• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Did I Do A Bad Thing?
0

23 posts in this topic

Recommended Posts

jasonD2    11

I was in germany for 3 weeks and paid very little attention to what i was eating and where i was eating. last time i was in europe i was so obsessed with the food issue that i had a minor breakdown and it really ruined my trip and i lost a lot of weight. this time i threw caution into the wind and ate whatever i wanted (except things that obviously had gluten)...i had french fries and brat's from street vendors, ate chocolate in belgium and went to a german restaurant and ate a huge plate of fried pork, fries and sauerkraut. for the most part i felt fine but i am now a few days back in the states and my stomach feels a bit off. is it possible i really messed myself up?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


lynnelise    109

It's hard to tell if gluten was a factor, some people find that their stomach will be off in response to traveling alone. You are eating different foods than normal, possibly at different times than normal. Lots of factors can come into play. I would just go back to basics for a few weeks until everything feels normal again.

Share this post


Link to post
Share on other sites
dani nero    49

What symptoms do you usually experience? You might be feeling off because you're worried you did a bad thing. Honestly.. and it's just what I think.. you go on vacations to have a good time, and not experience nervous breakdowns.. so even if you did get yourself mildly glutened, you still lived, enjoyed, and experienced so many things, and it's not like you can change anything about it now. Besides, you don't do this every other month or anything.. it's just this time right? If your off-ish-ness gets worse you'll know there was contamination, otherwise, I think you should just enjoy the memories you've gained :-)

I heard from board members that when glutened, the best you can do is drink lots of water and double up on probiotics for a week. I hope you don't get worse though!

Share this post


Link to post
Share on other sites
kareng    1,992

Jason,

Maybe you don't actually have Celiac? You have had some nasty intestinal critters. Perhaps you have finally healed from them? :o

Share this post


Link to post
Share on other sites
MitziG    94

I second what Dani said. You survived- and most likely haven't done lasting damage. And you didn't intentionally eat gluten. In the same situation, I would probably do the same rather than trying to explain to street vendors who speak a different language what gluten is!

Share this post


Link to post
Share on other sites
Ads by Google:


jasonD2    11

yeah i really enjoyed myself and it was great to just sit down and eat without making a big stink :)

Share this post


Link to post
Share on other sites
mamaw    133

good point Kareng! ANd if by chance you really do have celiac (from being celiac for a long time) I would say you were playing Russian Roulette with your health...

Share this post


Link to post
Share on other sites


Ads by Google:


Victoria6102    12

If you have celiac, you can't eat gluten, period! You must ALWAYS be on guard and make sure what you are eating is not CCed! With the right planning and preparation, you can travel anywhere and eat gluten free. It may cost you more time in preparing, searching for things to bring with you, and doing research. but just bring your own food that won't perish and a frying pan. When you arrive at a destination, pick up some chicken, veggies, and fruit to supplement what you've brought. It can be done, and your health is worth it! Cheating is a big no-no for people with celiac! Not trying to be harsh, just telling you the truth:) heal up quickly :)

  • Upvote 1

Share this post


Link to post
Share on other sites
jasonD2    11

well i dont know if i have true celiac cause i was never diagnosed. i went on the gluten-free diet before i had a biopsy and pillcam and decided to not do the challenge since a world renowned celiac dr told me its barbaric. my blood test and biopsy were negative while on a "gluten light" diet - only positive i ever had was on the stool gliadin test but that can also indicate an intolerance which is what my mother has - so i live my life gluten-free but refuse to not eat out and enjoy myself and if i get an occasional cc so be it

Share this post


Link to post
Share on other sites


Ads by Google:


MitziG    94

Gluten intolerance is the most likely diagnosis- celiacs are the minority on this board. In that case- you need to listen to your body. If you continually get cross contaminated, you are going to start feeling like crap, all of the time.

On the other hand, some with gluten intolerance are able to tolerate smmall amounts of gluten without issue. You may be one of them.

