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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Nonna2    0

My family doctor thinks I may have celiac disease. On and off I would have bouts with D and then it would go away, then episodes became closer and closer. I am having a blood test this week and a colonscopy and endoscopy in the beginning of July. Since I am suspected of this I have started to change my diet and the severe stomach cramps and D have been relieved somewhat, although the b movement is still not normal. I keep checking things to make sure they are ok to have, but did not check Coffeemate until today and it has soy in it. Does anyone have a problem with that too, trying to get a grip on the does and don'ts until my test. And how long before you return to normal if it fact I do have celiac disease.

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sa1937    324

Welcome, Nonna! Since you are scheduled for an endoscopy in early July, you need to keep eating gluten until that is done so while you may want to educate yourself, don't go gluten-free just yet or you're liable to have negative results even though you may indeed have celiac. I actually went gluten-free the day of my endoscopy as it was clear to me that I had celiac.

A number of people on the forum have problems with soy.

We are all different so it's impossible to tell you how long it may take you to feel better. Some people notice improvement very quickly and others take much longer. I wish I had an answer for you.

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tom    75

Coffeemate also has a milk protein derivative - yes, insane for a "non-dairy" product HA! - called sodium caseinate. So, anyone thinking they're dairy-free w/ coffeemate is wrong, it's just lactose-free.

I'd be bothered by both the soy & the casein.

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mushroom    1,205

Yes, if you are going to go for an endoscopy I echo Sylvia, DO NOT stop eating gluten yet. In the absence of gluten the body starts to heal and your test could well come up negative by then. Use this time to learn what you will have to do once you have had the endoscopy. Start cleaning out your pantry, etc., but keep eating gluten.

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TiaMichi2    0

Yes, if you are going to go for an endoscopy I echo Sylvia, DO NOT stop eating gluten yet. In the absence of gluten the body starts to heal and your test could well come up negative by then. Use this time to learn what you will have to do once you have had the endoscopy. Start cleaning out your pantry, etc., but keep eating gluten.

Right there with Silvia stay on the Gluten, until you get your "golden seal" aka endoscopy. I am sensitive not only to gluten, but soy, dairy, eggs (but can tolerate egg white a bit, weird I know), xanthan gum also gives me the same reaction as gluten. It was kind of trial and error for me. Teach yourself how to read labels, and even though it says gluten-free, read the disclosure estatement as to where and how food is processed, to be aware fo CC.

It can be overwhelming at first, but you will learn, to me if I am not sure of what I read on the label it does not go in my mouth,or on my body until I research and am positively sure.

One positive thing, you will be eating really healthy :)

-Miriam

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Nonna2    0

Yes, if you are going to go for an endoscopy I echo Sylvia, DO NOT stop eating gluten yet. In the absence of gluten the body starts to heal and your test could well come up negative by then. Use this time to learn what you will have to do once you have had the endoscopy. Start cleaning out your pantry, etc., but keep eating gluten.

Welcome, Nonna! Since you are scheduled for an endoscopy in early July, you need to keep eating gluten until that is done so while you may want to educate yourself, don't go gluten-free just yet or you're liable to have negative results even though you may indeed have celiac. I actually went gluten-free the day of my endoscopy as it was clear to me that I had celiac.

A number of people on the forum have problems with soy.

We are all different so it's impossible to tell you how long it may take you to feel better. Some people notice improvement very quickly and others take much longer. I wish I had an answer for you.

Thanks for your input, although I am feeling a bit better without the gluten and finding it hard to go back before my colonoscopy/endoscopy, don't want to feel sick again. Had my blood test today maybe the panel will show something. Also new arrival of only one hive on my wrist, very strange. My test are not being done till July 2nd, trying to move up but they have not openings, my luck.

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sa1937    324

Thanks for your input, although I am feeling a bit better without the gluten and finding it hard to go back before my colonoscopy/endoscopy, don't want to feel sick again. Had my blood test today maybe the panel will show something. Also new arrival of only one hive on my wrist, very strange. My test are not being done till July 2nd, trying to move up but they have not openings, my luck.

Can you be put on a cancellation list to see if you can get in sooner?

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