• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Doctor Just Called
0

Rate this topic

3 posts in this topic

Recommended Posts

My GI clinic just called and said my biopsies confirmed the Celiac Sprue. I am sure I will have a million questions once the initial shock wears off. I guess I just thought it would end up that I didn't have it after all. I had them fax me a copy of my reports. Looks like I got some problems in there:

I have increased intraepithelial lymphocytes of the duodenum. Endoscopicly, the folds did seem flat in the post-bulbar area.

In my stomach I have non-neoplastic gastric mucosa with minimal chronic inflammation of the lamina propria. GI did tell husband he noted stomach inflammation endoscopicly.

There was some tortuosity of the sigmoid.

Moderate sized hemorrhoids internally and within the anal canal.

I was told to continue my gluten-free diet, which I'm not even on. LOL

So, I guess I have to start that when I get money for new groceries. :(

I'm new to all this so guess I need to start looking into what I can have and can't have now and make a list of things I can't have anymore. Does anyone have a good resource for this?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


The good thing is now you know. Go to the coping section and read Celiac 101. That should give you some good info. Ask any questions you need to and we will do the best we can to help you transistion into the gluten free lifestyle.

Share this post


Link to post
Share on other sites

Try these links for useful information:

Unsafe ingredients.

Safe ingredients.

Here's a list of companies that have a clear gluten policy. If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc."

I am not a supporter of lists--they are out of date the minute that you print them. Formulas are constantly changing. That is why I like to buy from companies who will label clearly (see the third link above). Always read the label.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,157
    • Total Posts
      939,977
  • Member Statistics

    • Total Members
      66,141
    • Most Online
      3,093

    Newest Member
    Victoria Zoey
    Joined
  • Popular Now

  • Topics

  • Posts

    • Noticing I am having D quite easy nothing bad, painful or gassy, just D or super soft stool in the mornings for the past 4 days. Food Diary suggest several culprits, my BBQ jackfruit seems to be the number one suspect, This is my BBQ cuisine week or two and I can not eat meat so I have a big wad pinch of shredded homemade BBQ Jackfruit. I have done a gluten test on it and that is not the reason but perhaps the seasonings or perhaps hte cider vinegar I put it in fermented it a bit?

      Other thoughts on culprits, I have upped my vitamin C intake to about 1500mg a day spaced out in 2 doses Vitamin C has been linked to D in many cases and is one reason why some people get D when they take a vit C supplement in conjunction with fruit.
      I have also upped my cocoa nib intake this could be a culprit also,
      I have cut back on binding seeds like flax, whole shell pumpkin, and chia which used to be a huge fiber supplement so this could be the cause of more softer stools.Next week I start back on chia seeds in my eggs and we shall see if my stools firm back up. 
      I also doubled up on probiotics as I was taking half the recommended dose prior.
      Eating a bunch more cinnamon, and cinnamon oil, but I do this on rotation so doubt it,
      My new low carb bread, I am eating 2-4 slices of this grain less bread a meal now. This could be it but this bread using coconut flour in it, and egg whites. I doubt this is the case, as coconut flour is known to absorb liquid a lot, and tends to firm up ones stool and in fact cause constipation in people if they do not consume it with a lot of liquid. I came across health concerns with other bakers when I was working on this recipe about it.
      My protein intake went up to double what it used to be 5 weeks ago, doubt this is the issue but this week, I changed it using a custom blend with MUCH less rice protein and more pea and sancha inchi. I noticed the more rice protein I consumed the worse my edema got with legs and feet swelling. Have this well under control now with no swelling,
      I considered it perhaps my extreme coffee intake but I have changed to only 2 cups of caffeinated coffee a day starting mid last month. Down from a whole pot.......so now I drink about a pot of decaf a day. I doubt this is it as it never gave me a issue with the much more likely culprit of full on caffeinated in the same amount.

      While I try to trouble shoot it I am actually slightly enjoying it. Odd as this might sound, I spent most my life with chronic constipation, and the only relieve I used to get came with a glutening and that had EXTREME pain and gas. Followed by a week or so of constipation so bad I had to take laxatives.  This....this is just a release with no pain or gas....odd and creepy but I seem to have much more energy, and I can eat and drink a lot more. >.< I think I might enjoy this ride a bit of regularity even if it is a bit off, it is a huge change from my hard stools and painful movements of years past.  I mean I have gone as far in the past as taking a entire bottle of miralax to try to go and just had gassy normal BM 24 hours later and frankly miralax makes me feel like groggy, tired, and like the blob, I am that guy that had to double the dose of everything for the scope prep and had the doctor think I cheated when I told him the first time I did it right and did not clean me out. I want to find out what is triggering this and add it to my regime for clean out or laxative treatment after a glutening next time when that C hits for a week.
    • Yeah noticing some others, black tea, gives me that film/mucus on top of my stomach while green tea, herbal/hibisicus, and coffee do not. I have recently fell in love with Rythem Kale chips, and roasted kale. Kale raw...I always get sick from. At first it was due to the waxy stuff on the ones I was getting, then I got organic washed. and still got the issue minus the floating waxy stuff in my stomach. Now if I stewed it, nuked it, or made chips out of it no issues. But with the farmer market, me baking for it, and Texas Summer preventing afternoon baking due to heat. I never had time to roast kale this summer. Now with the Rythem Kale it comes prepared in a way that doe not make me sick. Love using it crushed up in my omelettes, or using it crushed as a garnish over my miracle noodles or rice. with a pesto or butter flavored coconut oil. Considered this, I have a friend who has this with bananas and a few other fruits, they do not bother him if he cooks them, raw causes hives and swelling. Again I considered it but I no not have sores form in my mouth like I do with my corn allergy, nor do I get itchy or swelling. Still might be a slight issue I might  give it some more thought. >.> could be the fact I do not have much feeling for heat or pain in my mouth (nerve issues).  But it does sort of apply I need to do some research and see if others have this and might be limited to the vomiting and stomach mucus symptoms also. I might try eating some foods I know I have a allergy to like peaches and mango, just a tiny bit in a extract, and see if I get the same reaction, They normally just cause drainage, and sniffles, even stuff with just the flavoring or extract.
    • Hate to add more to your list but you may also want to look into Oral Allergy Syndrome. Mostly because how you describe almonds. Yes, it is another extensive list of foods for intolerance and allergies. 
    • How long were you fully gluten free for Kirsty?  
    • Hi Matt, So you say your hypoglycemia resolved going gluten free. In my case, it got worse trying to get off. Now my cortisol, progesterone and estrogens are low. The extreme stress from trying to cut it out of my diet offset my menstrual cycle. That leaves me with a lot of anxiety, blood sugar issues worsen at specific times of my cycle. So I want the doctor to stabilize me hormonally, as far as that goes while being on gluten. I agree that I’d have to fully stop eating gluten. Not just a bit. Even though I removed all gluten except 1,5 slices of bread, I still experience the above symptoms. Some of those symptoms might be because of the hormonal situation. But they always worsen after eating gluten. My appointment with a hormonwise doctor is in 10 days. Seems such a short time, but hate waiting. Kirsty
  • Upcoming Events