It is going to be trial and error for you, since you are undx. I just hope you will pay attention to your body's signals and recognize when there is a problem, because long term damage from gluten is not fun!

Also, since you are not dx celiac, please do not refer to yourself as celiac around others. Celiacs must be extremely cautious about cross contamination, and when people observe a "celiac" who can "handle a little bit of gluten" they assume that we can too, and they are less understanding of our needs and often careless in our food preparation.

  • Upvote 1

Share this post


Link to post
Share on other sites
love2travel    396

Gluten intolerance is the most likely diagnosis- celiacs are the minority on this board. In that case- you need to listen to your body. If you continually get cross contaminated, you are going to start feeling like crap, all of the time.

On the other hand, some with gluten intolerance are able to tolerate smmall amounts of gluten without issue. You may be one of them.

It is going to be trial and error for you, since you are undx. I just hope you will pay attention to your body's signals and recognize when there is a problem, because long term damage from gluten is not fun!

Also, since you are not dx celiac, please do not refer to yourself as celiac around others. Celiacs must be extremely cautious about cross contamination, and when people observe a "celiac" who can "handle a little bit of gluten" they assume that we can too, and they are less understanding of our needs and often careless in our food preparation.

AMEN! It drives me crazy to observe those who say they are celiac but then laughingly proceed to eat a gluten-laden cookie. I treat my celiac diagnosis as a potential life-threatening illness (not imminent but it has potential to kill later on) and take it very seriously. This does not mean that I talk about it with others or draw attention to it (I despise that). It just means that it is a very serious thing.

BTW, I have traveled to Europe a few times now since my diagnosis and it can be done without cheating. All it takes is great planning.

Hopefully you do not have celiac but if you find out that you do, also know it is not the end of the world. Even when traveling to different countries/cultures/continents. :)

Share this post


Link to post
Share on other sites
dani nero    49

BTW, I have traveled to Europe a few times now since my diagnosis and it can be done without cheating. All it takes is great planning.

Since you're an experienced traveler, can you give an example scenario for educational purposes. Let's say (for example) you're going to Italy in a month. What would your planning involve, and how do you do it. My last trip to London involved a lot of starvation. I came back feeling, acting and looking like a hungry bunny, and I think I did manage some CC in the end.

Share this post


Link to post
Share on other sites


Ads by Google:


BabsV    19

Since you're an experienced traveler, can you give an example scenario for educational purposes. Let's say (for example) you're going to Italy in a month. What would your planning involve, and how do you do it. My last trip to London involved a lot of starvation. I came back feeling, acting and looking like a hungry bunny, and I think I did manage some CC in the end.

I've been to Rome and Athens since my diagnosis. Both times I made sure to have the proper translation cards (I ordered the ones from Triumph Dining -- they are great!), and I did some online research about possibilities of buying gluten-free food (do they have it, where to get it, e.g. natural food shops, pharmacies, etc.), any possible gluten-free restaurants, general country awareness. You really have to look at the cuisine of where you are going to see how much explanation you might have to endure with servers or chefs. Both trips I brought food with me -- canned tuna, Kind bars, peanut butter, beef jerky, etc., and my family stayed in apartments versus hotels so that I knew that preparing my own food was an option if necessary.

In Greece they weren't as aware of Celiac but they were very very good about paying close attention to the cards and having Chefs make suggestions about food. Luckily it was easy to stick to grilled meat and lots of veg which were naturally gluten-free. We even went on a day-long tour to Delphi and the tour operator called ahead to the restaurant to make sure they could prepare something gluten-free for me -- I ended up with a gorgeous salad, a grilled pork chop and the offer of fresh fruit for dessert. I had no trouble in restaurants but we did stick to "nice" places that were more expensive but it paid off and I didn't get sick.

