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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Original    0

For the past 5 months or so I have been experiencing some strange GI problems that have gradually worsened over time. I started out just feeling bloated after I ate and sometimes feeling the urge to go to the bathroom almost all the time even though I knew I didn't really need to go. Then it progressed into having many bowel movements a day about 4 or 5 at the least. But I do not have diaherra but the stool is still weird. Sometimes light and sometimes with a weird clear coating over it. I also get very very bloated and gassy from eating even small amounts of food.

I also get headaches, have a chronic sore throat, and get dizzy very easily. ( I think that may be low blood pressure though.)

I also get severe pain in my lower right abdomen that sent me to the ER. The doctors their thought I had a appendicitis but I didn't! I wish I did because I would be better now :( But oh well.

I also have become extremely anxious because I am always worrying that I won't be able to get to a bathroom quick enough or that I am going to begin to start feeling like I need to use the bathroom. I don't know what this is but it is getting unbearable. I am a college student right and have been missing class because I feel sick or get highly anxious about becoming sick in class. Sometimes it gets so bad I practically have a panic attack. I am constantly on edge and on bathroom watch and it is having a very negative effect on my life.

My GI Dr. had me go through a barium series of my small intestine but it came back normal. I also have fluid around one of my ovaries. I don't think that has anything to do with my stomach problems though.

I was diagnosed with IBS. My doctor prescribed me Hyoscyamine but it doesn't seem to be working. He also prescribed me fiber pills.

What do you think?

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Lisa    457

Sounds very similar. I am not a doctor and don't want to interfere with what you have been told to do but.....if you DO have Celiac Disease, the fiber pills will only make your symptoms worse.

Ask your doctor to give you a blood test for celiac disease, it is not always conclusive, but it may give you a place to start. Other people here on the site can clarify what the blood test is called.

Keep monitoring this web site and you will gain alot of knowledge from many experienced people. Perhaps, going on a gluten-free diet would help your symptoms. It will not hurt you even if you don't have celiac disease.

If I know that I have to be somewhere and can't get out of going, I will not eat anything beforehand. This seems to help me alot.

Good luck and keep reading these posts

Lisa B.

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KaitiUSA    7
My GI Dr. had me go through a barium series of my small intestine but it came back normal. I also have fluid around one of my ovaries. I don't think that has anything to do with my stomach problems though.

Those barium series are not good for detecting celiac. You need to first get a complete blood panel for celiac which includes the following:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

Sounds like celiac could be a possibility.

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Lisa    457

I also wanted to add to my post that if you need to be in class, try Imodium Advanced. It is at most grocery stores and it will help you get through your classes and relieve some of the stress you have in sitting in class for hours. Stress will add to your diar. issue.

Do go look into a blood test for celiac disease.

We have all been there and you are in very good company.

Lisa B.

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Original    0

I also wanted to add to my post that if you need to be in class, try Imodium Advanced. It is at most grocery stores and it will help you get through your classes and relieve some of the stress you have in sitting in class for hours. Stress will add to your diar. issue.

Lisa,

I don't think Imodium will work because I don't usually actual need to go to the bathroom (well some of the times i do) but the other half of the time its just a urge and then I don't go. This situation is making me feel like I am going to have a nervous breakdown! I am already a anxious person by nature but whatever is going on with me is making it much worse. I am actually thinking about taking the semester of school off so i can figure out what is going on without the stress of classes. Also, I am out of state so my Dr's aren't where I am at school.

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Guest DanceswithWolves   
Guest DanceswithWolves

My symptoms really kicked in when I relocated and took on a new job. I started losing weight dramatically. I think stress or anxiety can be a trigger. I also felt guilt and nervousness. I never even considered celiac disease, but I had an emotional breakdown in front of my boss/friend after a few sitiuations came to my attention about the job...so I packed everything up and moved back to Pennsylvania.

I had the bloating too at first. I was taking so many acid reflux pills almost every day that I think those pills made me feel worse. Do you get chills? Dry hands?

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Original    0

I do get chills. I dont have dry hands but my lips are always really dry. Whatever this is it really started to get out of control when I went to Europe this summer. Before it would come in go but it is now constant.

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weaverwake    0
Sounds very similar. I am not a doctor and don't want to interfere with what you have been told to do but.....if you DO have Celiac Disease, the fiber pills will only make your symptoms worse.

Ask your doctor to give you a blood test for celiac disease, it is not always conclusive, but it may give you a place to start. Other people here on the site can clarify what the blood test is called.

Keep monitoring this web site and you will gain alot of knowledge from many experienced people.  Perhaps, going on a gluten-free diet would help your symptoms.  It will not hurt you even if you don't have celiac disease.

If I know that I have to be somewhere and can't get out of going, I will not eat anything beforehand.  This seems to help me alot.

Good luck and keep reading these posts

Lisa B.

<{POST_SNAPBACK}>

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tarnalberry    314
I was diagnosed with IBS. My doctor prescribed me  Hyoscyamine but it doesn't seem to be working. He also prescribed me fiber pills.

What do you think?

<{POST_SNAPBACK}>

Based on that dx alone, you *should* have already been tested for celiac disease. I'm sure you weren't, but IBS is supposed to be a diagnosis of EXCLUSION, meaning they test EVERYTHING else first. They never test for celiac disease, though. :-( If you're still eating wheat, go back to your doctor and find out if you had the full celiac panel done (and what your scores were if you did), and if you didn't, get that test done. IBS is the most common mis-diagnosis of celiac.

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