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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How To Overocome Frustration, Fear,
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6 posts in this topic

:(I have felt that My family was preferring gluten to me. I just found out that my family feels rejected too. Which is more important, my health or them? Can I treat them kindly even though I feel rejected, frustrated and misunderstood?

I hope the Lord will help me to do just that. I don't feel like I can heal without their supporting me.

How does one remember that they do not deserve anything?

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:(I have felt that My family was preferring gluten to me. I just found out that my family feels rejected too. Which is more important, my health or them? Can I treat them kindly even though I feel rejected, frustrated and misunderstood?

I hope the Lord will help me to do just that. I don't feel like I can heal without their supporting me.

How does one remember that they do not deserve anything?

I don't have an answer for your question, but I did want to stop and send a {{{{HUG}}}} your way. Finding out one has this condition and making all the required life changes is a BIG deal, and a stressor for everyone in different ways.

It sounds like you are a person of faith, so I hope you won't be offended if I respond from my faith...sometimes we are called to endure things in order to build and strengthen us; if we keep our eyes on the Author of faith and keep our trust and obedience focused there, we can get through most anything!

Hope you are feeling a little better about things today!

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It is tough at first. It is a big adjustment for you and for them. It will get easier in time when you are feeling better and your family can see the differences in you.

(((((((((((((((((((((((((((HUGS))))))))))))))))))))))))))))))

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I have to second the thought that sometimes we are given hard things in order to help us become better people. When I look back on my life I see that through every hard thing I was given, I learned something valuable. This diagnosis is a struggle for us, and we go through so much that it can be hard to appreciate that it can be hard on friends and family too. To be perfectly honest, I have a hard time having patience with others when they say or do really monumentally stupid things.

If your family is also struggling maybe it would be helpful to sit down and really talk things out. Sometimes when people take the time to really try to understand where the other person is coming from it can really smooth things out.

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Since you seem to be a person of faith, as mentioned here a few times, I will respond with something I learned in my faith that has helped me in all aspects of my life, but I want to preface this by saying im not trying to force my faith on anyone. When I come across a situation like this I have to remind myself that although people say I am the one with the "impairment", it is only a physical problem that in the grand scheme of things, should not hinder others views of us. However, this is a naive way to live because someone somewhere will always have a problem with it because they don't understand. So, my advice would be to stand up for yourself and show your family unconditional love. Keep your food separate from theirs and if you cook family meals, use separate pots/pans/utensils. Cook your food last so that you can take the time to protect yourself. No matter how much they try to push you around on the subject, show them that the obstacles can be overcome and you still care regardless. After a while, they will catch on. No one likes change, because change signifies having to adapt, and no one wants to leave their comfort zone.

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:(I have felt that My family was preferring gluten to me. I just found out that my family feels rejected too. Which is more important, my health or them? Can I treat them kindly even though I feel rejected, frustrated and misunderstood?

I hope the Lord will help me to do just that. I don't feel like I can heal without their supporting me.

How does one remember that they do not deserve anything?

Hi Diana,

Both your health and your family are important, it is not a matter of which is more important. You need to be healthy and they need to adjust a little to the reality of what it takes for you to be healthy. People often are slow to adopt change and many don't welcome it at all. But they can learn to do things differently just as you can learn to eat differently. It may not be an over night process though, it could take a while.

It is not a bad thing to let them know how you are feeling. They have feelings also and sharing them can help.

Maybe they would be willing to read the FAQ or newbie info threads? Or print it out for them to read? It might help them understand better.

FAQ Celiac com

http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Celiac Newbie Info 101

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    • Yes you are correct. Interestingly my genes in the US are thought to be more associated with RA. Which is something they thought I had prediagnosis. In the Middle and far East they are more likely to be associated with celiac and they are rare genes in Caucasians which I am according to my parents known heritage. I always caution folks not to take the gene tests as absolute proof they can't have celiac because I had one child who had positive blood and biopsy, did well on the diet, then got genes tested in young adulthood and was told they could never be celiac. Of course that resulted in her abandoning the diet. I worry but hope someday doctors will realise we still have a lot to learn about the genetics of this disease. PS While I still have some deformity in my hands my joint pain resolved after a few months on the diet.
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    • I can't help thinking that all of this would be so much easier if the doctor I went to 10 years ago would have done testing for celiac, rather than tell me I probably should avoid gluten. He was looking to sell allergy shots and hormone treatment, he had nothing to gain from me being diagnosed celiac. I've been messing around ever since, sort-of-most-of the time being gluten free but never being strict about it. I really feel like three months of eating gluten would do my body a lot of permanent damage. I've got elevated liver enzymes for the third time since 2008 and no cause can be found which might be good, I guess. I wonder if it would be reasonable to do the HLA testing first, to decide if I really need to do the gluten challenge. If the biopsy is negative, that is. Squirmingitch, love your tag line about dogs in heaven. We lost the best dog ever last December. I sure hope all my dogs are there waiting for me!
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