Italy was absolute gluten-free heaven. All I had to do was say I had Celiac and every single server (even the young guys in the gelato shops!) knew exactly what it was, what I could eat off the menu, and what to avoid. We ate out for lunch and dinner every day and while it did start to get expensive by the end it was such a treat to be able to go out and get a great meal and not have to worry about being sick. I basically brought back all the food I had taken with me except for one can of tuna and some beef jerky that I ate on the plane.

As for the plane trips I took along a ridiculous amount of food because there was no gluten-free meal option. I had no trouble with the food in my carry-on.

I think the best way to approach traveling is to gather as much information as you can before you depart, have those dining cards in the local language and don't be shy about using them, plan/prepare for having trouble finding food so you've got back-up whether it is food you bring with you or having to stay in a place where you can prepare your own food, know you may end up spending more money on eating out than you did pre-diagnosis (in Rome it wasn't like I could pop into one of the little pizza stalls and grab a slice for a couple euro) and then just hope for the best. So far that has worked for me.

Hopefully it will work on our long flights back to the States and the travel I have to do there before getting back to our house!

Share this post


Link to post
Share on other sites
love2travel    396

Since you're an experienced traveler, can you give an example scenario for educational purposes. Let's say (for example) you're going to Italy in a month. What would your planning involve, and how do you do it. My last trip to London involved a lot of starvation. I came back feeling, acting and looking like a hungry bunny, and I think I did manage some CC in the end.

We have spent each May and October in Europe for several years (we own a house in Croatia). Before that we traveled all over to many countries. We just returned from Italy less than two weeks ago (have been there about 10-12 times now) and it is an incredibly easy place to eat and find food. My biggest concern when traveling to Europe always is the long-haul flights (I have severe chronic pain), flight delays, eating at airports. We've experienced so many delays that it's not even funny. We have a small daypack that contains:

- Kind bars

- dried fruit and nuts (so far they have allowed it)

- Skittles

- homemade protein-type bars

Some airports have zero options except for the odd sad-looking brown banana or wilted salads that are not filling. The odd time I have even resorted to purchasing potato chips. And I drink a LOT of water.

Sometimes my husband and I eat at very refined restaurants for several reasons; first of all, we love experiencing superb food. Second, it is often safe - at least far more safe than fast-food joints and chains (which I have not been to in about ten years). Thirdly, it is an excellent way to enjoy that particular culture's food. I'm a food person so know the top restaurants in the world. For good restaurants I call far in advance and speak with the chef or manager (many speak English).

However, we do not always eat like this as it is obviously impractical. We also love the ma and pa local authentic places in tiny villages. We try to contact them in advance as well and sometimes find it difficult with the language thing. And you cannot always plan where you will be at any given time when on holiday. So, each time we go to a restaurant I take along restaurant cards in that language explaining I have celiac and cannot have such and such. If the people have no clue what I am talking about we will not eat there. But if they smile knowingly and can assure me that indeed they are very familiar we feel safe. Thankfully in Croatia most places do not have deep fryers like here - instead, they grill most of their food (i.e. fresh fish, seafood, veg). Easy.

I've been to London but not since my diagnosis so cannot comment on it specifically. We are going to Paris in September which will be tricky as the dinners are already arranged (my husband's got meetings there and spouses must attend - what a hardship!). But I told them I have celiac already - the organizers are professionals and know what they are doing. But walking by all the bread and croissants - ouch!

After returning from our most recent trip I did not feel like I missed out at all (except for gelato - many places in Italy it is NOT gluten free I found out). I was satiated and satisfied. gluten-free products are so easy to purchase there and people are far more aware than here (although that is also improving). In restaurants I just order naturally gluten free stuff and enjoy (after speaking with the chef, of course). In fact, in Italy celiac was a non issue. It was not problematic whatsoever.

Share this post


Link to post
Share on other sites
dani nero    49

I still don't get it. Even if you ask them about being gluten-free or explain it to them.. what if they don't get the idea about CC from the pans and you get glutened. How do you the waiters don't understand that if they touch bread or whatever they can't handle your food after.. or am I just taking CC too seriously?

