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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Hey there everyone, Gassy Kassie here. That's a name I got as a child, when I had a horrifically distended belly and extreme flatulence. Don't believe me? Here's a picture of my lovely brothers, sister and neighbors making fun of me back in 1976 by calling me "Gassy Kassie" during a photo op: mean%20kids1.jpg

I'm the barefooted, high-waters wearing one with her head down. You can imagine how popular I was, what with the hand-me-downs, belly and uncontrollable farting. Thicker skin you've never seen...

Childhood trauma aside, I recently read "Wheat Belly" and it's whole explanation of celiac and recent developments (I mean since the 70's when I say recent), then I Googled "celiac" and found this great site and have been lurking ever since.

The things everyone in this community have contributed are eye-opening and have caused me to consider my own history, the apparent ignorance of family doctors relating to this issue, and my general lack of intestinal fortitude/constant state of exhaustion/propensity to catch any cold or flu that is out there.

In recent weeks I've lost sleep thinking about this because I've known about celiac since I was about 5 years old - when I was first diagnosed by a wonderful Canadian doctor visiting the Children's Hospital in LA, at which I had been diagnosed with cystic fibrosis, lactose intolerance, mental retardation, and behavior problems (see picture), and generally been issued a death warrant. That doctor took one look at my chart and threw out the "C" word, followed by the only cure: gluten-free for life! My parents put me on as best a gluten-free diet as they could (nothing was labeled back then and I had three siblings who I swear constantly attempted to kill me with Pop Tarts, but that's another story). The bloating and distention went away and achieved normal height and weight for my age (I was stunted before the diet). It also turned out I was not mentally challenged and merely recalcitrant.

As a pre-teen, and after a series of invasive tests by some quack gastro guy at some institute my parents had agreed to lease me to for two years for the greater good of society under the guise of "medical research" (seriously, multiple laperoscopies, various enemas and scopes no 10 year old should ever know about, funky diets, strange pills and concoctions, you name it), I was ceremoniously handed my first piece of pizza and it was announced by this quack that I had outgrown the celiac at the onset of puberty (that quack later became a gynecologist and lost his license for doing inappropriate things during exams - again, another story).

I remember being so excited not to be the weird kid anymore and not to have to go to that doctor anymore! I spent the next, we'll be nice and say 25 years, gorging on all things glutenous - especially beer and bread. I still had issues with my bowels and in my 20's, after a stint teaching English in rural China wherein I contracted dysentery, I met a doctor who ran a blood test for celiac, which came back negative so she said I was clear. I had a simultaneous diagnosis of B vitamin deficiency with a daily shot requirement that I ignored because I don't like shots and did not have medical insurance at the time.

Now I'm approaching 40, a wife and mother, and needing to take care of myself. The celiac thing has always lingered in my mind. I've always known I've had it. One doctor even told me it was for life back in college when I was having problems (tests not available then). I haven't had a biopsy, but look at the picture, my well-earned name, the toilet paper consumption in my household, my history. It's there, a classic case.

So yesterday, thanks to this website and all the members' honest discussions and links about this thing, I ate my last sticky bun from the German bakery down the street from my office (Note to self: move across from sushi bar), told my family I'm "Off the Wheat" (which my 4 year old announced at preschool this morning), and put all the glutenous pastas, crackers, breads, soups, flours (I'm a baker), etc in some bags to give away.

I'm doing it. Thanks to everyone on here for all their stories and experiences. I look forward to being a member here.

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Hey there everyone, Gassy Kassie here. That's a name I got as a child, when I had a horrifically distended belly and extreme flatulence. Don't believe me? Here's a picture of my lovely brothers, sister and neighbors making fun of me back in 1976 by calling me "Gassy Kassie" ...

So yesterday, thanks to this website and all the members' honest discussions and links about this thing, I ate my last sticky bun from the German bakery down the street from my office (Note to self: move across from sushi bar), told my family I'm "Off the Wheat" (which my 4 year old announced at preschool this morning), and put all the glutenous pastas, crackers, breads, soups, flours (I'm a baker), etc in some bags to give away.

I'm doing it. Thanks to everyone on here for all their stories and experiences. I look forward to being a member here.

Hello Kassie, welcome to the forum!

That is quite a story, and I love the spirit in which you told it, thanks so much for sharing! Sorry for the painful childhood events, but you sound like you came through it with a great deal of strength rather than having it destroy you. You've been through and overcome a lot. I see that picture and it makes me want to cry; no child should have to feel what you were feeling at that time.

Hope you'll soon be feeling great, see you around the place!

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Thanks Beach Birdie.

It's been 8 days and I've lost about 4 pounds notice I'm sleeping better. It's not easy and I'm hoping to survive the holiday weekend parties and restaurant visits. Already went to a sushi bar thinking that would be easy, and it was, to an extent.

I've got some reading to do on what I can get away with!

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What a story. It is filled with some very encouraging and some very sad things! I recently remembered that when I was 10 my sister thought I was pregnant, but it couldn't be she said. I looked like it that day.

I am glad you are going to follow the gluten free diet again. The sacrifices, I am finding, are worth the benefits. Get Better soon.

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    • So sorry it is difficult.  There is soy and fish flavoring in everything!   I too have neurological damage from 40 years of gluten.  I can feel your pain.  Do you want me to look for a base contact for you?   I still have a connection at my Okinawa church which is near Camp Foster.
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