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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Question On What To Expect Going Gluten Free
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Hello all. Was wondering what to expect going gluten free right away. I've been gluten free about a week and can say I don't feel as tired as I did just a week ago. However, today about lunch time, I all of the sudden felt tired. Right now I literally feel exhausted and my legs tingle. I don't know if I can expect to feel periods of highs and lows until healed or on diet a while or if I might have accidentally glutened myself, maybe?

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The next 6 months will be a roller coaster. One thing you need to watch is accidentally starving yourself because you don't have "safe" food near or with you. Learn to carry something with you at all times.

Everyone's journey is different. But generally, the first 6 months is up and down - don't panic unless you start to see a pattern.

Aaaaannnnddd....you are probably hitting withdrawal-which is exactly what you think it is. A suckey time when you are weaning off gluten and your body is resetting (the first of many times, probably).

Exhaustion is normal. Rest as much as you can.

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Thank you!

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Well, I fell asleep, almost - was that exhausted at seven! But now wide awake, although tired, super gasy, nauseated, stomach aches, and it won't quit making noises. The night isn't getting any better, and i guess the days will not, either. Thank you so much the head's up. I can, with certainty, say this stinks! :(

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Oooh. Not good.

Well, if you are gassy you may try digestive enzymes with meals. That will help you digest your food better. I like Enzymedica products.

Probiotics help, too.

Screen all supplaments for gluten!!!!

Are you eating milk products? You may consider dropping those for a while. Healing Celiacs can have trouble digesting milk temporarily or permanently while the villi heal.

Insomnia is unfortunately, normal, during healing. Sometimes it's a vitamin deficiency and sometimes it's a phase. Search this board for hints to help.

If your doctor didn't check your vitamin levels get that done - D's, b's, irons, cal/mag, k. Vitamin deficiencies can really affect your healing.

Hope you get some relief soon!

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Hang in there....everyone is different. I agree that it is like a roller coaster. There is a ton of info here and I'm learning a lot from everyone!

For me, the first month was the worst. I had really bad withdrawal headaches, moodiness, joint pains, tummy gurgling...it's like all the symptoms hit at once and bad too! It's only been a few months of gluten-free for me but I have already noticed some difference. I know it does take a while sometimes but with already noticing a difference I am hopeful :)

Good luck and hope you feel better quick!

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Thank you! I was up til 230am. Yuk! I didn't have vitamins checked. My dr. Told me nothing and didn't schedule me an appt. The nurse gave me my results and told me to continue my gluten free diet, I told her I wasn't even on one. I was pretty much on my own. I know I have low vitamin d. I've been struggling with that for years. I can ask to get a panel of them done. I am eating dairy. I swear my favorite ice cream is getting me through. :D

I take 1000iu vit d a day. I take a probiotic I have checked them and they are both gluten free. I feel better today. I guess I will keep watch and know each day will be a learning process.

It must take years to know what u can eat, what you can't, and how you know,if you are sick, tired, or accidentally glutened. Seems like I'll never learn it all and I'm going to have to hurt in the process of figuring it all out. No fun.

You all are the best. Thanks so much for all your help and advice.

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Thank you! I was up til 230am. Yuk! I didn't have vitamins checked. My dr. Told me nothing and didn't schedule me an appt. The nurse gave me my results and told me to continue my gluten free diet, I told her I wasn't even on one. I was pretty much on my own. I know I have low vitamin d. I've been struggling with that for years. I can ask to get a panel of them done. I am eating dairy. I swear my favorite ice cream is getting me through. :D

I take 1000iu vit d a day. I take a probiotic I have checked them and they are both gluten free. I feel better today. I guess I will keep watch and know each day will be a learning process.

It must take years to know what u can eat, what you can't, and how you know,if you are sick, tired, or accidentally glutened. Seems like I'll never learn it all and I'm going to have to hurt in the process of figuring it all out. No fun.

You all are the best. Thanks so much for all your help and advice.

I understand about the ice cream. I was addicted to Talenti Gelato. Still am if I let myself buy it. It's like crack.

Yes, you need your levels checked. Especially since you're already so low on d. Did they check your thyroid?

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Yep. Thyroid was fine. Checked it for what seems like 100 times. :)

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I see a thyroid stimulating hormone that has run 0.9 to 1.7 the last 3 times checked.

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