Share this post


Link to post
Share on other sites
love2travel    396

I still don't get it. Even if you ask them about being gluten-free or explain it to them.. what if they don't get the idea about CC from the pans and you get glutened. How do you the waiters don't understand that if they touch bread or whatever they can't handle your food after.. or am I just taking CC too seriously?

If I have to explain it to them I cannot eat there. Only if they can assure me in their own words (i.e. offer to describe how they handle CC) do I eat there. High-end places train their staff far better than most places. But you are right - there is always a risk. I so rarely eat out other than travel (there are no places safe within a 3-hour radius of here). No, you are not taking CC too seriously. You should! ;) Believe me - I am extremely picky when eating out - my questions can be exhaustive. But I do it anyway and am sure to tip extra! :)

In Italy they truly get it. In fact, it is mandatory that each child gets tested for celiac by age 6! Many restaurants there have separate stations, designated pots for pasta, they wear gloves... By now many places even remember us (i.e. in Venice) that they automatically bring out an amuse bouche that was created gluten free just for me before even asking. Then they carefully explain yet again what they do for safety. There's one place we go to where they do not even serve bread - just grilled fish, meat and veg. It is a lovely spot and refined and delicious. The grill master is out where you can watch. Not that there is any CC on the grill but still. In Italy they rarely use things like Worcestershire sauce or soy sauce for marinades - it is often simply olive oil, garlic and herbs. Their ingredients and use of them are far different.

Share this post


Link to post
Share on other sites
dani nero    49

If I have to explain it to them I cannot eat there. Only if they can assure me in their own words (i.e. offer to describe how they handle CC) do I eat there. High-end places train their staff far better than most places. But you are right - there is always a risk. I so rarely eat out other than travel (there are no places safe within a 3-hour radius of here). No, you are not taking CC too seriously. You should! ;) Believe me - I am extremely picky when eating out - my questions can be exhaustive. But I do it anyway and am sure to tip extra! :)

In Italy they truly get it. In fact, it is mandatory that each child gets tested for celiac by age 6! Many restaurants there have separate stations, designated pots for pasta, they wear gloves... By now many places even remember us (i.e. in Venice) that they automatically bring out an amuse bouche that was created gluten free just for me before even asking. Then they carefully explain yet again what they do for safety. There's one place we go to where they do not even serve bread - just grilled fish, meat and veg. It is a lovely spot and refined and delicious. The grill master is out where you can watch. Not that there is any CC on the grill but still. In Italy they rarely use things like Worcestershire sauce or soy sauce for marinades - it is often simply olive oil, garlic and herbs. Their ingredients and use of them are far different.

Thanks for your input. Did you ever compose a travel 101 thread by the way? If you have I should read it, and if you haven't.. perhaps it wouldn't be a bad idea to make one for us noobs who want to get out :-)

Italy sounds like celiac-haven. I just stated italy as a random example but didn't really expect they would be even safer than sweden!

Share this post


Link to post
Share on other sites
love2travel    396

Thanks for your input. Did you ever compose a travel 101 thread by the way? If you have I should read it, and if you haven't.. perhaps it wouldn't be a bad idea to make one for us noobs who want to get out :-)

Italy sounds like celiac-haven. I just stated italy as a random example but didn't really expect they would be even safer than sweden!

You are most welcome, Dani. Believe me - our first trip since my diagnosis I was terrified! All that worry for nothing. ;) Travel in countries other than Italy may prove to be more difficult, of course. For example, I have not been back to Germany, the UK, Austria, Switzerland, etc. since I was diagnosed 15 months ago. Croatia had its moments (they have far less gluten-free products but they do have more than our trip in October) of uncertainty but if not satisfied we chose to move on. One off-the-beaten-path place was so quaint and utterly beautiful but the owners/cooks did not speak a lick of English. So, we moved on...

