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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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Possible Celiac, 6 Weeka Pregnant
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Hello, I have recently been told I could be celiac as severely anemic & carry the gene. They cant do gastro biopsy as im 6 weeks pregnant so don't want to put me under for it. I have decided to eat gluten free just incase as I dont want to not be absorbing vital nutrients for the baby. Im taking, iron, pregnancy supplement & calcium. Is there any advice on what else I should be doing/not doing? It has saddened me to hear of a lot of mis-carraiges & still births among celiacs so I really want to ensure Im doing everything possible for a healthy baby. Thanks very much!

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Did you have any Celiac antibody blood work done? Was any of it positive?

Most Celiacs need a comprehensive vitamin levels test: b's, D's, full iron panel, cal/mag, and k.

If you are deficient you need additional supplamentation other than a prenatal multi - like you ate supplementing iron.

You also may want to have your thyroid checked - tsh and thyroid antibody levels.

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Yes, please get your Vitamin D levels checked. My mother's celiac was triggered when she was five months pregnant with me....and I was born with Ricketts because she was Vitamin D deficient. Also, folic acid is very important when pregnant.

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Thank you for your prompt replies! They did antibody tests and they said they weren't suggesting a definite problem, also had thyroid and tsh and all was fine. I went in and specifically had a test to check my folic acid once I found out i was pregnant & that is ok too. I would now like to get my vit D tested as one of you suggested...I find this frustrating that I have to do my research and go back and ask for specific tests as they are not suggested. Anyway, thanks again & I will get on to the vit D. My first pregnancy was fine & resulted in a perfectly healthy child so I will do my best for this to be the same!

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    • Well, I would strongly recommend seeing a doctor (maybe an endo if your PCP is not thyroid savvy, but I have always used my PCP).   Are you sure you had the hypo-related thyroid antibodies tests (3 of them)?     It looks like you are hypothyroid.  You probably need thyroid replacement, but I am not a doctor!    Thyroid replacement will help you feel better.  My TSH is best at around a 1.  Anything over a 5 and I am wearing flannel PJ's and napping.  Ask for a physical examination for your thyroid to check for nodules and enlargement too.  You can be hypo, but not have Hashi's.  Get that endo appointment, if you can.    
    • On a gluten-free diet, my low iron resolved within months with supplementation.    I would ask your doctor to re-check your ferritin levels and antibodies at the three month mark since you can not judge by symptoms.  I would also ask for a bone scan.  I fractured two vertebrae doing NOTHING two months into my celiac disease diagnosis.  Found out I had osteoporosis.   I would think that if you were dairy intolerant, you would experience all the classic symptoms of gas, bloating, etc.  If you are not, I would not worry about dairy.  Not all celiacs are dairy intolerant.   Go eat some cheese!   Follow-up testing recommendations: http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/
    • Elk is gluten free like all unprocessed meat.  Okay, everyone said that, but extra validation never hurt.    You should ask who butchered it though.    Lots of my family members hunt (yes, they work and are dedicated to the National/Federal Parks and Land, but culling herds is a necessity in time of drought and over population).  Their butcher is local and does not use gluten in their seasonings (e.g. Sausage).  So ask to be safe.  
    • Studies have shown that saturated fats are not unhealthy and are an important part of our diet for hormonal health, don't avoid fats only because they are saturated because they are safe and usually healthy.
    • Thx so much Cycling lady, I appreciate your feedback!. My issue is that I don't have GI issues, just weight loss and low iron. I understand low iron takes ages to fix (I'm on prescription iron) What do you mean each person has to determine what is safe or not. How can I tell? I drank the beer initially and no symptoms but I'm sure my Villi are suffering if this beer isn't good for me. I have stopped drinking it, but concerned about other things. This is one tough disease. People ask me if I'm dairy intolerant, how do I know? I'm worrying about what I don"t know.  
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