This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
Thanks for the thoughtful replies, everybody! I want to highlight that it's just been almost 4 weeks since I've eliminated gluten (and I've been very strict about it) - prior, I could eat gluten with no issues that like this. A sandwich would rob me of energy, but not in a way I could associate with having eaten the sandwich. How insane that four weeks off of gluten could produce this new exposure reaction for me
1.5 weeks into being gluten-free I felt well enough to taper off my OCD meds and so, while I haven had had any noticible negative reactions, SSRI withdrawals can resemble gluten exposure (although the symptoms I don't think are often delayed) - so I wonder if a weird mix is happening there.
And also... I'm mostly just stunned that my body could react so extremely now to what it used to take with relative ease a mere 26ish days ago. It's good to know this is an actual thing and not me being dramatic about my new eating regimen.
It literally feels like death and like I'll never getting through it - but I'm staying reasonable about it and woke up this morning feeling less terrible (although I've had to make several trips to the bathroom - tmi I know).
Thanks so much!
Would like to add to this- while eating gluten I would get a random hive here or there. Since giving up gluten a few days ago, I've had a hive pop up yesterday and today. I'm at such a loss as to why I'm feeling worse. Is this some sort of detox? Is this something experienced by others?
Isn't it bliss to be able to eat normal food again! And yet - things can't be right yet, as like you, I pay for it later. The sparkling wine was a real surprise to me: I don't like alcohol normally and I drank it to be sociable - if alcohol has this affect on others with gastritis, I now understand why the last consultant I saw asked if I drank. She was obviously going to tell me to stop! What an irritant!
I've got a month until I need to come off Zantac, so I need to stop these treats. Partly I upped my intake of normal food as I was concerned about weight loss. It showed me that yes, my weight will hold or go up if I eat more fat, so I think it is only that which is causing the weight to come off. At least, I hope it is.
Still, at my age I don't want too lose too much - I have a fear it will make me look like a prune!
Stress continues to be a factor for me which ain't helping.
But I'm determined to beat this!
Awww Jhern...I'm sorry you are feeling so bad. (((((Hugs)))))
Please ask your Dr for a full thyroid panel to get a complete picture. That includes TSH, free T4, free T3, TPOAb and TgAb...the last 2 are antibodies. With a TSH that high, I would feel terrible...tired and achy for sure. Most people, including me, feel best with their TSH around 1. Some labs show an outdated range of .5-4.5. I would bet that you would benefit from some thyroid medication.
The weight gain could be from healing and absorbing nutrients too.
I hope you get some answers and start feeling better soon!
Yes, elevated intra-epithelial lymphocytosis is a possible indication of Celiac disease. That’s what my biopsy said. “Moderate to marked villous blunting with moderate to marked intra-epithelial lymphocytosis and marked chronic inflammation of lamina propia….characteristic for untreated celiac…”
What we are finding out about these medicines is incredible. I knew that it could damage the kidneys, and can cause fluid retention.
It’s good you posted here. Yes, usually the order is indeed blood tests first then biopsy, but oh well. My own thinking about autoimmunity is starting to evolve more and more to incorporate the ideas of Dr Terry Wahls, namely that there is little real difference between the various chronic diseases, that at bottom, it all comes down to cellular health. "Cells need certain nutrients in order to do their work, otherwise they begin to malfunction, even die." “When you look at chronic disease on a cellular and molecular level, we see it’s all the same disease – too much oxidative stress, inflammation, and nutrient deficiencies, toxins that are present. We see it in mental health, neurodegeneration, autoimmunity. It’s remarkably similar. Treat at the cellular level.” Dr Terry Wahls.