Italy is known to be one of the best countries on the planet (in addition to Sweden) as far as awareness goes. Great place to travel. I know you were only using it as an example, but if you (or others) decide to travel, it is a great place to start. :)

Share this post


Link to post
Share on other sites

Jason, I'm glad you had a good trip! It sounds like heaps of fun :)

Dani, London is great, if you are there again, M&S food have lots of things you can have on the go and they are labelled really well. I found wait staff in the UK pretty knowlegable. I'm sorry you had a hard time.

To add to the others, I research locations of gluten free restaurants, supermarkets where I can get fresh food, public transport to get me to those supermarkets if I'm on my own, and I try to get hotels with a fridge. I carry food with me so I can eat before or after if the place isn't suitable. If I'm meeting up with friends i like to have a choice of a few restaurants I know I can eat at so they can choose from one of them. I ask where we'll be eating out if someone else is picking so that I can research it in advance.

Once you're on the ground somewhere, if you haven't done this research in advance it's tough because it can take hours and if you're posting the question to forums you have to wait for replies, and you don't have that kind of time when someone is nagging at you to go find somewhere to eat right now. But if you have done the research, you can be all 'oh for sure, there's a nice little place just down the street from our hotel....'. Picking a place in a strange town is hard at the best of times and I've found people are just happy if someone will make a decision :)

If I have to explain it to them I cannot eat there. Only if they can assure me in their own words (i.e. offer to describe how they handle CC) do I eat there

And yes, this is my standard too. I wouldn't usually go somewhere I hadn't investigated in advance, but if I did and say "I need to get something gluten free" and the reply is "huh" then I'll say cheerfully "oh, not to worry, I'll just have a drink" and leave it at that. Depending on the situation, I'll either not eat and my companions will or we'll all leave and eat elsewhere. But I am so not going to get into it with them because to keep your custom they will likely try and re-assure you that it's fine and that can lead to naught but pain and anguish :)

Share this post


Link to post
Share on other sites
love2travel    396

Jason, I'm glad you had a good trip! It sounds like heaps of fun :)

Dani, London is great, if you are there again, M&S food have lots of things you can have on the go and they are labelled really well. I found wait staff in the UK pretty knowlegable. I'm sorry you had a hard time.

To add to the others, I research locations of gluten free restaurants, supermarkets where I can get fresh food, public transport to get me to those supermarkets if I'm on my own, and I try to get hotels with a fridge. I carry food with me so I can eat before or after if the place isn't suitable. If I'm meeting up with friends i like to have a choice of a few restaurants I know I can eat at so they can choose from one of them. I ask where we'll be eating out if someone else is picking so that I can research it in advance.

Once you're on the ground somewhere, if you haven't done this research in advance it's tough because it can take hours and if you're posting the question to forums you have to wait for replies, and you don't have that kind of time when someone is nagging at you to go find somewhere to eat right now. But if you have done the research, you can be all 'oh for sure, there's a nice little place just down the street from our hotel....'. Picking a place in a strange town is hard at the best of times and I've found people are just happy if someone will make a decision :)

And yes, this is my standard too. I wouldn't usually go somewhere I hadn't investigated in advance, but if I did and say "I need to get something gluten free" and the reply is "huh" then I'll say cheerfully "oh, not to worry, I'll just have a drink" and leave it at that. Depending on the situation, I'll either not eat and my companions will or we'll all leave and eat elsewhere. But I am so not going to get into it with them because to keep your custom they will likely try and re-assure you that it's fine and that can lead to naught but pain and anguish :)

....and I neglected to mention fresh markets. When we travel I head to the main square where there are often fresh markets with wonderful produce. We did that nearly daily on our last trip. Great place to learn more about what grows there, food culture and get something delicious to eat as well.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,896
    • Total Posts
      938,531
  • Member Statistics

