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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

11Wks Along And Feeling Terrible
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9 posts in this topic

This is my 6th child. I'm just feeling a lot worse than I remember feeling with my other 5 pregnancies. Ive always had very healthy pregnancy and deliveries, but have usually been anemic. Im taking my vitamin and iron supplement. I feel weak and constantly fatigued and never satisfied when I eat- in fact I feel badly (light headed, weak, fatigued) after eating this time around. I'm trying to eat more often and trying to eat super foods but just feel like something may be wrong with my absorption, or iron, or blood sugar. I've been gluten-free for over a year now but doctor says I've been celiac for years by the looks of my scalloped intestines. (i say all that cuz i figure ive been celiac during my other pregnancies and didnt know) Microscopically my intestines look good now so doc says I must be following the diet.

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How's your blood sugar?

ETA: Have you had your iron level checked? You may no longer be anemic, in which case the supplement could be making you feel this way.

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Make sure the vitamins you may have started when finding out you were pregnant ae gluten free. Also, you may want to get your thyroid checked.

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We did bloodwork and thankfully my blood sugar and iron were good. I think I will stop the iron supplement. I've read that having too much iron can make u feel similar to being anemic. Doctor -(Midwife) thinks I'm just under a lot of stress and need to take time to rest more. She's probably right. I was relieved to see my vitamin levels good!

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Each pregnancy is different....you're 11 weeks along and feeling terrible because you're pregnant :) I'm 16 weeks now and through 14 weeks it was the WORST.....it'll subside, just keep eating healthy and fight through it, in a few more weeks you'll feel as good as new!

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Each pregnancy is different....you're 11 weeks along and feeling terrible because you're pregnant :) I'm 16 weeks now and through 14 weeks it was the WORST.....it'll subside, just keep eating healthy and fight through it, in a few more weeks you'll feel as good as new!

Not necessarily. I'm 28 weeks now and would still be vomiting every day without my Zofran prescription. I've been quite sick throughout. I kept holding on to hope that my second trimester would come along and that I would feel better. No such luck! My doctor even told me at 20 weeks to plan to be sick the whole pregnancy. And add to that the headaches, fatigue, heartburn, sciatica, etc. I could go on...

However, with all of that said, I am SO THRILLED to be pregnant and starting a family of our own with my husband. I'm 35 (turning 36 just two weeks after our son is due) and he's 41. This is the first for both of us and we couldn't be happier! And I attribute it all to going gluten free...

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That's why I started the reply with "each pregnancy is different"...I'm sorry you've been so sick though still!

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Here I am at 15 wks and sure enough I feel a lot better but not quite normal. Nausea is less. Fatigue is still pretty bad. And I still have the fuzzy brain sensation but all symptoms are not AS bad.

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Here I am at 15 wks and sure enough I feel a lot better but not quite normal. Nausea is less. Fatigue is still pretty bad. And I still have the fuzzy brain sensation but all symptoms are not AS bad.

Like someone mentioned above, keep an eye out for your prenatal vitamins being gluten free or not, they could make you really sick if they have gluten in them. I felt pretty bad all of a sudden in my sixth and seventh months but it was because I was way way low on the calcium and magnesium and the baby was sucking up all that my body had to grow. SO I was dizzy, nauseus, mentally tired and foggy. Noticed my nails bending backwards when I was playing with the dog and thought "That's really bad right there, I need calcium now!!"

SO my added supliments to the prenatals are a calcium, magnesium, zinc, vit D, betain, and glutamic mix and I've felt much better.

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    • I would have bouts of discomfort and nausea after eating certain foods, but I always assumed that it was because I was eating garbage like corn dogs and etc. Did you ever have any symptoms of vitamin deficiencies like angular chelitis? I had this in high school all of the time, and when I tried to scratch it off my lips would get all red and it looked like I was wearing lipstick (I'm a guy you can probably understand how embarrassing this was). I went to the doc to get a b12 shot twice and most of my current symptoms cleared up, but it was temporary. I don't remember anything else besides having diarrhea often which I always figured was just because of my unhealthy diet.
    • I do not think anyone was discussing " formed chicken" here.  Obviously, that is a different food than plain fresh chicken.
    • Dermatitis Herpetiformis  can manifest itself in lesions anywhere, not just elbows and knees.  I have it and although gluten free, I still have severe itching and little bumps that itch.  I don't have the lesions any more, but itching can drive a person mad.  the bumps can be on buttocks, shoulders, etc.  Dapsone is the standard treatment, if you are not allergic.  I also use topical prescription creams.  I take 2 Zyrtec a day and benedryl at night.  Benedril spray helps with temporary relief.  Also am on hydroxyzine and doxepin.  Sometimes steroids like prednisone help, but can ruin ones blood sugar counts.  I use Grandma's Baking Soda soap.  Straw may certainly be a factor.  I must be coming in contact with a trigger of some kind even though I'm very careful about my diet.  Change your dermatologist and get a specialist in DH.  I went for years with all kinds of stomach and bowel issues and was 69 years old before being correctly diagnosed.  Don't let anyone tell you it's your imagination!
    • I can not help you except to offer some emotional support.  You are not crazy!  You can get glutened on a farm.  Here is a study: http://www.nejm.org/doi/full/10.1056/NEJMc063112#t=article This topic has come up before: Hugs!      
    • I know I got glutened after handling some straw last year helping out decorating at the farmers market then going to eat something without washing my hands. I later learned it was wheat straw, some of them still had the heads on them and everything. Gave that area wide walk around after that, I did not have much issues with inhalation with it. But if your there with a thrasher running, down wind during the harvest.......I imagine it might be hell if your super sensitive. If you get skin reactions that easily from it I guess taking a vacation during harvest? Try staying indoors, dust mask, long sleeves and pants hope for the best.......I am just throwing some ideas out there. Maybe someone can help a bit more.
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