• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:

    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:

       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
Sassy Cat

Need Info To Help Teach Celiac About Mistakes They Are Making

Rate this topic

Recommended Posts

While I do not have Celiac Disease, I think that I am probably the person in our family with the most knowledge regarding Celiac. I had never heard of Celiac until my Mother-in-law was diagnosed approximately 7 years ago. One year later my husband started with a terrible rash and was then diagnosed with DH. My mother in law saw a nutritionist and I trusted her to watch her own diet. I read some books and learned how to cook gluten free at home but when my husband kept sneaking donuts, big macs, and other items I hate to admit that I kind of stopped trying quite so hard. I still cooked gluten free at home but I gave up on nagging him and stopped doing research - I have 2 kids so I do not want to be his mother. Just this year my 11 year old daughter was diagnosed with Celiac. I have read everything I can get my hands on, got rid of almost all of the gluten in my house (keeping a few favorites for my teen - very few!), got the school on board, and basically became her gluten free advocate. I will do everything in my power to keep my daughter safe and healthy.

After all of my research, I have discovered some things that we were doing wrong as a family before my daughter's diagnosis. My house is on track at this point and my husband has corrected his ways and is setting a good example for our daughter. I am really concerned about my mother in law. She has had several strokes and has a hard time saying what she means at times. She is doing some things wrong when it comes to eating. She picks croutons out of salads. She eats pie up to the crust. She has even tried to pick the meat off of a White Castle hamburger. She is always complaining of headaches, fatigue, and how her feet hurt. I know she is getting gluten in her system. She is older and a widow and wants to eat out all of the time but does not communicate her needs to the staff regarding her Celiac. She is under the misconception that the only symptom is diarrhea and if she does not have that then everything was OK.

I am hoping to find some information from a reliable source that is simple that I can share with her and her other children that will make it clear that her food is not safe if it has ever touched gluten. Everyone in the family thinks that I am overreacting so it really needs to come from a third party. A book is simply too long for her to be able to get through at this point because of her strokes. Just wait until the next family function when I start telling her other 5 kids to get themselves tested!

I would appreciate any help and/or advice. Thanks so much!

Share this post

Link to post
Share on other sites
Ads by Google:
Ads by Google:

Give her info from the experts. However, if she has been having some strokes, her ability to remember and understand may be impaired.


The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten

Q: Is it ok if I ingest some gluten if I do not experience any symptoms?

No. The majority of patients with celiac disease experience no symptoms when they ingest gluten, either intentionally or unintentionally. This led to the concept that patients, especially children may grow out of the disease. In addition, patients also consider that it is doing no harm to them. However the ingestion of even small amounts of gluten results in damage to the small intestine--regardless of the presence or absence of symptoms--and puts the patient at risk for resulting complications including malignancies and osteoporosis


Share this post

Link to post
Share on other sites

That is great! Can you think of anything that I can find that says not to do some of the specific mistakes she is making like picking bread and/or croutons off of her food, and eating the pie but leaving the crust? I can not find anything that specifically says not to do those kind of things.

Share this post

Link to post
Share on other sites

Is there a local Celiac group with a mentor program? That might be helpful if she could have someone to talk to her own age, who is like her.

Share this post

Link to post
Share on other sites

Is there a local Celiac group with a mentor program? That might be helpful if she could have someone to talk to her own age, who is like her.

I have not been able to find any functioning support group in the area...and I am in the St. Louis region. I had hoped to find something for my daughter to attend. I asked her doctor and I have come up empty handed. I spent a lot of time looking for ANY kind of support group. She actually lives in a retirement community and is the only person in the whole community diagnosed with Celiac. They will not accommodate her needs in any way at the retirement community.

I understand that when it says even small amounts of gluten can cause harm but unless I can find something that says - Do not eat any of a pie made in a regular gluten crust. I just do not think she is going to completely get it. There are lots of people telling her to go ahead and eat it - there is only me saying not to do it.