    • Total Members
      65,804
    • Most Online
      3,093

    Newest Member
    Junimoon
    Joined
  • Popular Now

  • Topics

  • Posts

    • Most physicians follow the joint commission’s guidelines on prescribing HTN medications which usually begin with a diuretic and calcium channel blocker (the amlodipine) - see below. Is it possible that your bp was still not controlled on the CCB (amlodipine)? So the ARB was added? Again, I’d just like to say that just bc a drug does have certain adverse effects does not mean you will have them, but I understand if you would not even want to take the chance, given a previous history of celiac disease. http://www.aafp.org/afp/2014/1001/p503.html “In the general nonblack population, including those with diabetes, initial anti-hypertensive treatment should include a thiazide diuretic, calcium channel blocker, angiotensin-converting enzyme (ACE) inhibitor, or angiotensin receptor blocker (ARB). In the general black population, including those with diabetes, initial treatment should include a thiazide diuretic or calcium channel blocker. If the target blood pressure is not reached within one month after initiating therapy, the dosage of the initial medication should be increased or a second medication should be added (thiazide diuretic, calcium channel blocker, ACE inhibitor, or ARB; do not combine an ACE inhibitor with an ARB). Blood pressure should be monitored and the treatment regimen adjusted until the target blood pressure is reached. A third drug should be added if necessary; however, if the target blood pressure cannot be achieved using only the drug classes listed above, antihypertensive drugs from other classes can be used (e.g., beta blockers, aldosterone antagonists). Referral to a physician with expertise in treating hypertension may be necessary for patients who do not reach the target blood pressure using these strategies.” Drugs for BP in different classes work by different mechanisms. It may be worth it to print out those huge, long drug information sheets and go over them with a fine toothed comb. As for CoQ10, have you checked for coupons online? Can your doctor write you an Rx and get your insurance to pay? They might say it’s on OTC and you have to pay out of pocket, but it may be worth it to find a way around that - would a prior authorization do the trick? I don’t know, just bringing up the questions. In the report you cited, these concluding words were to me, chilling:
      “Therefore, we suggest the possibility of a class effect.” Losartan, olmeseartan - doesn’t matter. And I'll say it again, there must be a way to disseminate this information more widely as I had no idea about this adverse effect, and never heard any docs speaking about it either. It really warrants wider sharing. Finally, one person who is often an overlooked resource is your pharmacist. They have just tons of knowledge and should be able to talk to you in some depth if asked, in an articulate, easy to understand way. They may even be able to do some digging and research for you. Plumbago
    • Plumbago et al, Thanks for letting me know  about the "artan" drugs being ARBs. I think Cyclinglady was right the Losartan research is not free and thus not public. I saw the link with no abstract but wanted to read it to confirm as you noted in your ETA that it was another "Artan" drug Losartan causing the problem. I believe it is. I found a great (after more digging) review of all the "artans"/ARBs or most of them about whether they can contribute to sprue symptom's in addition to Benicar. here on wiley as studied by the alimentary pharmacology and therapeutic journal (AP&T) for short. http://onlinelibrary.wiley.com/doi/10.1111/apt.14176/full I wish I knew how to post the able alone it is very informative.  Please scroll over the table to the end of it since it even tells how long to expect before your sprue symptom's/conditions improve IF the "artan" drug is causing your symptom's which I find the most helpful thing about the table.  They also note histological feature (degree of villi blunting) to expect on biopsy. They note Losartan can cause "total atrophy of duodenal villi" by their reporting. I also recently had an issue with my potassium levels so I feel sure it is the Losartan. I remember reading a study about how losartan was better at the "chronic cough" I had developed using Lisinopril so I changed to Losartan a few years ago . . . now I find I could of been making my GI symptom's worse. But to answer  your other question since I began taking Folic Acid a few months ago my BP numbers went down to a healthy level of 120/80 or less sometimes . . . but with medicine. I had already been thinking I wanted to try get off the BP medicine (for good) so this is more motivation. C0q10 worked well but it is too expensive for me to take all the time! I called my doctor to have them put me back on Amlodipine/Norvasc and I can't remember why I changed off that medicine to begin with now.  