• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

My Mom
0

7 posts in this topic

Recommended Posts

My mom has been suffering from all kinds of problems for years. She has been diagnosed with Fibromyalgia and Bipolar disorder, Afterwards I was diagnosed with Celiac and so she got herself tested for it as well. Well, the blood test came back negative but I still feel very strongly that she has it as it would explain not only the problems she has been diagnosed for but also the undiagnosed. Is it possible that it was a false negative? My uncle after hearing that I had gone gluten free also went gluten free (without seeing a doctor) and has claimed it has made him feel much better. It all just seems too convenient, anyone have thoughts on this?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


squirmingitch    494

Nick, does your mom live in the same town as you & did she see the same doc for the blood tests? Often the full celiac panel is not ordered. There should be 6. She could have had a false negative or a full panel may not have been ordered. Can you get a copy of the test results along with ref. ranges & post them here?

Even if your mom saw the same doc as you -- did you get a full panel or did you just get lucky & get a positive from less than the full panel? Catch what I'm saying?

Well, as to convenient ---- one in 133 people has celiac disease. And look at my sig. line --- how about 2 of us in the same house not only with celiac but presenting with dh (dermatitis herpetiformis - the celiac rash)?

And welcome to the board Nick!

Share this post


Link to post
Share on other sites

Nick, does your mom live in the same town as you & did she see the same doc for the blood tests? Often the full celiac panel is not ordered. There should be 6. She could have had a false negative or a full panel may not have been ordered. Can you get a copy of the test results along with ref. ranges & post them here?

Even if your mom saw the same doc as you -- did you get a full panel or did you just get lucky & get a positive from less than the full panel? Catch what I'm saying?

Well, as to convenient ---- one in 133 people has celiac disease. And look at my sig. line --- how about 2 of us in the same house not only with celiac but presenting with dh (dermatitis herpetiformis - the celiac rash)?

And welcome to the board Nick!

Wow thanks, She did not see the same doctor, and I am not sure if the full panel was ordered for her or myself. Regarding her test results, I will ask her if she still has them. She was tested a few years back, but perhaps she can get a copy from her doctor. When she was tested negative, my knowledge of the disease and its symptoms was much less than it is now so I dismissed my suspicions at the time. Thank you for your response!

Share this post


Link to post
Share on other sites
squirmingitch    494

Wow thanks, She did not see the same doctor, and I am not sure if the full panel was ordered for her or myself. Regarding her test results, I will ask her if she still has them. She was tested a few years back, but perhaps she can get a copy from her doctor. When she was tested negative, my knowledge of the disease and its symptoms was much less than it is now so I dismissed my suspicions at the time. Thank you for your response!

Ohhhhh, so she wasn't tested AFTER you? She was tested a few years ago? She needs to be retested & with today's tests. Okay, here is the full panel TODAY:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The DGP test was added recently to the full panel.

So she needs to make SURE the doc runs ALL those tests on her.

AND she needs to inform her doc that HER SON recently tested positive & was diagnosed celiac. That should make a big diff. to her doc & should make him not argue with her about re-testing her.

Share this post


Link to post
Share on other sites

Ohhhhh, so she wasn't tested AFTER you? She was tested a few years ago? She needs to be retested & with today's tests. Okay, here is the full panel TODAY:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The DGP test was added recently to the full panel.

So she needs to make SURE the doc runs ALL those tests on her.

AND she needs to inform her doc that HER SON recently tested positive & was diagnosed celiac. That should make a big diff. to her doc & should make him not argue with her about re-testing her.

I'm sorry I must have caused a miscommunication, she was tested after me. I tested positive around eight years ago. She tested negative around five years ago.

Share this post


Link to post
Share on other sites
Ads by Google:


squirmingitch    494

Ah, I see. So we're back to where we were before. If it was 5 yrs. ago though then she certainly didn't get the Deamidated Gliadin Peptide (DGP) IgA and IgG test b/c that has recently been added to the full panel. And if I were taking bets, I'd bet she didn't get the full panel even w/o the new DGP.

Even if she doesn't still have a copy of the tests she should be able to get another copy from her doc. Tell her she needs to make sure that it has the ref, ranges on it also. Then post it here. We have members who are very good at interpreting those test results.

Share this post


Link to post
Share on other sites
Roda    186

She may have been negative 5 years ago and could end up with a positive test now. And even if she doesn't test positive gluten still could be a problem. My youngest son tested negative after I was diagnosed. Two years later he had positive blood work.

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,859
    • Total Posts
      938,353
  • Member Statistics

    • Total Members
      65,752
    • Most Online
      3,093

    Newest Member
    Michele B
    Joined
  • Popular Now

  • Topics

  • Posts

    • Jameson Irish whiskey, knob Creek single barrel, southern comfort original, bird dog apple flavored whiskey, captain morgan private stock, crown royal, and Maker's Mark whiskey?
    • Thanks for the information really appreciated 
    • There are some enzymes you can take to lessen the gut symptoms, they help break it down quicker to get over it faster. Your antibodies will still flare up for the next few weeks and weak havoc with your immune system so it is mostly damage control. Go easy on your gut everyone is different in terms of easy to digest foods. I myself use coconut and konjac porridge the next couple days of with egg whites and nothing solid. Others swear by broths, soups, sweet potatoes, rice porridge, and slow cooked meats.
      Imodium helps if you have D, if you get C like me up your magnesium, I use magnesium calm but rotate in more doctors best which is easier on the gut when glutened. Peptobismal many swear by. GasX can help also. Anise (not star anise) can help with bloat and gas also. Teas are wonderful, drink plenty of liquids regardless.



       
    • Hi all: I was diagnosed with Celiac in 2010 with blood testing and small bowel biopsy.  I have been following a gluten-free diet since and a lot of my symptoms and skin problems have gotten better.  However, I was at the beach and got bitten by flies and after biopsy of my legs and a whole Hurd of blood tests the diagnosed me with pyroderma gangrenosum (PD).  It is very painful and takes a long time to heal.  There is some research out there that does relate pyroderma gangrenosum to any inflammatory bowel disease.  I could only attach one photo but I hope this helps others to know PD is a big problem.  
    • Yeah my family stopped doing gifts a few years ago when we had a grandparent on each side of the family die. After that no one meets up, no gifts, no one even does cards. I tried 2 years ago to give all my relatives gifts, hand written cards......None of them even said thanks. Next year I said I will not give out cards or gifts unless one of them send me something....and well I did not even get a card. Funny thing is my birthday falls on the 16th of Dec so nothing from any relatives for 2 years in the month of December hit me pretty hard. I know my disease caused me to burn bridges and be a bit more secluded but it was ridiculous to the point that the past 2 years I have been sending myself on vacation the same way, hotel, and location that my family used to spend on vacations when we were a family.

      Sorry for the self pity thing, I was just pointing out that my extended family other then my parents (they still help me out and care) do not care about the holidays anymore. And I consider several members here, as messed up as it might be a "I care about your health and life" more so  then my actual aunts, uncles, and cousins. So I figured I might not be rich but if we had a secret santa type thing I could at least afford to send one person a gift.

      Funny how this community is more family to me then the one I grew up in. I guess it has to do with relating to people here more, feeling of caring, and overall support.

      I swear one of these days we do need to have some kind of meet up lol, would be crazy....oddly enough I can see certain members from our group being at each others throats, while others would be like arms around the shoulders singing carols....the mental image is quite amusing.

      But yeah I do wish I could send everyone here a gift or card, but you know how the financial issues are. If I ever when the lottery I am gifting everyone lol.  
  • Upcoming Events