there really isnt anything I would reccomend. Our cooking surfaces are SO SMALL that in order to serve them safely, the cook would have to ONLY be cooking for that table. He wouldn't have room to grill a plain steak and regular food for another table..it would really bog down the whole kitchen..so unless we are really slow, there isnt much we can do, and I say that as someone who has this problem.

  • Upvote 1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,908
    • Total Posts
      938,620
  • Member Statistics

    • Total Members
      65,829
    • Most Online
      3,093

    Newest Member
    vi6609
    Joined
  • Popular Now

  • Topics

  • Posts

    • Your first post stated that it took you 7 days of continuously eating gluten to get symptoms. So maybe it's not related to gluten at the hospital at all? Maybe you picked up an illness from the hospital? if I hadn't read your first post I'd say that the hospital food probably glutened you. Imho they don't do a great job at following dietary restrictions. Which may have still happened, and your symptoms kicked in faster this time. fyi any gluten exposure, even a crumb, kicks in the autoimmune response for celiac.
    • Hospitals and the ER....will normally ignore your dietary requirements with celiac. If they gave you so called gluten-free food...it had gluten. You have to have your own brought in or ask for plain whole foods. I wear medical dog tags with emergency contact info, allergies, blood type, and medical info on them. And my emergency contacts have been told where I keep emergency room stashes...IE Julian Protein Bar, MRM meal shakes to take up there if I get stuck in the hospital.
    • Hello- I was DX Celiac 2 years ago.  Last week I had a terrible accident, broke ankle and had to be taken to emergency. I was pumped full of drugs mostly Versed and Fentanal  via IV. After the usual couple days of constipation following these sort of drugs I began having GLUTENED intestinal issues.  I've had non stop bathroom runs for 2 days now and everything about it feels like I've been seriously glutened.  I've done some research but found no conclusive answers.  Did any of those things stir up my Celiac disease and cause me to have an autoimmune response? Has anyone had any similar experiences they can share with me?  This is my first post.  Thank you
    • All the issues you said came up after going gluten-free. Three points
      1. Are you sure you eating gluten free? If you eat out good chance your getting CCed, and is everything your eating really gluten free? There are many that are iffy on the market now days and CC can get in on some of the oddest aspects like shampoo, make up, lotion, medication, sauces, spices. etc.
      2. Sounds like your have deficiency issues, what are you eating? Your supposed to eat a varied diet when gluten free, most gluten free processed foods are not enriched...most gluten food is essentially sprayed with vitamins. SO you need to eat a varied diet eating leafy greens meats, eggs, etc. I myself have other limitations and have to supplement what I would get from these. ALSO celiac makes it where you do not absorb all the nutrients from your food I have 2 suggestion of stuff you NEED to take. Liquid health Stress & Energy, Liquid Health Nurological Support, and Doctors Best Magnesium.... these will help with stress, muscle aches, and energy issues. NOW you might need some other things like D and a few others.
      3. Sugars can cause all kinds of issues I know the issues with the craving.....I can not avoid them myself. I use some sweeteners like erythrol, stevia, monk fruit, etc to avoid the real sugar and the chemical BS ones. I make grain free, dairy free, gluten free baked goods, nut butters and snacks and even make a living off of selling them......I have a focus on making everything super moist as I know that is a huge craving for those of us with this.  Try moving to a healthier option if you can spiking your insulin and glucose levels is going to raise all kinds of havoc and the excess sugars can lead to candida or sibo in your intestines.

      Oh and yeah if you think death is bad we had a member have to get a emergency colonstomy. They ignored it and ate gluten and kept on doing it.....yeah having to poop in a bag sounds worse then death or cancer to me....and those are your other options.
    • Your daughter is only 7 years old.    I believe with a strict gluten-free diet, and some time, she will grow. My daughter was diagnosed at age 10.   When she was younger, she was always tall for her age.   She was in the 90% percentile as a toddler.   When she was finally diagnosed at age 10, we noticed that she did not grow at all for a little over a year, and she was at 25% percentile, and shorter than all her girl friends.   (She used to be one of the taller kids in the class) She is 14 years old now, still growing, and she is catching up with her friends, (no longer the shortest).   She is 5' 3'' right now.   She does not have her period yet, so we hope she will grow another few inches.   If she can be 5' 6", that would be a very good height for a girl. I think your daughter will be fine.  With a strict gluten-free diet, of course.
  • Upcoming Events