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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Outrageous Things Doctors Have Told Me

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*My dentist noticed the enamel off of my teeth by 1990.

*A dentist, in alarm, said you have allergies big time. 199-.

*My Obstetritian told me she thought I had 5% of my bone mass left at age about 25.

All of the above were given without advice or information about what to do. It was totally mysterious and I shrugged it off.

My chiropractor told me that my metabolism was more out of balance than people that had had chemotherapy. 1993.

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*My dentist noticed the enamel off of my teeth by 1990.

*A dentist, in alarm, said you have allergies big time. 199-.

*My Obstetritian told me she thought I had 5% of my bone mass left at age about 25.

All of the above were given without advice or information about what to do. It was totally mysterious and I shrugged it off.

My chiropractor told me that my metabolism was more out of balance than people that had had chemotherapy. 1993.

Wow! I think doctors are either too busy or do not want to admit they are less than Gods and dont know everything.

I also have had enamel deficiency since I was middle school. I am now almost twenty-two. I had hyperlordosis that was completely ignored for years and no one even mentioned as well as a degenerated disc at the base of my spine that no one mentioned despite a gazillion xrays. I found out recently on out of pocket trip to a chiropractor.

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I also had enamel problems since forever. A local dentist spoke to our celiac support group recently. They are trying to educate dentists so that they will point their patients with certain celiac indicators such as enamel problems towards testing for celiac disease.

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Doctor told me that 9 mos of what seemed like food sickness was IBS, that I'd have it for life, and to go join a support group.

After birth of my son, I went from a size 10 to a size -2 in about 6 months...then in another 6 month back up to a size 12!

Another doctor told me that I just had chronic reflux, put me on higher and higher doses of meds, finally put me under to take a look and didn't see a thing related to celiac.

At that time, I had chronic urticaria all over my body for 3 yrs....constant sinus infections, caught every single cold etc that came my way via my son (young), depression (not diagnosed PPD, just "anxiety")

Went to an allergist through all this, came up allergic to soooo much, and he said "you seem to be allergic to something called gluten", "what's that?", "oh, it's just this sticky part in a wheat product, nothing to be concerned about" (and he completely brushed it off, so it didn't sound so important to me)..."oh, and you're also completely allergic to milk. and eggs", "so what are the hives from?", "it would appear that you're allergic to cats, it's definitely from that", "FOR THREE YEARS??", "yes"....I got up to leave, and he says this as I'm half way out the door, "Oh! You should also know that your Vit D levels are almost non-existent! Bye!"

All this info goes back to my INSANELY POPULAR NYC Doctor, who people wait for months to see, who is written about extensively in New York Mag.....and he does't come up with a THING. Nothing.

Yes, it's incredibly frustrating that a mere few months later, and a naturopathic CELIAC doc does the right blood test and what do you know...raging Celiac and thyroid issues.

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Doctor told me that 9 mos of what seemed like food sickness was IBS, that I'd have it for life, and to go join a support group.

After birth of my son, I went from a size 10 to a size -2 in about 6 months...then in another 6 month back up to a size 12!

Another doctor told me that I just had chronic reflux, put me on higher and higher doses of meds, finally put me under to take a look and didn't see a thing related to celiac.

At that time, I had chronic urticaria all over my body for 3 yrs....constant sinus infections, caught every single cold etc that came my way via my son (young), depression (not diagnosed PPD, just "anxiety")

Went to an allergist through all this, came up allergic to soooo much, and he said "you seem to be allergic to something called gluten", "what's that?", "oh, it's just this sticky part in a wheat product, nothing to be concerned about" (and he completely brushed it off, so it didn't sound so important to me)..."oh, and you're also completely allergic to milk. and eggs", "so what are the hives from?", "it would appear that you're allergic to cats, it's definitely from that", "FOR THREE YEARS??", "yes"....I got up to leave, and he says this as I'm half way out the door, "Oh! You should also know that your Vit D levels are almost non-existent! Bye!"

All this info goes back to my INSANELY POPULAR NYC Doctor, who people wait for months to see, who is written about extensively in New York Mag.....and he does't come up with a THING. Nothing.

Yes, it's incredibly frustrating that a mere few months later, and a naturopathic CELIAC doc does the right blood test and what do you know...raging Celiac and thyroid issues.

That is insane! It is ironic that medical doctor is the highest regarded profession and yet many of them dont pay any attention to what they are doing with people. It is like ordering soup and getting a bowl full of broth, a bowl of carrots, a bowl of uncooked chicken, a bowl of spices... It just makes no sense to me. We got each other though on this forum and we have to be our own advocates. I hope you and the OP get well.

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I also had enamel problems since forever. A local dentist spoke to our celiac support group recently. They are trying to educate dentists so that they will point their patients with certain celiac indicators such as enamel problems towards testing for celiac disease.

That is very good. I wish my dentist would have thought, "This is odd; this girl is only ten and has enamel deficiency."He just mentioned it to me after my complaining of my teeth staying stained even though i dont drink tea or coffee.

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I have a severe wheat allergy.

I had one allergy doctor refuse to do food allergy testing on me, and told me that I have Vasomoto allergies (allergies without a cause), and I would be sick for the rest of my life, no medications would help, and he could do nothing for me, and there was nothing I could do about it. :blink:

Another doctor told me that my anaphylactic reactions were menopausal symptoms....LMAO. Wheat induced menopause....OMGosh!!! I'm not even in menopause. Someone quick, write a case study about me, I'm a medical anomaly!!! :P

Finally, another doctor tested me for food allergies and said, you have a severe wheat allergy and must be gluten free for life and carry an epi-pen. :)

Thank you for this thread, I needed some humor today....

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Thank you for this thread, I needed some humor today....

Your welcome, It is best to take things with some humor. It is better than crying about it. :lol:

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Thank you for this thread, I needed some humor today....

Your welcome, It is best to take things with some humor. It is better than crying about it. :lol:

You are right, I like humor better. I've cried plenty!!! :D

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