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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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mommy2be

34 Weeks And "mildly Positive"

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*hanging my head in shame* I am 34 weeks today and I have not been 100% gluten free. My baby girl seems fine. She is very active and everything reported normal on my 19 week ultrasound and my prenatal bloodwork (didn't show I was anemic) I was diagnosed from my bloodwork as being mildly positive(whatever that means) two days before I found out I was pregnant.

I go for a couple weeks going gluten free(could possibly be cross contamination in there but I'm not really sensitive so I don't know for sure) and then I cheat. I read all the time on this subject but I guess wanted to get some input from other Celiacs.

Do I have reason to be concerned that my baby girl will be born with problems? I am a nervous wreck about this and I am so scared that my lack of self control on eating gluten could have harmed my first baby...I am so frustrated with myself that my constant concern for the well-being of my daughter has not completely kept me from being totally gluten free:(

Thank you for your time.

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There are plenty of undiagnosed celiacs who had perfectly healthy children. You'll do more harm driving yourself crazy worrying! Your baby is now in the "mad weight gain" stage so stop eating gluten so you're absorbing food well and passing her as much nutrition as possible. :)

You do need to get your diet under control for you own health as well as your baby. "Mildly positive" is still celiac and you MUST stop eating gluten, 100%. You cannot heal eating gluten occasionally. There is a risk of developing more autoimmunity like Hashimoto's thyroid disease, neurological damage (my mom has that), and a couple kinds of cancers if you continue to eat gluten. It's VERY VERY VERY important that you stop cheating on the diet.

Turn over a new leaf today and start the diet strictly so that you are in great health to care for that beautiful baby.

When do you lose willpower? Are there particular foods that you could get gluten-free so that when you have the urge to have cookies or donuts you can eat gluten-free ones? Gluten is a little addictive so you will have to go "cold turkey" and put up with cravings for a bit but you can do it. :)

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if you don't stop, and ANYTHING is wrong, you will always wonder, yes?

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I haven't been technically diagnosed yet, but my bloodwork came back high and positive...just haven't been to the doc yet to confirm. However, this is my fourth pregnancy, and I have a feeling I was celiac before. All my kids are very healthy, with the exception of my son who is going through the testing for celiac now. I agree it is very very important you don't "cheat" but also understand that there are parents out there doing much worse things than eating gluten here and there and the babies are in great shape!! Don't stress yourself....eat right from this point on...and just stay positive, I'm sure you're baby is fine :)

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Thank you so much for the responses. I have been doing much better! My concern right now is when I start breast feeding and the risk of accidental ingestion by cross contamination....Sarah, did you breast feed all your children?

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No. I tried with my oldest until 2 weeks when he became jaundice. I don't produce enough. But none of them were on "regular" formula. They all required a different version... soy, sensitive, etc.

Although, from what I understand if your diet is gluten free, you should be fine breastfeeding without risk to baby.

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I'm expecting #6 but have only recently been diagnosed but have been celiac for years. I had never heard of gluten with other 5 pregnancies. They all went well and they all nursed. It's difficult to learn how to nurse-you need support from others who have done it. And you need lots of rest and relaxation. And you don't need someone telling you that you can't. Talk to someone who really knows their stuff and supports breastfeeding like a midwife and they can answer all your questions. Contact La Leche League or some kind of breast feeding support group and counselors. One thing that helped me was knowing that the first few days may be hard and baby may not eat much but he'll be ok. Drink lots of water too! And eat gluten-free to the best of your ability!

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I realize you've had your baby already, but I wanted to respond in case anyone else reads this looking for reassurance :)

I got my first + blood test for Celiac when I was around 30 weeks pregnant with my 3rd child. I am pretty sure that was the only pregnancy I went through with undiagnosed celiac disease. I did not go gluten-free during my pregnancy. I tried to initially, but I was dealing with a tremendous amount of stress from my oldest son's hospitalization, my husband's crazy working hours, and moving to a new home, that I just could not put any effort into a new diet (and I didn't even know if I REALLY had celiac disease). I had my son 2 days before his due date and he weighed 9 lb 3 oz (and I am a small girl!). He obviously did not suffer from my celiac disease! I feel incredibly blessed! I also had not tested anemic.

It wasn't until my son was 13 months old that I had the endoscopy and it was confirmed that i have celiac disease. I breastfed him the whole time and still do (he is almost 14 months) nurse him 3 times a day. No problems with my milk supply and he has grown beautifully :) I will warn you that i craved carbs like crazy those first few months of breastfeeding, so if you really think you could have celiac disease stock up on some good gluten-free carby snacky options for the starving nursing mom stage :)

Oh and one last thing.. if you want to get an endoscopy while breastfeeding, they can use propofal to sedate you, which leaves your system sooner than the sedative they typically use :)

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My children are older. I believe that I was an undiagnosed celiac my entire life. All my pregnancies went well and I breast fed for one year with each child. They were wonderfully healthy, happy babies.

While I believe you have not harmed to your child I do hope you will give up gluten completely - you need to be healthy and strong to be the Mom you want to be now and in the future.

Find gluten free alternatives to whatever you are cheating with. I don't suggest eating a bunch of processed food - but far better to indulge in gluten-free treats than gluten filled ones.

Treat yourself well, stock up on something yummy and rest as much as you can!

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