This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
I'm confused. You don't have celiac? Have you had a blood test or biopsy? Have you been diagnosed with DH?
What were you diagnosed with 9 years ago? If it was celiac or DH why have you only been gluten-free for 6 months?
We need a better picture of what's going on here to help you more successfully.
Enzyme Latiglutenase improves symptoms in some celiac patients, but which ones?Â Enzymes have shown some promise for treating celiac symptoms, but so far none has to improve histology or symptoms in celiac patients.
There are currently several efforts underway to develop successful commercial enzyme treatments for celiac disease. Efforts include looking at the digestive enzymes in plants, such as the papaya and star fruits, including such predatory plants, such as the pitcher plant.
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I am confused too. I appears that your blood panel was indeterminate, but that your NP had you on a grain free diet for five weeks prior. You went back on gluten for two weeks (recommendation is 2 to 4) for the endoscopy. Maybe it was not enough time for your antibodies to build up and start attacking your small intestine. Doctors can not say for sure that two weeks is enough. Probably for most, but maybe not all. I say this because I never even test positively on the TTG and EMA EVER (but my biopsies proved otherwise and my anemia resolved forever on the gluten free diet). The number of biopsies taken (6 or more recommended) and the location should be determined. I would ask for all medical and lab reports.
I think a second GI consult might be prudent.
Your symptoms? If you have celiac disease it can take a few MONTHS to feel better. Why? Most often mistakes are made in the diet. It happens. There is a steep learning curve. It flat out just takes time to heal. I think most members will tell you that healing does not happen that fast even though science tells us that villi regenerates in just a few days. There is usually a lot of collateral damage.
Finally, something is wrong. Maybe it is NOT celiac disease. I though for sure my niece had it, but Crohn's was found instead on a pill camera. She had consulted with four GIs!!!! Maybe it is NCGI which is determined after celiac disease has been ruled out. Then a gluten-free diet is in order to resolve the NCGI (Non celiac gluten intolerance or whatever they are calling it now.
So, keep advocating for your health.