I do remember needing two medicine's back then to control my BP so maybe we stopped the Norvasc instead of the Linsinopril. But now that they have put me back on Norvasc I hope my potassium levels will correct themselves. I just don't feel safe anymore taking Losartan after learning it could be making my GI symptom's worse or causing the to be unreliable. I first thought my touch of D. was from an antibiotic round but when kefir didn't get me back on track I suspected something else when my Vitamin D levels showed up low too again! Thanks everybody for ya'lls great suggestions and good research on my behalf. I also recommend this verywell article if you are still having GI problems and you suspect an "artan" like ARBs BP medicine and looking for a medicine that might have less severe  or more manageable symptom's for your lifestyle because it comprehensively list's the medicine's by drug types. https://www.verywell.com/hypertension-drugs-1745989 no medicine is without a side effect as (I) am learning but I never thought sprue would be one for my BP medicine and why I prefer Vitamins when I can find out which one too take. Now that I have the Norvasc approved as a replacement for the Losartan I might see if my BP goes up again if I stop my medicine all together as I was hoping the Folic Acid might help me with it (without medicine) and it explains why I was low in Folic Acid to begin with again. posterboy,    
    •   Ironic, We went entirely gluten-free in our home after 2016 for how bad my neurological , joints, mood gets now in addition to my former gi, skin, and other issues . My son shows signs of my early symptoms and voluntarily went off gluten, corn, and milk like me as he did his own food like diary symptom tracking. My daughter continues on gluten outside the home. We warn her of our concern for at times in toddler hood she was constipated and would bloat.  We asked their Dr to test them as I was undergoing my testing and she said no until I had my diagnosis. As we know these things take time and my son went gluten-free . He said after watching mom on my gluten challenge that he will not go back on it .  We await technology further research and we silently watch our soon to be teen girl for we know even if tested negative it can show up one day.  She says I know mom I know. The more Whole Foods here in the home we notice she actually craves gluten / processed foods less and is slowly transitioning as well.  Does your child also naturally eat less gluten and processed as well away from home? I wonder if the taste buds / craving change as the parents diet changes food options.  Thoughts?
    • Funny though, my brother and I were just discussing this. He has celiac and both his son and him are gene positive. Both were TTG/EMA negative but never tested for DGP. My brother had damage on endoscopy. They have not scoped his son. He feels his son is symptomatic but not his daughter.  I have conflicting positive and negative DGP, recent damage on biopsy and negative TTG/EMA. Two years ago my son had negative TTG and DGP. No EMA. I plan to have him gene tested and full antibodies screened again.  My brother has opted to have his children follow a gluten-free diet. I am currently allowing my son a normal diet.  But my own chaos with diagnosis, and my brother's too because he was TTG negative, makes me ultra sensitive to the possibility.  My son's ped doc has a  daughter who was recently diagnosed with celiac.  it was in the family so her mom, my son's doctor, suspected it as soon as she started getting digestive issues and losing weight.  she pretty much told me that she was glad that they didn't put her on a gluten-free diet as a child so she can enjoy eating the things she wanted to Throughout her life.  I have to say I agree to a large extent. There are many diseases that we could get At anytime. we cannot change our lives for that reason alone.  However that being said, my family has both thyroid disease and multiple sclerosis as well.   I know all too well the naive statements and assumptions that doctors can make in the face of science still working to find conclusions.  There are other types of TTG the doctors don't typically test for.  I am well aware of this, and sensitive to it. As a parent, I'm going to allow my son to continue on a normal diet for now, but we are going to pursue testinG  And I'm going to watch it very closely.  
    • It might generate based on traffic searches  or posts etc. My guess. I read them and respond because I wasn't on here as a member in 2012. I only use to visit then. So it's new to me V. happy friday   😋  
  • Upcoming Events