• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Fooding And Appointment Issues
0

11 posts in this topic

I'm not sure about it yet, but I think that the cashews were what was making me aggressively irritated. I haven't had them for a week and was feeling fine, then had a few this morning and snapped at hubs when he got home from work, then had anxiety for most of the day. If it really was the cashews, would they be having this effect so quickly? I ate them at 10am, and got irritated at around 4pm, then anxious after that.

I am also wondering.. WHY cashews?!

On a side note, I was feeling so hopeless and couldn't take the fatigue and lousiness any longer, so I called the clinic a week ago, and asked them if that appointment I took some time in march (which they said was going to be in april, and then somewhere in may) was ever going to happen.. and it wasn't going to happen until June because "the queue was really long" X( So we complained so much until they gave me a squeeze-in appointment on the 23rd.

Now that it's a squeeze in appointment, I feel that the doctor will be under so much pressure that I will have to make the best of what little time I'm going to have to explain my problems to him / her.. and what if they tell me nothing's wrong.. then I'll have to wait another quarter of a year to get another appointment with another clinic X(

Just a week left and I'm completely anxious about it, so I've developed a plan. Regardless of the test results, I'll be talking the doc into giving me suitable probiotics that are gluten and lactose free.. and I'll be telling my family that I've been diagnosed.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:

I pieced together today that cashews were bothering me too! I realized it a week or so ago, but thought it was the brand that they were cross contaminated, so I waited a week and tried another brand and flavor (first ones were honeyroasted) it had no cross cantamination warning and no wheat ingredients ate some yesterday and today and had a reaction both days. It is the only thing I can associate with it, so no more cashews for me. What I wonder for me is it a Iodine issue?

0

Share this post


Link to post
Share on other sites

I pieced together today that cashews were bothering me too! I realized it a week or so ago, but thought it was the brand that they were cross contaminated, so I waited a week and tried another brand and flavor (first ones were honeyroasted) it had no cross cantamination warning and no wheat ingredients ate some yesterday and today and had a reaction both days. It is the only thing I can associate with it, so no more cashews for me. What I wonder for me is it a Iodine issue?

I don't think cashews are high in iodine.. maybe the salted ones might be?

The ones I've been eating are sold raw and plain.. I either ate them the way they were or roasted them myself in sunflower oil and ate them unsalted.

0

Share this post


Link to post
Share on other sites

Dani is right. Cashews in & of themselves are very low iodine. Dani --- are you sure your cashews (even though raw) have not been cc'd anywhere along the line? And yes, cashews could be your problem as could any food. you know how celiacs come up with the darndest food issues. This may pass in time or it could remain -- who knows?

I think it's a capital idea to tell your family you have been diagnosed in light of the resistance they have had to the idea of your having celiac. That will take a lot of stress off of you on that score.

You realize that b/c you've been gluten-free that the tests are more likely to be neg, than anything else right?

I understand your apprehension about being squeezed in. Just make careful notes of your symptoms as well as your gluten-free trial & results. Along with the probiotic you need to think of anything else you will need a script for from the doc. Such as gluten-free & salicylate free Acetaminophen &/or Naproxen for those times when you need a pain reliever.

0

Share this post


Link to post
Share on other sites

Thanks for the iodine information Dani and squirmingitch.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Anytime, any question Alwayssomething. And if we can't answer it someone else can.smile.gif

0

Share this post


Link to post
Share on other sites

I just posted something about cashews before reading your post. I've been feeling off a few days and looked at all my labels to make sure I wasn't getting any gluten in me. The cashew label says "may contain trace amounts of . . . . wheat." I would guess there is some cc in manufacturing.

0

Share this post


Link to post
Share on other sites

you need to think of anything else you will need a script for from the doc. Such as gluten-free & salicylate free Acetaminophen &/or Naproxen for those times when you need a pain reliever.

Critically true! I had actually forgotten about that because I haven't been getting headaches recently, so thanks :-)))

I don't have any of the cashews at home atm, so I'll check for contamination next time I'm at the market. I don't think I was getting glutened though because it goes away quickly when I stop them, and it doesn't agitate my DH.

0

Share this post


Link to post
Share on other sites

YVW Dani. And pain relievers aren't just for headaches. Who knows when one is going to twist an ankle or whatever & need the med.

0

Share this post


Link to post
Share on other sites

YVW Dani. And pain relievers aren't just for headaches. Who knows when one is going to twist an ankle or whatever & need the med.

I'm also going to ask for a doctor's note stating that I need to bring my own food .. I thought it would be a good idea after reading the thread about sea-world :-)

0

Share this post


Link to post
Share on other sites

You are right. Good thinking!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,149
    • Total Posts
      929,183
  • Member Statistics

    • Total Members
      63,563
    • Most Online
      3,093

    Newest Member
    Dawne A. Moore
    Joined
  • Popular Now

  • Topics

  • Posts

    • DGP can absolutely be false positive. Google will not tell you that but I have found multiple studies in journals showing this and have also been told this by two different celiac clinics. I myself test positive to DGP when the assay is ran one way and negative to it when run another way. It is only a matter of time before the rest of Google University stops claiming it is overwhelmingly accurate. The test is young, toughly 10-12 years.  How many biopsies were taken? Do you have the report? Is there any inflammation at all in the small intestine? Did you have the gene test? If you still feel sick after some time on the gluten-free diet your health issues might not be gluten related. You might want to consider other diagnoses.  As for taking precautions in the interim, I am so sorry. My brother is celiac and they have a gluten-free house. When I was trying to see if cc was keeping me sick, I stopped even cooking at my boyfriend's and asked before even kissing him. Pretty sure he thought it was nuts too but he kept his mouth shut. This life can be extremely restrictive and more frustrating if you are still sick without an official diagnosis. Cycling lady suggested that I try a plastic bin with my own pans, spoons, that I could tuck away from people. That might work for you.  Good luck! I hope you feel better soon and I wish your family was more supportive. 
    • Please have your doctor check this out. It could be splinter hemmorage but it also could be cancer. While chances are it isn't anything dire it is best not to take any chances.
    • I think a lot of us can identify with his symptoms. The pattern you are seeing on his skin is likely something called livedo reticularis. In myself it seems to be related to inflammation. Before diagnosis the only thing that would alleviate this for me was an acupuncture session. it would be gone for a couple hours then reappear. I think it is associated with inflammation.  Mine reappears if I am glutened or very cold. You mention he had routine labs. Did they do a celiac panel?  he may want to ask at his local hospital if they have a fund for folks without insurance. While my local hospital didn't cover doctors visits they did cover any lab tests and if they don't cover in full they may have a sliding fee scale. the other option is to have him go gluten free but it is best to try and get a diagnosis before deleting gluten if possible. It might be helpful for him to come here if he is willing.
    • Celiac is genetic. That is why it is advised that all first degree relatives of folks diagnosed get tested before they go gluten free. If you have other family members who haven't been tested it would be best to have them blood tested before they go gluten free. You may want to consider going back to eating gluten for a bit so you can be tested.
    • On the extreme end of the gluten-sensitive spectrum are those with Celiac disease. Individuals with this condition must live gluten-free or they suffer ... View the full article
  • Upcoming Events