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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

My Daughter's Scope Was This Morning
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Momto2girls    0

Ha, ha! I hate waiting -- I am SO impatient!! So the GI who did the scope wasn't our GI -- he was a doctor from the same group. So he didn't say anything except everything looked OK ad now we just have to wait on biopsy results. I am wondering how many of your kids looked normal but then the biopsy turned up positive? Or how that happened? My DD is 4.

Also, how long did it take to get your results?

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natalie22    0

Hi. Our daughter had her scope six years ago. She was 6.5 years old at the time. We also got a report that everything looks ok at the end of the scope, but they told us immediately that it doesn't mean a lot and that we'll have to wait for the formal results. These came back after two or three weeks and were very positive for Celiac. Combined with the high blood tests there was no question about her diagnosis. She has been following a gluten free diet ever since and feeling great.

Lots of health to all your family. Don't forget to have everyone in the family tested if she comes out positive

Natalie

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My son is almost 4 yrs. We had the scope done on Tuesday and got Celiac results that Friday. We are still waiting on Lactose and Sucrose tests and were told we would get those in one week from scope (tomorrow). Good luck waiting.

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Mom2J112903    0

We have *always* heard something as soon as the GI comes out of the OR. It takes sometimes 2wks for the results to come back from pathology.

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mom2    0

The GI who did my almost-4 y/o daughter's scope also said everything "looked normal" during the scope, but the biopsy confirmed she was positive for Celiac (she also had a pretty high positive blood result). We were told to call in 2 weeks for the biopsy results, which is how long we had to wait. I'm sure they had the results earlier, but I decided to wait the full 2 weeks to call as instructed. That was a long 2 weeks. We've been gluten-free since we found out at the beginning of May. It's been a little challenging so far, but I'm learning a lot. Try to keep busy until you get the results. I composed a list of about 10 questions I was planning to ask the GI if the biopsy came back negative. I just wanted to make sure I was prepared for that (sometimes it's hard to remember what you want to ask, so it's good to have things written down). Hope the wait isn't too long for you...

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MitziG    94

My daughters scope looked perfect doc said- biopsy showed definite celiac. Sons endoscopy looked normal- except for the fact that the food he had eaten 24 hrs before was still sitting there. Biopsy was celiac. My intestines were trashed to the naked eye, dr dx celiac on the spot, biopsy confirmed. Interestingly, my antibodies were only "weak positive"- both kids had very high antibodies. Go figure.

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sa1937    324

Once the biopsy is done, there's really no reason to wait to go gluten-free. Whatever the test results are, it will not affect any other type of testing your GI or PCP might want to do. You might notice improvements in your child long before you have the follow-up appointment and pathology report in your hands.

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Momto2girls    0

Thanks SO much everyone!! Her blood work was actually negative. But, they didn't do the full celiac panel -- they only tested for a few things -- and it was "barely" negative (if that's possible?) -- meaning it was just within the normal range. But, they are looking for everything -- EoE, Celiac, Crohn's, etc. And they said that we should trial milk-free first -- for two weeks, to see if that seems to help at all. And then we'll see about the rest? I really haven't the foggiest what the answer will be (if anything).

I am wondering though if the biopsy would show gluten intolerance and not just Celiac?

We are trying to stay busy but I just want to know already! Ugh. It has only been 24 hours! This is not good -- ha, ha! :)

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1974girl    23

My daughters scope looked normal, too but came back "simplification". That is the start of blunting. You don't go from having great villi to none overnight yet some doctors will not say celiacs until total villi destruction. Not my GI. He said to start gluten free immediately that she had celiac. But she also had positive genes, positive blood, etc. I have heard that a milk allergy can cause blunting, too. So much that they can't tell what caused it. So if your daughter has neg. blood, it might really be a milk allergy.

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Momto2girls    0

It just makes me a little nutty -- like if it were just one thing they were testing for I could sort of sit still and wait but since it is a million things I am totally losing it and need to know!! But I just have to be patient. I am horrible at this. Have I mentioned that!?

We haven't had the test for the gene, nor have we even had the full blood panel, so it is hard to know for sure. I do feel like it is likely food related...she has other severe food allergies -- tree nuts and egg -- and is very intolerant of artificial dyes and I just think if it were anything it would be that?

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    • What does this result mean exactly?   Endomysial Abs, IgA Negative   Negative Transglutaminase IgA <2 U/mL 0 - 3 U/mL Negative 0 - 3
      Weak Positive 4 - 10
      Positive >10
      Tissue Transglutaminase (tTG) has been identified
      as the endomysial antigen. Studies have demonstr-
      ated that endomysial IgA antibodies have over 99%
      specificity for gluten sensitive enteropathy. Immunoglobulin A (IgA) 518 mg/dL 87 - 352 mg/dL
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