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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Even My Mom Can Be Rude About Celiac
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12 posts in this topic

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Kimbalou    17

I am celebrating Mother's Day with my family next weekend because I had to work today. We decided we don't want to cook. So, my mom told me she would get pizza. I reminded her I couldn't eat pizza. She said "well, we can get it for the people who can eat it." (huh? What about me?!) Then I said we could get Chinese food and she menitoned Panda Express. I have told gher before that panda is not gluten free. I told her we could get chinese from a regular restaurant and I would make sure it was gluten free. She sounded so frustrated and just said "well, maybe you should just bring your own food!" I told her it really isn't that hard to find a place with gluten-free food. Since I am a mother too, I felt like it was only fair to have food I could eat. She makes me feel like a burden when I have to eat gluten-free. She refuses to get tested for it, and that bugs me too...but it's her life.

I just think it's rude to mention getting pizza as the first choice! I told her, pizza would be ok if she had a gluten-free pizza place near her (I live an hour away where we have some gluten-free pizza places.) She said she didn't know if they had any gluten-free pizza places near her...and I know she won't call to find any.\

Thanks for letting me vent. I just think when there's not a plan in place for the food to begin with, it's ok for her to figure out a place that I can eat at too. Even my own mom doesn't get it:(

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dani nero    49

Life really sucks for us sometimes. Maybe a little more than sometimes :-( Sorry you had to put up with that type of attitude. For me it's my dad who can be awful.. he acts as if the food I eat is uneatable.

*hug hug hug*

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Ninja    31

On Mother's day?! :( That sounds awful, I'm so sorry you had to deal with that on your day. I get it. My dad likes to make dinner for us on the weekends, however he doesn't take the necessary precautions as he is the gluten eater in the family) to keep things free of cc. He gets frustrated when I begin to tell him what he needs to do to keep things safe (washing hands, etc), but he doesn't want to learn it himself, either. It really is the truth that if you don't have to deal with it you don't understand.

Hugs,

~Laura

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Mnicole1981    4

I understand your frustration. This is new for me and we had dinner at my Grandma's and she did not seem to understand that some things will make me sick. I ate what she cooked and I got the left side pain, cramping, and nausea.

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This is my life every day. I live with 5 people that cannot eat gluten free. I am hoping that one day it will be different. It already has gotten better as people have discovered that is much easier to make one meal which Mom can eat.

We must do what we must do. Hopefully, we are rewarded for it; I know I am.

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ravenwoodglass    1,222

Kim, something that might work for you all is to put the name of your Mom's city and the words 'gluten free restaurants' in a search engine. See what comes up and then suggest a couple that she could pick her favorite from. That might work better than asking her where she wants to go. People don't understand how difficult it is for us and it can be hard for them when the suggestions they make have to be nixed by us. That makes both parties frustrated. I hope you can find a good safe and acceptable solution that will keep you safe and also be good for the rest of the family.

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Carebear    0

Ugh that sounds so frustrating!!! My family likes to pretend I don't have dietary restrictions and continues to try and make me plates full of allergens and whatnot around the holidays.

I try my best to make sure I'm the first one to suggest a place to eat when we go out, and always google and call some gluten free places around my parents when I'm in town.

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mamaw    133

We understand that some family membes can't get gluten-free.. I think when a Mom doesn't get it it becomes hurtful... As we think of our Mom as our rock & pillar to turn too...My Mom is gone but she always understood so I was very lucky.

But for other family gatherings I take my own food, always. I never expect anyone who is not gluten-free to understand the risks of being gluten-free.. Just easier to take my own & enjoy the friendship part of the day....and not be sick after.If I know what the food is going to be then I'll match it & I always take extras for others who dare to taste gluten-free..I have been asked to bring gluten-free foods to gatherings because the gluten eaters enjoyed the food..Once they find out our food is good , then we have won part of the battle...

hugs

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MikeOhio    1

Sorry to hear that. My mom's usually pretty good about eating out although I have to eat a lot of french fries and salads and dairy products sometimes. I live in a rural area myself so there's no gluten free restaurants here. I'm thinking about maybe getting some pepper steak from the local Chinese restaurant sometimes. I don't know if I recommend that for you though, but you may be able to find something from a Chinese place. One would hope that with the choice of a gluten free restaurant available your mother could accommodate you

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ravenwoodglass    1,222

Sorry to hear that. My mom's usually pretty good about eating out although I have to eat a lot of french fries and salads and dairy products sometimes. I live in a rural area myself so there's no gluten free restaurants here. I'm thinking about maybe getting some pepper steak from the local Chinese restaurant sometimes. I don't know if I recommend that for you though, but you may be able to find something from a Chinese place. One would hope that with the choice of a gluten free restaurant available your mother could accommodate you

Do make sure to ask if they marinate the meat with soy sauce. Regular soy sauce has wheat so you would want to avoid that.

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MikeOhio    1

Do make sure to ask if they marinate the meat with soy sauce. Regular soy sauce has wheat so you would want to avoid that.

darn, I think you're right about that. I hope I can find something. Thanks for the info.

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Jetamio    4

Aw I'm sorry you had that happen on Mother's Day! I find mixed responses in my family. My daughter has been fantastic about it. My mom is trying to understand it more but won't get tested herself (she has IBS, MS and Fibromyalgia). So far the only real response she gives is a grunt and a "that sucks" when I explain what gluten free means. Hang in there and take care of you!

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