• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Tell Me About Your Repeat Blood Test
0

15 posts in this topic

Next month, I will take my daughter back for her 6 month check-up. They will see if her levels have fallen since going gluten free. I can't think of any exposure but then again she doesn't show symptoms so I wouldn't know anyway. She has hashimotos thyroid and I know that can raise Ttg, too. On your repeat blood test, did it show normal or does it take years. (I think I have asked this and someone said it took them 3 years) but they tell me I should know if it is working in 6 months. What experiences have you had? Does yours show fine?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


My 6-month blood work showed a marked decline in antibodies -- close to the 'normal/negative' level but still high or above it. The doctor who reviewed the results said that I was obviously responding to the diet but it can take a year or more to get down to the proper levels. He said they don't worry about 'refractory sprue' until it has been at least 2 years post-diagnosis. I'm curious to see what my 1-year blood work will show in a couple months...

0

Share this post


Link to post
Share on other sites

My 9 year old just had repeat labs after 6 months on the diet and he was in the normal range on everything

0

Share this post


Link to post
Share on other sites

whew! You give me hope!

0

Share this post


Link to post
Share on other sites

We are almost 2 years gluten-free. DS's ttg's dropped but were not back to normal after 18 months. After few strange TSH levels he was dx with a thyroid issue (though they won't say it's hashi's). Because his ttg's were still strange we did a different test (deamineated gliden or something) and we found out that was totally normal which means that his diet was gluten-free but the ttg's were still an issue. We go for the first lab work post thyroid meds in a few weeks and I am curious to see if his ttg's will be normal now that his thyroid is under control.

Good luck!

0

Share this post


Link to post
Share on other sites
Ads by Google:


thanks- If they can't find anything with his thyroid, are they checking his liver and for type 1 diabetes too? I know my friend's 4 yr old son does not have celiac but has a liver issue that causes it to be high. My DH has type 1 diabetes and I know that can make it high too. I assumed you have to have symptoms of diabetes but apparently your body makes antibodies for YEARS before you can show symptoms. But if he is showing a thyroid issue, get it worked out immediately. My dd has it and didn't grow for a year. They do the "catch-up" growth though and now she is back to normal. I am scared that my dd Ttg will not be normal. Although the thryoid meds control hormone levels, it does nothing for the antibodies that are continuing to attack her thryoid. We just had the test a few weeks ago and after 4 years, she should be under 35 and she is 2800. I can't imagine that WON'T affect her thryoid. I had heard that going gluten-free would help her thryoid antibodies, too but it didn't. At least not after 5 months. It actually even went up a tad.

0

Share this post


Link to post
Share on other sites

Oh no, it is his thyroid. TSH's were all over the place and he's been on synthroid for about 3 months now and and they are normal. They won't dx it as hashi's because his T3 and T4's were not leaning towards that but whatever....I think think it is hashi's but he doesn't fit the clinical picture for them so they won't say it (ya know, like many here know it's Celiac but Dr's don't listen ;) )

Anyway, I am really interested in his blood work to see if the thyroid being under control brings his ttg's to WNL. I think we go in early July.

0

Share this post


Link to post
Share on other sites

Can one be tested to see if they are clear of gluten. I am a 34 year old female, and I was newly diagnosed 10 months ago. It's been a long road, and I am not happy that I have Celiac Disease, but I am happy someone FINALLY found the answer! I am just concerned about the late diagnosis and how damaged my intestines are. I recently had a scope a couple of months ago to check my pancreatic valve, and was told that the damage to my intestines still looks the same. My doctor feels I am still getting gluten somewhere. I am being so very careful, but I realize living with my Husband and our using the same kitchen to cook can cause problems. I have my own section and supplies, but it doesn't mean I am 100% safe, not to mention potential contamination when we eat out. I was just wondering if it was possible to be tested or have a scope on a yearly basis to see if my intestines are repairing or staying the same.....any thoughts? I have been meaning to ask my doctor this question, and will do so at my next appointment.

0

Share this post


Link to post
Share on other sites

Actually you do not have a late diagnosis. Many people are diagnosed at a much later age. In comparison, I am ancient! laugh.gif

I have an appointment with my GI soon and he has ordered some follow-up celiac tests including the tTG and EMA. Thus far I have not been scoped after I had my initial scope two years ago.

In your case I would be concerned about cross-contamination as I think it would be very difficult living in a mixed household. But I know others can do it successfully.

0

Share this post


Link to post
Share on other sites

Im scheduled to go for blood tests every 3 months since my diagnosis. I had it done at 3 months and I never heard anything at all from the doctor. My 6 month test is coming up. Should I be expecting a call from the doc? I figured I would hear from them either way so I could find out where im at.

0

Share this post


Link to post
Share on other sites

Im scheduled to go for blood tests every 3 months since my diagnosis. I had it done at 3 months and I never heard anything at all from the doctor. My 6 month test is coming up. Should I be expecting a call from the doc? I figured I would hear from them either way so I could find out where im at.

Your best bet is personally asking for copies of any lab reports. Call first and then make arrangements to pick them up. I wouldn't necessarily expect the dr. to call. Some just aren't very good at that.

0

Share this post


Link to post
Share on other sites

Your best bet is personally asking for copies of any lab reports. Call first and then make arrangements to pick them up. I wouldn't necessarily expect the dr. to call. Some just aren't very good at that.

Alright I will do that after I go for my 6 month test. Hopefully im able to get them both. I wont know what the numbers mean but im sure people around here will know all about it.