Share this post

Link to post
Share on other sites
Ads by Google:

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


  • Forum Statistics

    • Total Topics
    • Total Posts
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
    ROSEANN 1958
  • Popular Now

  • Topics

  • Posts

    • Hi, I am a 24 year old male , with no family history of Celiac.  I have low testosterone.  they did a Biopsy today and during the scope the Doctor said I have Gastritis in upper stomach.  My lab are as follows:   Immunoglobulin A, Qn, Serum 132 90-386 (mg/dL) F Deamidated Gliadin Abs, IgA 3 0-19 (units) - Negative 0 - 19 - Weak Positive 20 - 30 - Moderate to Strong Positive >30 F Deamidated Gliadin Abs, IgG 2 0-19 (units) - Negative 0 - 19 - Weak Positive 20 - 30 - Moderate to Strong Positive >30 F t-Transglutaminase (tTG) IgG 21  H 0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9 F Endomysial Antibody IgA Negative Negative  F t-Transglutaminase (tTG) IgA <2 0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10   I am wondering the probability that I have celiac?
    • Get pictures if you can and contact GFWD if true and perhaps we can inform others better about this issue.
    • First this is a old post please check date, second, are you celiac/been tested? You should probably see about a gluten challenge and testing if you have not. Or are you confirmed to have a gluten/wheat allergy? What kind of testing was done to determine this? Or is it a NCGS gluten issue? Sorry for the questions but different people have different issues and it is a bit hard to address them without more information. Perhaps start a new thread and feel free to introduce yourself. We always welcome new members and are glad to help out. You mention allergy but also mention swelling stomach/gut which is is sometime a celiac reaction generally.  
    • My husband & I used to be beekeepers. It would be almost impossible for wheat protein to get into honey. The honey is inside the hive; it's not like it's laying out in the open in a plate or a bowl. Here's a hive.: https://www.mannlakeltd.com/10-frame-traditional-growing-apiary-kit-wood-frames-painted?gclid=CjwKCAiA4vbSBRBNEiwAMorER1htsezzCA5djegusWEGx_DzRHG4xePYQIxxd1paGZy4ibxMR_dSFxoCFUoQAvD_BwE The bees have a narrow opening at the bottom of the hive where they enter & exit & when they enter then they climb upward inside the hive. The bottom section is the brood chamber where the queen lays eggs & eventually become bees. At the top of that section is something called a queen excluder which is generally a metal screen type thing with holes in it. The queen is larger than the workers so the holes are smaller than the queen in order to keep her in the brood chamber. This is so she doesn't go laying eggs all over the hive. The workers fit through the excluder allowing them to go to the supers (boxes) above where the nectar is deposited in honeycomb & turned into honey & when a cell is full, they cap it off. You've seen honeycomb before. So when harvest time comes, the beekeeper takes the full (of honey) supers off the brood chamber & replaces them with empty (of honey) supers so the bees can start filling those up. The full supers get taken to what we call the honey house which is where extraction takes place. Here's a YouTube video of honey extraction. As you can see, this is not anywhere that other food is being made or prepared. Other food does not get done in honey production. It's a class all it's own. There's not going to be any wheat barley or rye there.   
    • I noticed my  gluten sensitivity problem started 2 yeats ago after I had my gallbladder removed.  I had to figure it out on my own what my problem was .my sister -who is a nurse practitioner -suggested to me that maybe I am allergic to gluten? I asked her what is gluten ?that was two years ago I have noticed a definite correlation between all my gastrointestinal problems starting after my gallbladder was removed.  as soon as I accidentally ingest gluten my stomach swells up so tight it feels like it will burst have a terrible pain right at the site of where my gall bladder was removed.  I'm so thankful for the site I've learned so much from all of you it is a hard road to travel to try to find things and you can eat that will not make you sick keep posting. I think it gives all of us encouragement! thank you.
  • Upcoming Events