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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

In Hindsigh, Maybe It Wasnt A Good Idea
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KMMO320    6

My dr appt with the GI isnt until Tuesday, but I have been playing around with eliminating foods and seeing what happens. I tend to react almost immediatley. I went 2 days without eating Gluten and felt really..fantastic. I wasnt dragging, I felt alert and awake and this is just after 2 days. I was still having some digestion issues but I have always had trouble with eggs. So today, I am thinking wow, I feel so good that I bet I had just been not feeling well..maybe I had a cold, maybe because my primary mentioned Celiac to me I was sort of being a hypochondriac and thought I had symptoms of it, maybe it was in my head and Im fine.

So at work ( I waitress) I had some toast...and felt fine. nothing happened. No headache, no body aches, no chill or low grade fever. So I was like ok..now I feel stupid, Im fine.

On the way home, I stop at the Donut shop to get my coffee..and a muffin. I said the heck with it..Im fine.

Im not fine :(

I just want to know what is causing this..is it really gluten? what can make me feel so horrible? Why cant I just be normal and eat what I want? Why is this happening out of NO WHERE????

The stomach thing has been going on for years..but the head stuff is relatively new.

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Takala    413

It takes most people years to develop enough damage that it shows up in different body systems.

Eggs could be a sign of your gall bladder/liver is very upset with you, because they are full of fat. Off of gluten, eating fat (like gluten free versions of muffins, doughnuts, etc) can be easier because the gall bladder and liver are working better.

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squirmingitch    495

It's not happening out of nowhere. You said yourself :

"The stomach thing has been going on for years"

You have now progressed to the next stage where it has done so much damage to the intestines & is now doing damage to other parts of your body. And even that has been in progress --- it's just deteriorated to the point that you FEEL it now.

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KMMO320    6

It takes most people years to develop enough damage that it shows up in different body systems.

Eggs could be a sign of your gall bladder/liver is very upset with you, because they are full of fat. Off of gluten, eating fat (like gluten free versions of muffins, doughnuts, etc) can be easier because the gall bladder and liver are working better.

I actually dont have a gall bladder, it was removed 13 years ago.

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KMMO320    6

It's not happening out of nowhere. You said yourself :

"The stomach thing has been going on for years"

You have now progressed to the next stage where it has done so much damage to the intestines & is now doing damage to other parts of your body. And even that has been in progress --- it's just deteriorated to the point that you FEEL it now.

I suppose you are right. I do want to thank everyone on the boards for dealing with my whining and ranting. This is very new to me. Though not the worst thing that can happen, and certainly not the end of the world, I always assumed food allergies and such were things that happened to OTHER people, and not me. lol.

So its all very surreal right now. I think its going to take a while to process.

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Jestgar    715

I suppose you are right. I do want to thank everyone on the boards for dealing with my whining and ranting. This is very new to me. Though not the worst thing that can happen, and certainly not the end of the world, I always assumed food allergies and such were things that happened to OTHER people, and not me. lol.

So its all very surreal right now. I think its going to take a while to process.

Whine is always better when shared with friends. ;)

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squirmingitch    495

I will echo what Jestgar says. Whine away. Sometimes we rant pretty good too!

I know it's shocking at first. All I could think of was all the foods I could never have again. My favorite foods. The comfort foods. But it's weird --- I don't think about those things at all now. In fact, the thought of them turns me off. I've read quite a few who have said that.

Hang in there. We're here for you. smile.gif

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KMMO320    6

I will echo what Jestgar says. Whine away. Sometimes we rant pretty good too!

I know it's shocking at first. All I could think of was all the foods I could never have again. My favorite foods. The comfort foods. But it's weird --- I don't think about those things at all now. In fact, the thought of them turns me off. I've read quite a few who have said that.

Hang in there. We're here for you. smile.gif

Chocolaye chip muffins from Dunkin Donuts are my all time most favorite things to eat. I am remembering back to a few days ago when I felt AMAZING (relatively) and thats how I want to feel all the time. So I guess I will do what I need to do. I just cant wait to see the dr and find out for sure.

I do know that even if she comes back and says she doesnt think its Celiac, I KNOW how I feel, I KNOW how much better I felt by not eating wheat and since there is no harm in NOT eating it, thats what I will do, regardless.

I definitely have a problem with eggs and too much dairy. Eggs do me in within minutes of eating, just goes right through me. I dont mean if eggs are an ingredient, but just straight eggs...its hell. And too much creamy milk/cream or liquidy type cheese is just awful too. I am ok with hard cheese and skim milk, but creamy stuff kills me.

I dont know if its related to the Celiac or not..I have been reading and saw how many people have trouble with it first while healing. I hope thats all it is and not a seperate allergy :(

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squirmingitch    495

It could very well be b/c of celiac. You may find you can get those foods back after you heal. And you may try them at say 6 mos. & not be able to tolerate them but try again @ 1 year & you will or 2 yrs. We all heal at different rates so it will be a trial & error thing.

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