0

Share this post


Link to post
Share on other sites

My son (now 7) showed that his levels went down slightly after 6 months, but the doctor felt it should have been more significant. We stepped up our gluten-free efforts (no more "processed in a facility . . ." and no more eating out. His 1 year tests showed everything in normal range.

I guess it just takes time.

cara

0

Share this post


Link to post
Share on other sites

Can one be tested to see if they are clear of gluten. I am a 34 year old female, and I was newly diagnosed 10 months ago. It's been a long road, and I am not happy that I have Celiac Disease, but I am happy someone FINALLY found the answer! I am just concerned about the late diagnosis and how damaged my intestines are. I recently had a scope a couple of months ago to check my pancreatic valve, and was told that the damage to my intestines still looks the same. My doctor feels I am still getting gluten somewhere. I am being so very careful, but I realize living with my Husband and our using the same kitchen to cook can cause problems. I have my own section and supplies, but it doesn't mean I am 100% safe, not to mention potential contamination when we eat out. I was just wondering if it was possible to be tested or have a scope on a yearly basis to see if my intestines are repairing or staying the same.....any thoughts? I have been meaning to ask my doctor this question, and will do so at my next appointment.

I turned 50 on my last birthday and was diagnosed 4 mos.later. That was nearly 3 mos. ago. I believe that I've had celiac disease most of my life. Because of food sensitivities, I have always watched for what set my digestive symptoms off and have mostly voluntarily and without much thought cut those things from my diet. I, too, believe that I probably have much damage, especially since my symptoms have improved but not as much as I had hoped. I recently had a battery of blood tests performed by endocrinologist, but he didn't do many of the tests I thought he should. He didn't check my vitamin k levels and treated me as though I were an idiot when I asked him about it. I bleed very profusely and have broken capillaries all over my legs, arms, and torso. Although my hemoglobin and hematocrit were normal, my red blood cells were low. Also, my vitamin b-12 and folate were low as was free thyroxine. Can someone please give some advice?

0

Share this post


Link to post
Share on other sites

My GI dr is retesting me only 3 months in, in about two weeks here, with a follow up appt the week following. I have a suspicion my numbers will not be that much lower but I would like to know if I am on the right track, if my numbers are not changed at all I will likely step up my efforts, and eating out. I also have more questions so am happy to be going back.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,754
    • Total Posts
      932,210
  • Member Statistics

    • Total Members
      64,219
    • Most Online
      3,093

    Newest Member
    MalMask
    Joined
  • Popular Now

  • Topics

  • Posts

    • My question is, how long does it take for the anxiety to fade? My anxiety is out of this world. It's horrendous. I have health anxiety and it's real, and it's bad. I thought going gluten-free would help me and I think it's actually gotten worse. But I don't think that's from being gluten-free. I think having an AI disorder panicked me. I've been on the diet 6 months and it's going well for the most part, but like I said, the anxiety is no better. Does that just take a really long time?
    • Thank y'all for the info! His doc said he may not have celiac bc he doesn't look the part whatever that means I guess bc he's a big boy lol but he did the panel anyways And said he'll prob get false neg even if he has gluten issues . He also testing for b12 iron and his vit d, and inflammation. We already know his vit D is low he's been taking high amounts of D3 with magnesium for months now. Doc said could be possible MS but he had spinal tab a while back and physical test also nurve and muscle study and Nero said the results were perfect but he did have some white matter change in MRI but could be from head trauma he's had or high blood pressure or migraines . It's all too much to process sometimes. He's 26  But I would think bc his stomach issues have improved so much in the past weeks bc of going gluten free it makes me lean more towards gluten issues rather than MS wouldn't u think? 
    • Thanks  I didn't pay attention to how long ago this study came out and wasn't sure if anyone had any "recent" data or information. Plus, my retainer is a Hawley retainer and I think it's made of acrylic. I'm not sure that would even have gluten products in it. I'll keep wearing it.
    • My husband bought some McCormick's skillet sauce on Sunday and it says it's certified gluten free. We always use the gluten free seasoning and I've never had an issue. I've just noticed the last couple days that my tummy has been kinda funny and I can't really think of anything that I've eaten that would have caused it, so it may very well not be gluten. But I went to their website and checked out the ingredients and it lists worscestshire sauce as an ingredient. It also lists the ingredients in that and I don't see any malt - just distilled vinegar. But I haven't eaten worscestshire sauce since I was diagnosed because I thought it wasn't safe. But I trust McCormick and know they have a good reputation. Thoughts? Oh, and here's the link to the product.  https://www.mccormick.com/spices-and-flavors/cooking-sauces/skillet-sauces/fajita-skillet-sauce
    • First STAY on gluten til you are done testing, you need 12 weeks for blood test with it in your system and 2 weeks for hte follow up endoscope.  Second yes, if he has celiac then his intestines are damaged and he will not be getting all the nutrients his body needs, so even when off gluten you can have issues show up like this. These can be helped by supplementing I suggest a full B-vitamin regime, and magnesium myself, there are others he might be low in like iron, folate, potassium etc. You should probably see about having his levels checked and talking to a dietician about what me might need. I personally love this blend from liquid health called stress & energy and another one from them called neurological support that I take 1tbsp of each 3 times a day. Best part they are liquid so you just add them to tea, water, or juice. Another I might suggest is Doctors Best Magnesium or Natural Vitality Calm Magnesium Supplements. Doctors best is easier on the stomach while calm can cause gut issues and a laxative effect and it is suggest you start off with 1/4tsp doses and step it up from there to the full dose. I take 2-3 times the dose on this but we are all different in the levels we will need.
  • Upcoming Events